finally learning

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Veteran Member

Date Joined Jul 2008
Total Posts : 1495
   Posted 4/26/2010 6:22 PM (GMT -7)   
As I have been having some good days, last week on Saturday I was tempted to think I was cured of this awful fibro!  But of course, I have finally learned.  Good days do not mean fibro is cured!!  So I remembered to still pace myself.  That made it a lot easier when a flare came up the following day - because I was not surprised!! 
I decided to try to park a little further away and was considering parking on the second level of the parking garage.  It already takes me about ten minutes to walk from the garage to my office - but I am slow.  I parked another 100 feet away, but had a flare while at work and had to concentrate hard to get to my car.  When I got to the garage and saw my car, I thought - (expletive)!    My daughter moved into an apartment that is on the second floor.  No elevators, only stairs.  Helping her unpack was quite an ordeal!  but I minimized stair usage and did ok.  I actually grabbed the rail and used both hands to pull up.  Must have looked silly, but it worked.
It is nice not to be going through the cycle of feeling better and thinking the diagnosis was wrong, then feeling awful and morning all over again.  That is unproductive, isn't it?!

getting by
Forum Moderator

Date Joined Sep 2007
Total Posts : 41915
   Posted 4/26/2010 6:56 PM (GMT -7)   
I do that. I park way far away from the stores in the parking lot. It takes me a little while to get to the store, but I know that the walking is good for me.

I am glad that you are having some good days.

Take care,

Hugs, Karen
  Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies

Forum Moderator

Date Joined Nov 2008
Total Posts : 5951
   Posted 4/26/2010 8:27 PM (GMT -7)   
Yeah, I is harder when you're expecting to feel "normal."
What you said about pulling yourself up by a rail surprised me - because I would be afraid to do that. (It would hurt my neck, shoulders, & trapezius muscles too much.) Everyone has their own worst problem areas, though.
Hope your flare is over.
  Diagnosed: Fibromyalgia, Meniere's, elevated liver enzymes, skin grafting on back, arthritis, scoliosis,   lumbar disc damage, sciatica, IBS, migraine headaches, skin cancer surgeries on face
    Meds: Nortriptyline, Clonazepam, Darvocet as needed
    Multivitamins, l-lysine, probiotics, magnesium, malic acid, calcium + vit. D, vit. C
    Chiropractic adjustments
Be yourself.  Everyone else is already taken.

Regular Member

Date Joined Jan 2010
Total Posts : 52
   Posted 4/26/2010 9:00 PM (GMT -7)   
Learning how to pace myself was a big part of my battle because when i had good days i wanted to do as much as i could to catch up on things and i would end up in bed for the next two or three days. You have made a big step in pacing yourself and know what would happen if you didnt. Some of us take alot longer to learn it, especially when your stuborn (like me).

I can't park to far from the doors because i may feel ok going in but when i come out im dragging and hurting so bad i have to sit down before attempting to make it to the car. Just about the time we think we might be ok we have another flare that reminds us we are not. Hope your flare ends soon.


 Diagnosed with -FM, Degenerative disc disease, spinal stenosis, arthritis, Lupus., undifferentiated connective tissue disease. 
Medications- Plaquanil, 800 Ibuprofen, Lortab, Cymbalta 

Veteran Member

Date Joined Jul 2008
Total Posts : 1495
   Posted 4/26/2010 10:29 PM (GMT -7)   
Can't really park any closer to my office because the campus is huge and there is very little parking.  It is in a bicycle town - everyone rides bikes or takes the bus.  There are even signals for bicycles.  I never saw that before going to work in this town. 
I park in the structure and walk to my office.  So parking further away does not really add much, comparatively so.  However, even with good days, there are still days where I need the disabled spots to park.  Hubby had to drop me off at the door of the grocery store because people steal the disabled spots.  I used to need them all of the time, but less frequently. 
I think the walking is helping a lot.

Forum Moderator

Date Joined Apr 2005
Total Posts : 17526
   Posted 4/27/2010 4:04 AM (GMT -7)   
Sue, the walking IS helping a lot.  It did that for me, too.  That's why I stress to keep moving.  Stairs are a problem for me, too.  I have no stairs in my home.  I do have three steps to get in and out of my pool but that's it.  So, when I go visit my son, who lives in a third floor apartment that has no elevator, I too pull myself up the steps using the railing.  But, after about a week and a half, my legs are stronger and I notice I can take the stairs better!  So, this might happen with you too.
I'm really happy with your progress and your attitude with this lousy illness.  I remember when  you first came on and were trying to deal with all of this.  It's just best to accept the illness, work around it, and live your life to the fullest.  It sure sounds like this is what you are doing!
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

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