Do you have to have trigger points to have fibromyalgia?

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Regular Member

Date Joined May 2010
Total Posts : 74
   Posted 5/5/2010 7:11 AM (GMT -7)   
Just wondering if anyone was diagnosed with fibro without having the trigger points.

Veteran Member

Date Joined Jul 2009
Total Posts : 4796
   Posted 5/5/2010 8:02 AM (GMT -7)   
Hi Mary and welcome to the forum. Typically a triggerpoint exam is done to confirm fibro
along with tests to rule out autoimmune diseases. Pain and fatigue are two of the major
symptoms of fibro. There are 18 designated places on the body that are bilateral and are
on both the upper and lower body. A person being tested should have 11 or more tenderpoints to be diagnosed with fibromyalgia.

Checkout fibro 101 on the top of page one. You will find lots of good info about fibro.
Do you think you may have fibro?

Please keep us posted. We care!

Hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements

getting by
Forum Moderator

Date Joined Sep 2007
Total Posts : 41821
   Posted 5/5/2010 8:08 AM (GMT -7)   
Hi Mary,

I wanted to welcome you to the forum, I hope that you decide to stay with us.

Yes, check out fibro101. It is the second thread at the top of the page. It is full of advice.

I don't think you have to have a specific number of tender points actually becasue some react on different days. But that is how I got diagnosed after there was nothing in blood work or exrays. Though I don't know if I had 11. I just remember the doc pushing on a spot on my back and I almost came off of the table. It hurt so bad. And that is when she said "I think you have fibromyalgia". I didn't even have a clue what it was so I had her write it down for me. Then I started getting information on it.

I hope that you find the forum helpful. We have a lot of wonderful members who are so very kind and compassionate. We know how you feel.

Have you got a diagnosis yet? Let us know what is going on.

Take care,

Hugs, Karen
  Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies

Regular Member

Date Joined May 2010
Total Posts : 74
   Posted 5/5/2010 8:24 AM (GMT -7)   
Next time I go in I think she is going to put me on Lyrica.

Veteran Member

Date Joined Sep 2009
Total Posts : 663
   Posted 5/5/2010 12:00 PM (GMT -7)   
I was diagnosed the same way Karen. After tons of tests and 2 specialists my primary doc did the trigger points and started on my back and neck, the pain was incredible! She brought me to tears then said "I'm sure you have fibromyalgia". I had never even heard of it, so like you I started researching fibro and that's how I found this site!
Gentle Hugs,
Fibromyalgia, Chronic daily headaches, Migraine disorder (with and without aura), GERD, High blood pressure, Depression and Anxiety
Oxycontin, Flexeril as needed, Lopressor, Lexapro, Omeprazole, Clonazepam as needed, Promethazine as needed for nausea from migraines

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Date Joined Mar 2009
Total Posts : 4717
   Posted 5/5/2010 2:00 PM (GMT -7)   

The same thing happened to me when the doctor pushed on my back. I nearly came off of the table. I didn't even know I hurt there, that's the weird part. I hurt in every place he pushed except one. That one, was really sore though. That's how I was diagnosed but it took over a year for me to finally get a diagnosis. I suffered in pain for so long. I don't understand why some doctors are so illiterate when it comes to Fibro. Thank God my primary suspected it and sent me to a rheumatologist.

Mary- I hope they figure out what's wrong with you and you get relief soon.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum

Forum Moderator

Date Joined Apr 2005
Total Posts : 17497
   Posted 5/5/2010 2:55 PM (GMT -7)   
When I was diagnosed, fibromyalgia was known as fibrositis and they didn't know much about it.  They probably didn't know about the tender points!  I was diagnosed without the tender point test but they ruled out other illnesses. 
Many doctors think you need to be sensitive to all 18 tender points but here is a report from the National Institute of Health that says that even sensitivity to one tender point had a dianostic accuracy of between 75% to 89%.  So, this is a good diagnostic tool.
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Forum Moderator

Date Joined Nov 2008
Total Posts : 5948
   Posted 5/5/2010 4:19 PM (GMT -7)   

Well, that's what fibro is - muscle pain. Keep looking till you find a good doctor! Good luck. And don't ever let 'em tell you you're crazy!!
  Diagnosed: Fibromyalgia, Meniere's, elevated liver enzymes, skin grafting on back, arthritis, scoliosis,   lumbar disc damage, sciatica, IBS, migraine headaches, tachycardia, skin cancer surgeries on face
    Meds: Nortriptyline, Clonazepam, Darvocet as needed
    Multivitamins, l-lysine, probiotics, magnesium, malic acid, calcium + vit. D, vit. C
    Chiropractic adjustments
Be yourself.  Everyone else is already taken.

Veteran Member

Date Joined Mar 2009
Total Posts : 4717
   Posted 5/5/2010 5:08 PM (GMT -7)   

That's interesting. So, they first thought that the pain was caused by an inflammation in the muscles? My SED rate is high. I wonder where the inflammation is coming from. My muscles sure do feel inflammed when they are hurting.
**You never know how STRONG you are....until being STRONG is the ONLY choice you have**

Co-Moderator Lyme Disease Forum

solar powered
Veteran Member

Date Joined Nov 2007
Total Posts : 538
   Posted 5/6/2010 8:50 AM (GMT -7)   
Hi Mary. I think people use the terms trigger point and tender point incorrectly. They are not the same thing. Tender points are areas that cause pain when pressure is applied and is used to help diagnose fibro. A trigger point is an area of knotted muscle that may hurt when touched but refers or causes pain sensations in a distant area. So that can go in the "for what it's worth" category. From what I understand the criteria states that you need to react to at least 11 of the 18 tender points to be diagnosed but many rheumys use that as a guide and take all of your signs and symptoms into account before making a decision. In other words, the tender point exam is a tool but not a definitive test.

If I can laugh at it, I can live with it.

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