1 more think I know Im driving you all CRAZY!!!! Im driving myself CRAZY!!!!

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Regular Member

Date Joined May 2010
Total Posts : 74
   Posted 5/27/2010 9:59 AM (GMT -7)   
When I went for my appt to the reumatologist I only had a total of 6 trigger points. I had bloodwork and Xrays showed nothing. I still am having trouble with the diagnosis because the criteria says it needs to be at leat 11 trigger points. I have constant pain in my neck ,upper back,knees fingers,wrists,ankles. I have also had alot of skin issues oh and constant headaches. Recently the palms of my hands hurt. Just wondering what you all think. Oh an I have noticed alot more popping and clicking of joints.

Veteran Member

Date Joined Jul 2009
Total Posts : 4796
   Posted 5/27/2010 10:14 AM (GMT -7)   
Mary, I still think you are suffering from anxiety waiting for your diagnosis. Calling your
doctor and letting her know this, will only benefit you! She can prescribe something for you
to take the anxiety level down. I do feel for you because I do remember what it was like
waiting for my dx.

All of us are individuals with differant sets of circumstances so are symptoms may differ.
As I said before, all the worrying in the world will not change the outcome of what your dx
will be. Stress causes adrenaline and cortisol into our bloodstream, that can cause insufficient
bloodflow going to your muscles and joints causing you more pain. Please call your doc and
tell her what is going on. I hate to see you suffer! Sending gentle hugs!!!!

hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements

Veteran Member

Date Joined Jan 2010
Total Posts : 1097
   Posted 5/27/2010 10:43 AM (GMT -7)   

I have to agree somewhat with crazykitty....you are adding to your stress and anxiety by analyzing every little pain or twitch that seems out of place. The unfortunate reality is that if you have pain in one area - say your back - it may cause other pain in surrounding areas because you are "guarding" the aching spot. When you're in pain, you hunch more, you tense more, and you're generally hypersensitive to pain, movement, noise, etc.

I don't doubt there are things going on in your body that need attention, but you truly need to try and relax and not think that every twinge or pain is something major - or even all that serious.

Please don't think I'm taking your situation lightly...I'm not. I just think you need to focus on some positive stuff for awhile instead of all the negatives. You'll do your entire body a world of good if you do some gentle exercising, some light stretching, and start eating healthier to sustain your body and aid in healing well.

Good luck to you.

Conditions: Fibromyalgia, Severe Myofascial Pain, Chronic Pelvic Pain (with permanent muscle damage), Femoralacetabular Impingement (CAM and Pincer), Reynauds, IBS, Surgical Adhesions, Ophthalmic Migraines, Severe Hot Flashes (both Surgical Menopause and medication related), plus physically unable to vomit due to the Nissen, and I have extremely tiny veins with a lot of scar tissue...a joy when it comes to having to give blood or get an IV started

Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT

Medications: Oxycontin, Cesamet, Tramacet, Cymbalta, Flexeril and Clonidine plus Laxaday, Vitamin D and a Multi-Vitamin daily

Veteran Member

Date Joined Aug 2008
Total Posts : 1771
   Posted 5/27/2010 11:41 AM (GMT -7)   
Mary, I feel your pain (no pun intended). I know what it's like to worry, "What if it isn't fibro? What if the doc is wrong? What if it is something worse?" I've worried about every little twinge, twitch, bump, pain, swelling, etc. I've scoured the internet trying to "diagnose" myself. I've been afraid that I've had MS, ALS, and every cancer immagineable. And all I've ended up with is stress, anxiety, and a diagnosis of fibro that has been confirmed by 3 rheumatologists.

I think many of us suffer from anxiety, and the constant worry about our diagnosis/health can be a manifestation of that. My advice is to trust your doctor. No doctor wants to ignore something more serious or life threatening and just label it fibro. It sounds as if your doc has done the appropriate tests. Also, most of the problems you describe could be attributed to both anxiety and fibro. If you are still uncertain, there is nothing wrong with a second opinion.

Finally, stay off the internet!! (Except here, of course) smilewinkgrin I know from first hand experience that there is just enough info out there to drive you crazy. I still struggle with self-diagnosing online, and I have to battle it constantly. In my opinion, the only exception would be researching and educating yourself about a condition that you have been diagnosed with by your doc (in this case, fibro). There are lots of reputable sites such as Web MD and National Institute of Health, and the Fibro 101 link here is great.

I'm sending you soft hugs and wishes for a peaceful weekend.

"There is no charm equal to tenderness of  heart." - Jane Austen

Post Edited (AustenFan) : 5/27/2010 12:45:07 PM (GMT-6)

getting by
Forum Moderator

Date Joined Sep 2007
Total Posts : 41819
   Posted 5/27/2010 12:29 PM (GMT -7)   

The tenderpoints aren't always sensitive. There are days when you might have close to all of them, and days when only three or four hurt.

I think that these guys are right. You are causing yourself more stress by worrying about the fibromyalgia. When you have stress, you automatically have more pain. Don't be so aware of your symptoms. You can actually not think about them if you think about something else, something constructive.

I know that it is hard. When I was first diagnosed, I didn't have the internet (thank God) but I read books. That is often good information for you. Try getting the fibromyalgia network newsletter. It explains a lot and always has up to date information. Also teaches you exercises and many other good things to do.

Of course keep posting, as we are here to support you. And as mentioned above, have you read the fibro101 thread? It is very informataive.

I hope that you feel better soon. Please try to keep your stress level down. I am beginning to worry about your anxiety level. There is a very good anxiety forum here that is very helpful with coping mechanisms. Breathe deeply and try not to think so much.

Take care sweetie,

Hugs, Karen
  Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies

Veteran Member

Date Joined Nov 2008
Total Posts : 2858
   Posted 5/27/2010 12:48 PM (GMT -7)   

Mary...the day I got my fibro dx I was relieved, as I had imagined that I had every disease known to man from looking symptoms up in books...No Google back then.  Just say 'No' to Google' if you have any kind of health anxiety.  Like others have said, trigger points change from day to day.  I only had six the first time also.  I believe that you do not have to have them all to get a fibro diagnosis...they migrate.  My doctor based my dx more on my symptoms, and what was ruled out in blood work and MRI'/ CAT scans then tender points.


fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: valium Advil

Regular Member

Date Joined May 2010
Total Posts : 74
   Posted 5/27/2010 12:51 PM (GMT -7)   
Thanks everyone you all are so great. I hate the internet it always points to cancer !! 

Regular Member

Date Joined May 2010
Total Posts : 110
   Posted 5/27/2010 8:52 PM (GMT -7)   
Well looks like this resolved lol.. I have to add though I only have 6 tenders and on Savella I have none. go figure but I'll take it. There are other things that pop up and we address them as we can. Nothing earth shattering so far and most test come back with some jerks comments about Advanced Aging!!

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 5/28/2010 6:30 AM (GMT -7)   
Mary everytime I have looked on the internet trying to figure out what was wrong with me, I have been WRONG! So quit trying to self diagnose with google, cause all you will do is scare yourself silly for nothing. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*
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