Hi, Ziplocked, and welcome! I'm glad you found us and joined in.
I know fibro isn't fun to have but there sure are plenty of things out there that are worse. You don't die from fibro and you usually don't end up completely incapacitated from it either...unless you sit around and don't move. That will stiffen you up in a hurry! That also causes more pain.
Far more doctors do know about fibromyalgia then they used to. When I was diagnosed, it was called fibrositis. Many doctors do know what fibro is but they don't know what causes it nor do they have a cure. But, this scenerio is also true of other illnesses, cancer for example. They are working on it and are learning more about this illness. Check out Fibro 101...the second thread on the forum. There are links to good info about fibro and there is one called Doctors Respond to New York Times Article. That is an enlightening link, I feel. You will see learned doctors describing this illness, what they are now studying about it, etc. So, don't think nothing is being done. Progress is being made.
I didn't develop fibro until right before my 40th birthday but I did develop Crohn's disease as a toddler. By the time I was in my late 20's I had two toddlers of my own and another baby on the way. Along with this I had intense cramping and bloody diarrhea and had to use the bathroom about 25 times a day. Talk about crimping ones lifestyle!
I do not take prescription medications for fibro. I take ibuprofen with food, extra strength Tylenol, malic acid/magnesium supplements and extra vitamin D3 to help with pain and fatigue. Many with fibro are deficient in these vitamins and nutrients. There are links in Fibro 101 all about these and how they work in your body. This might be something to talk to your doctor about. This has helped me get in control of this illness.
Also, you need to keep moving and stretching. If you don't, you will be stiff as a board and have more pain. There are some good stretching exercises in Fibro 101. You should find a gentle exercise that you enjoy doing. I walk and swim as my exercises.
I know it's not "fair" that some of us are afflicted with these illnesses...especially at a young age....but no one promised that life would be fair. But, life can still be wonderful in spite of these illnesses. You are the one that makes the choice whether or not you will enjoy your life or be miserable. I chose early on to live my life to the very best of my ability and to work around my problems. I'm happy to report that I have had a full and enjoyable life in spite of my illnesses. I'm still going strong and am glad about that because I have a great life ahead of me.
Lastly, this site is wonderful just the way our administrator designed it. Profanity is not allowed and you will definitely be edited. I'll even edit if you try to skirt around the rules..."bullfish" for example. I allowed it this time but now that you know, please don't do that again. We do have members as young as 13 on here that are sick and need help so we do keep this family friendly. We are mostly adults with, hopefully, a good command of the English language and can express ourselves without the use of "colorful" language. Our rules, I feel, are what helps us be an award winning site. Much has been written about HealingWell. Here is a link about us if you are interested.
I do hope you start to get a more positive outlook on this illness, face it head on, and get it under control. We are here to help you every step of the way. I'm glad you are here and I hope to hear more from you soon.
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7