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Regular Member

Date Joined Jan 2010
Total Posts : 166
   Posted 4/14/2010 1:55 PM (GMT -7)   
Hi all. This doesn't relate to fibro, that I know of, but I wondered if anyone has dealt with labyrinthitis.  It's a word the doctor used today and after looking it up online I just have to say: I CANNOT TAKE ANY MORE SPINNING!!  I cannot take any more anything!! So I'm just going to hope the sinus pressure is causing my issues and it will go away with the meds she gave me... 
Anyway, any suggestions on not moving, yet moving so I don't get stiff and hurt, would be very helpful. Yuck.

New Member

Date Joined Apr 2010
Total Posts : 1
   Posted 4/14/2010 11:44 PM (GMT -7)   
This illness is happening more and more. There is no need to suffer to the extent that many are. I was acute. It starts with the head pressure and I mean pressure. Between ears, top of head, back of head, sinuses and it goes on and on, then overwhelming fatigue then into the aches and pains. The central nervous system is severely affected. Some can be so extreme that they can be bedridden. Oh and not to mention the stomach problems and then it goes into anxiety attacks as well. They are calling it Labyrinthiis now, but in reality it has had many names over the years.

I was unable to function at a safe level for a long time. GP's had no assistance, Naturopaths helped to some degree, but then became even sicker as the supplements have a residual problem that build up in the cells of our body and then we become poisoned from that.

Eventually did most of the healing myself. Had to go back to ancient healing methods - flower essences to remove negative emotions from the cellular memory of my body - it's gradual, layer by layer. Simple herbal tea drink a couple of cups a day to move the toxins out of the body and rebuild it and a most wonderful advancement in technology by the NASA scientists. A computer system called a QXCI/SCIO - cutting edge energy medicine. Hopefully you can find someone in your part of the world (possibly a Homeopath). If you do these things you will feel considerable improvement after approx 3 weeks and it's gradually clearing out the body bit by bit from there until we come all the way back to normal.

I have been helping other suffers in Australia and we are all doing very well and with a bit of time back to normal again. Never thought that I would be able to say that.

Inexpensive - Flower essences from health food stores Bach or any Emergency mix. Someone at the store will be able to help. A good all round herbs which is a complete food is Nettle with a slice of lemon for flavor. Take the drops a few times a day in the beginning and eventually down to just once a day. Should be able to buy nettle from herbalist or online. Other herbs helpful as well for aches and pains, but you need to gain some education to know what to do with those. Not difficult either. Good inexpensive herb books around to guide you. If we don't look after our bodies through this unfortunately we can have other problems. So very import.

Here is my local QXCI/SCIO operators website for you to investigate further:

Wishing you well and always happy to offer support. Have gotten to know so many others with this illness also.

Veteran Member

Date Joined Nov 2008
Total Posts : 2858
   Posted 4/15/2010 6:57 AM (GMT -7)   

Hi...I have Meniere's disease so I am very aware of the non stop spinning.  I have to sit in one place and not move my eyes or head until it's tolerable, then I walk around without tilting my head.  It's worse when I lay down.  I think the two disorders are very similair and my doc gave me antivert and valium to take...not together but either or.  They sedate the little ciliae in the inner ear that cause the spinning.  I know it's a horrible feeling...I always have an anxiety attack at the same time also!



fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: valium Advil

Veteran Member

Date Joined Aug 2008
Total Posts : 1771
   Posted 4/15/2010 7:47 AM (GMT -7)   
I have the same condition as Donna. I use valium when I'm in the midst of a severe attack, and when I'm having just daily "dizzies" I use benadryl before bed. It's an antihistamine that helps dry up extra fluid, but it also (according to my ENT) is an inner ear stabilizer.

Try to keep your head as still as possible. No looking up, looking down, or turning your head quickly. When you have to turn to look at something, try to turn your body as a whole. Be careful of watching too much movement (tv, flashing lights, etc.) If florescent lights in stores bother you, sometimes sunglasses help. If you are spinning really badly, find a fixed point and keep your eyes on it. Closing your eyes can sometimes make it worse.

Are you having trouble with balance? Our balance is determined by our inner ears, eyes, trunk, and brain all working together. If one is behaving wonky, it can throw off your balance. Sometimes I have to use a cane when I'm having a lot of Meniere's issues.

I hope you feel better soon. I know how miserable it can be. sad

Hugs - Austen
"There is no charm equal to tenderness of  heart." - Jane Austen

Regular Member

Date Joined Jan 2010
Total Posts : 166
   Posted 4/15/2010 8:53 AM (GMT -7)   
I don't know if I'm in the midst of a nasty cold or a major allergy issue, but I'm on so many antihistamines at this point I have few options. I have severe congestion, also, so I'm taking sudafed. I'm doing sinus rinses. I did okay this morning, only two small incidences, but just now had a bigger spin. I am someone who gets motion sick anyway, so I'm not sure if I'm more prone to it when my sinuses act up or not. I have to give the antihistamines (which I've been on for a year), the sudafed and the antibiotic until Monday, and if I still have the dizzies I have to go back to my ENT. Meanwhile, I cannot stand to be dizzy, don't dare drive anywhere, forgot to bring lunch to work, and do not have the luxury of staying home from work when I have work that needs to be done. I'm just cranky.

The one thing that really freaks me out is when I spin and I cannot control my eyes. I want to sit and cry, but that just makes it all worse.

Holding very still and turning my entire body together does seem to be helping.

My heart goes out to each of you, and anyone else that deals with this on a regular basis. I don't know how you function!

Regular Member

Date Joined Oct 2009
Total Posts : 434
   Posted 4/15/2010 12:31 PM (GMT -7)   
I have not been diagnosed with Labyrithitis or Meniere's but I suspect Meniere's.  Flashing lights are horrible for me and now that I have learned a bit about this I think I don't tolerate flourescent lights well either.  I use to feel off balance and like I was going to have a panic attack in certain stores and thought I was was crazy for years but it's due to this.  Ceiling fans are horrible for me too and on occasion I get the spins so bad that I have to sit and just focus on one thing, but thank God I don't get that alot.  At times if I am having sinus difficulties, like right now when the pollen count is high in our area at times when I have my head down and then raise it, it feels like the room spins for a moment.  I understand and hope you start feeling better soon. 
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