Autoimmune Inner Ear Disease (AIED) is very similar to Meniere's. We have a bilateral hearing loss, have hissing, ringing, etc. in the ears and have some dizziness. I don't have the dizziness to the extent that Meniere's patients have. But, I do get dizzy because my inner ear is involved. I also can eat products with sodium in them. It doesn't affect me.
about 20 years ago I started telling my husband to stop mumbling. He would tell me to get my ears checked. We bantered back and forth with this for months. Finally I was soooo sick of his mumbling that I decided to have a hearing test so I could wave the results in his face and tell him to STOP MUMBLING! Well, the test showed that I had a hearing loss in one ear and that I should consider a hearing aid.
Humph! What did this doctor know!!! He was just a little suburban doctor. I decided to have my hearing checked at the Cleveland Clinic, since I lived in Cleveland at the time. I got an appointment for the following month. When checked, I now needed hearing aids in both ears! They set up an appointment for the next month and, when checked, my hearing had fallen off a lot more! I was devastated.
I was sent to the specialist there and he put me on megadoses of Prednisone....80 mg a day for one month. Many times this will stop the progression of the disease. If it did, I would stay on a low dose to maintain my hearing. Unfortunately, I was one of the few this didn't help. Blood work was done, too, and it was determined that I had AIED.
I was fitted for hearing aids and, Achey, it brought my hearing back to 96%! I could hear the birds again and I honestly didn't realize how much sound I was missing. But, two weeks after getting the aids, I woke up, put the aids in, and couldn't understand what was being said on the television. Again, I was ticked. You spend all that money for hearing aids and they break in weeks! I called my audiologist and she had me come in. She tested the aids and they were working fine. She tested my hearing and I had lost nearly all my high sounds...overnight!
I got digital hearing aids and they do help with crispness of sound but I do have to lip read. My low sounds are still good but 96% of speech is made up of high sounds. I also need closed caption on televisions, barely can use a phone, and can't go to movies. I saw a specialist here in Tampa who wanted to do the cochlear implant on me. He said, "It's not IF you get a cochlear implant, but when because you WILL lose all of your hearing." I told him that he hadn't factored God in that equation and he smiled and agreed. That was 11 years ago! I'm holding my own and am praying for medications or adult stem cell research to help me.
Now, you can try hearing aids out before you buy them and I highly suggest you try it. My hearing loss is extremely similar to Meniere's except you shouldn't lose yours so fast...if you lose it at all. But, the difference was amazing. You do have to decide to wear them. They were really irritating at first but I wore them anyway. Usually I don't even know I have them in...except for that itchy ear. I haven't had it checked out but I will. I probably have a skin infection because, when they itch, I will stick my finger in my ear to scratch it. Not too smart but.... Anyway, give it a try. You don't want to miss the wonderful sounds if at all possible. Oh, how I would love to hear the birds sing again.......
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Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7