Glad you came to ask questions. Many of your symptoms can be associated with fibro but also they can be attributed to other disorders. The numbness and tingling would be frightening and I'm surprised none of the doctors had a clue. It's sad when they think it's all in the patient's head when sometimes they just don't know. But then to have your sister come up with the same exact symptoms is very telling to say the least.
Have you tried a university/teaching hospital? You can see doctors there who won't give up and are on the leading edge of the medical field and research. In the Fibro 101 thread there's a link to many of the places around the world where you can go. Here's the link so you don't have to hunt for it.... en.wikipedia.org/wiki/List_of_university_hospitals
It would be worth the drive.
Also, have you seen a rheumatologist? They are most often the ones who diagnose things like fibromyalgia even though it's generally thought to be a central nervous system disorder. When it was less understood fibro was considered in the rheumatic disorders.
I sure hope you find an answer soon!
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(> <) Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.