It's been a rough couple of weeks. I've had chronic pain from my wrists, back, legs, and feet for a few years. Just the past couple of weeks, I got the pain in my neck, shoulders, head, and numbness/tingling in all those areas. I've had bloodwork and xrays. I'm waiting for my ins. co to authorize the MRI on my head and neck so the dr can rule out MS. My first Fibro exam, I had 6 of the 18 tender points. That was a couple weeks ago right before the neck pain started. Dr started me on just 100mg of Neurontin before bed to help me sleep and to continue taking my Ibuprofen 800 3x a day for my back pain. Of course, that didn't help. I ended up at the ER Sunday night because of the neck pain and the numbness/tingling. ER Dr examined me and said he thought it was disc related. He took xrays to rule out any bone issue. The xray came back normal. He prescribed prednisone and vicodin and sent me on my way. The pain didn't go away and I didn't sleep the next 2 nights. I called my Dr and begged her to see me a day early, even though all the results hadn't come back from my bloodwork and xrays the week before. Got to the Dr, and was at almost all of the tender points. She upped my neurontin slowly. I'm taking 100mg 3x a day now. On Friday, I will start 100mg 2x a day and 300mg at bedtime. Then next Tues, I will start 200mg 2x a day and 300 at bedtime. She is weaning me off of the prednisone. ER dr put me on 40 mg per day. She also gave me flexeril as needed. My bloodwork had come back by the time I got there. I'm vit C deficient, so I have to take a supplement for that, and I have a kidney stone. I had to go get another US to check that and bloodwork to check renal function. I'm waiting on that.
Anyway, I feel like I'm a zombie. She says she wants me to rest as much as possible because I'm severely exhausted. True. I haven't slept a full night in months. It takes forever to get comfortable enough to fall asleep and when I do, I'm waking up every hour. I have 3 kids, ages 7, 5, and 2. They are going to daycare since I can't possibly be responsible for them in this state. I'm on so much meds right now, I don't trust myself to take care of them. It's hard to tell what symptoms are from the steroid or other meds and what symptoms would still be there without any meds.
Dr says that unless the MRI shows something else, it's Fibro. Problem is, my ins co still hasn't authorized it and the dr's office is worried they won't until after I have physical therapy.
I'm just really down and I don't even know what to do. And I already have a family member that said "Oh, I looked up the symptoms for Fibro online and most of those anyone could have." I know he was trying to make me feel better, but that really irritated me. My poor husband has had to work during the day, pick up the kids, make dinner, clean the house, and then do more work for his job after the kids go to bed. I feel completely useless and I feel like he thinks I would be fine if I wasn't taking all these meds and that the Dr is making me worse.
If you read this far, thanks for listening.