OK how do you all believe it is Fibro and nothing more serious.

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Regular Member

Date Joined May 2010
Total Posts : 74
   Posted 5/18/2010 6:05 AM (GMT -7)   
I just cant get bad diagnosis out of my head!!! Also I only had 6 trigger points . Do I still have Fibro?  I have severe anxiety and am not sure if it is all in my head! My husband is going to leave me he is so sick of all of this. I do have Crohn's though.

Forum Moderator

Date Joined Jan 2007
Total Posts : 3550
   Posted 5/18/2010 6:19 AM (GMT -7)   
You may want to seek treatment for anxiety.  If you feel better then you know you were having axiety.  Anxiety is an actual disorder that requires treatment.  It causes horrible suffering.  You have posted about ALS, crohn's and whether or not you have fibro.......in my opinion, treating anxiety might be worth trying. 
Have you had a colonoscopy or biopsy for crohn's or are you just going from symptoms?  Good luck!  I hope you feel better real soon. 
Gretchen  ~  diagnosed with MS July 2006
I have no lesions on my soul and so I will live with no limits.

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 5/18/2010 6:24 AM (GMT -7)   
I agree it really sounds like anxiety to me too. I have Crohns and developed anxiety related to it, so you could be suffering the same as I do. I take Xanax as needed for my anxiety and it works well. You do know that with Crohns, many of us also suffer with Fibro and with reactive arthritis the Crohns flares can trigger. I have found that Vitamin D3 really has helped to ease my fibro pain alot. I am now taking 4400 units a day. It took about a month to notice the difference, but boy what a difference. I also have osteoarthritis related to my Crohns, so that is another possibility. But right now I really think you need to deal with this anxiety. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Veteran Member

Date Joined Jul 2009
Total Posts : 4796
   Posted 5/18/2010 6:28 AM (GMT -7)   
Mary, There are some things that are just out of our control. All the worrying in the world
will not change the outcome of your diagnosis. Try to find something to keep you busy
during the day to help keep your mind off worrying. I can't tell you if you have fibro or not.

I feel bad that you are stressing so much and I wish I could ease your mind. Everyday is a
new day, try to focus on all the positives you do have. Taking long walks helps with stress.

Mary you can call your doctor and let her know that you have severe anxiety about your dx,
she might prescribe something to help you relax. Wishing you inner peace. Sending gentle

hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements

Regular Member

Date Joined May 2010
Total Posts : 74
   Posted 5/18/2010 6:29 AM (GMT -7)   
Im so scared my husband is going to leave me!! And we are having bad financial issues also.

getting by
Forum Moderator

Date Joined Sep 2007
Total Posts : 41912
   Posted 5/18/2010 6:32 AM (GMT -7)   
I agree with all the above statements. Try to relax. Get checked out for anxiety. It can cause a lot of physical ailments.

Worrying about this is only going to make it all seem worse. It causes tension, which causes more pain and fatigue.

Maybe some meditation is in order. Or relaxation exercises. Deep breathing helps too.

Good luck to you.

Hugs, Karen
  Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies

Forum Moderator

Date Joined Apr 2005
Total Posts : 17526
   Posted 5/18/2010 8:10 AM (GMT -7)   
You really need help with anxiety and possibly some therapy.  You are living in fear and that's no way to live. 
Reread this thread you started.  It is basically the same subject.  You were given good advice from the members.  Hope you get a grip on this because this stress isn't helping you one bit.

Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Post Edited (Sherrine) : 5/18/2010 9:35:51 AM (GMT-6)

Regular Member

Date Joined Apr 2010
Total Posts : 382
   Posted 5/18/2010 8:33 AM (GMT -7)   
Mary, I am undiagnosed too went through the same thing. I recongized anxiety was causing physical symptoms too beyond the pain.

I flat out told my doctor it runs in my family and I knew I had to get that undercontrol so I can deal with other things. I was put on medication.....it has helped wonderfully. My twitches has calm down, yes I do have them but I believe anxiety was causing more.

I have looked up all the symptoms of other diseases....of all the disease symptoms I fit into Lymes and Fibro more, fibro has the most symptoms.

I realize pain that moves around doesn't happen in most diseases, it starts out in a location.

I will keep you in my prayers ((hugs))

Regular Member

Date Joined Aug 2005
Total Posts : 384
   Posted 5/19/2010 3:55 AM (GMT -7)   
I have an anxiety disorder called GAD ( generalized anxiety disorder ). Before I got medication for it I was worrying about everything under the sun. It was unreal! I was miserable and so was my husband. I was no fun anymore and looked terrified all the time. I take Lexapro for anxiety and it helps a lot. I still get some anxiety but it doesn't tear me up. I also became more spiritual and began doing more positive things. It was tough at first cause it took the medication about 6 weeks to really work. It took a lot of effort everyday. I am glad I found something that helped me to stay grounded.

Maybe you need to see a dr. about the anxiety.

I struggle with FM,Raynauds Syndrome,gastroparesis, IBS and depression. I trust in God with all things. Been a tough journey and it's not getting any easier but thanks to God and my family I am not alone.

Regular Member

Date Joined Dec 2009
Total Posts : 387
   Posted 5/19/2010 4:58 AM (GMT -7)   
Mary, I wish that I could take your ansxiety away. I know how you feel. I also see a therapist and take prozac for anxiety. What I have learned to help keep my anxiety to a low roar is to try to defuse it. I do things such as listening to music, taking hot showers (also good for Fibro) and try to talk myself down from the anxiety. What that means is that I spin it to the positive. I also take walks and that helps. As for believing if it is Fibro and nothing more...I trust my Dr. and I cannot afford to go to that place. My kids and hubby need me to stay grounded. Yes, my mind wonders if it is something else. Especially with a history of cancer but I have faith and try not to read into it too much. Yes I have frustrating days. I had one yesterday but I do the best I can with what I have. I am sorry if this is preachy. I just want to help!
Thinking of you,
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