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Regular Member

Date Joined May 2009
Total Posts : 447
   Posted 5/20/2010 10:40 AM (GMT -7)   
confused   Ok here it is I don't sleep. Drugs my give me an hour or two's sleep if I take enough at present. but on the whole I don't sleep.
But today has been a great example of what happens when I do got to sleep. I had 12 hours of sleep which is great.  Except no one can wake me up once I go to sleep. Yes I do wake up I got up and moved from the bed to the lounge I remember doing that I talked to my daughter I have no idea about what we talked about. Then for the next 9 hours she and DH  could not wake me they tried about 2 hours to make sure I was ok.
Now this is not the first time this has happened so no one paniced thank goodness. When I read about others wanting to sleep all the time it is oh how wonderful. My Doc suggested I have a sleep study done was I asked how long do you want me to go for as it may take weeks for me to get any real sleep. That idea was dropped as we have to travel some hours to get it done.
Does anyone else do this?
And no I had no drugs in my system when this happened as I have decided why take a hand full of meds to make me sleep and they don't work any more.
And my pain level has shot through the roof now again.
FMS, CFS,IBS, Migraine,menopause.

Veteran Member

Date Joined Jan 2010
Total Posts : 1097
   Posted 5/20/2010 11:51 AM (GMT -7)   
awww someone who generally wakes up once an hour all night long, I can really sympathize with you. Restorative sleep is critical for us Fibromites...but most of us can't get it

I think the standard things we're told to do in order to sleep are still valid - dark cool room, relaxing activities before bed, such as a bath or shower....use of melatonin....these are things that might help. I try to stick to the same routine, and to not nap during the day, but it's hard. I hope you're able to find a solution that works for you, and I would really try to do the sleep study if you may answer a lot of your questions.

Sweet dreams!

Conditions: Fibromyalgia, Myofascial Pain, Chronic Pelvic Pain (with permanent muscle damage), Femoralacetabular Impingement (CAM and Pincer), Reynauds, IBS, Surgical Adhesions, Ophthalmic Migraines, Severe Hot Flashes (both Surgical Menopause and medication related), plus physically unable to vomit due to the Nissen, and I have extremely tiny veins with a lot of scar tissue...a joy when it comes to having to give blood or get an IV started

Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT

Medications: Oxycontin, Cesamet, Tramacet, Cymbalta, Flexeril and Clonidine plus Laxaday, Vitamin D and a Multi-Vitamin daily

Regular Member

Date Joined Jun 2009
Total Posts : 286
   Posted 5/20/2010 3:26 PM (GMT -7)   
I sleep. In fact, I sleep alot. But unfortunately, no matter how much I sleep I am always tired. I can never get that good, restorative, stage 4 sleep. To be honest with you, it sucks. My fatigue has been so massive lately that I'm not even sure whether I'm coming or going.

I had a sleep study done once. All it showed was that I wasn't getting the stage 4 sleep. But honestly, I coulda told them that.

I wish I had some magic advice, but I don't. Do try out Pam's suggestions though.

Good luck!
"Anyone can give up, it’s the easiest thing in the world to do. But to hold it together when everyone else would understand if you fell apart, that’s true strength."


Dx: Fibromyalgia, Chronic Fatigue, Trigeminal Neuralgia, TMJ, Migraines, Anxiety, Insomnia, Acid Reflux, RLS, Asthma.
Rx: Celebrex, Buspar, Savella, Lyrica, Neurontin, Requip, Nexium, Symbicort, Compazine, Lunesta.
Supplements: Vitamin B Complex, Vitamin D, Vitamin C, Iron

Regular Member

Date Joined Apr 2010
Total Posts : 372
   Posted 5/20/2010 9:51 PM (GMT -7)   
Kathy, the only thing that I can think to add is that you might want to get your thyroid checked. My husband has thyroid problems, and if his level is too low, he sleeps constantly! At one point recently, I tried repeatedly to wake him over a period of two hours, and could not. I had begun to worry that he had slipped into a coma when he finally woke up on his own. He recently had bloodwork done, and his thyroid level is extremely low, and his Synthyroid dose is being adjusted.

Regular Member

Date Joined May 2009
Total Posts : 447
   Posted 5/21/2010 7:24 AM (GMT -7)   
I had my blood tests done last week and they are all fine this new Doctor is right on top off all this for me. I just don't seem to sleep until I get totally exhausted and then I seem to just shut down and sleep everytime I lay down for a few days. Then it is back to not sleeping again, Baclofen worked wonders when I first started on it now it has no effect.

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