Does it get better?

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New Member

Date Joined Jun 2010
Total Posts : 3
   Posted 6/10/2010 10:22 AM (GMT -7)   
It's been a rough couple of weeks. I've had chronic pain from my wrists, back, legs, and feet for a few years. Just the past couple of weeks, I got the pain in my neck, shoulders, head, and numbness/tingling in all those areas. I've had bloodwork and xrays. I'm waiting for my ins. co to authorize the MRI on my head and neck so the dr can rule out MS. My first Fibro exam, I had 6 of the 18 tender points. That was a couple weeks ago right before the neck pain started. Dr started me on just 100mg of Neurontin before bed to help me sleep and to continue taking my Ibuprofen 800 3x a day for my back pain. Of course, that didn't help. I ended up at the ER Sunday night because of the neck pain and the numbness/tingling. ER Dr examined me and said he thought it was disc related. He took xrays to rule out any bone issue. The xray came back normal. He prescribed prednisone and vicodin and sent me on my way. The pain didn't go away and I didn't sleep the next 2 nights. I called my Dr and begged her to see me a day early, even though all the results hadn't come back from my bloodwork and xrays the week before. Got to the Dr, and was at almost all of the tender points. She upped my neurontin slowly. I'm taking 100mg 3x a day now. On Friday, I will start 100mg 2x a day and 300mg at bedtime. Then next Tues, I will start 200mg 2x a day and 300 at bedtime. She is weaning me off of the prednisone. ER dr put me on 40 mg per day. She also gave me flexeril as needed. My bloodwork had come back by the time I got there. I'm vit C deficient, so I have to take a supplement for that, and I have a kidney stone. I had to go get another US to check that and bloodwork to check renal function. I'm waiting on that.

Anyway, I feel like I'm a zombie. She says she wants me to rest as much as possible because I'm severely exhausted. True. I haven't slept a full night in months. It takes forever to get comfortable enough to fall asleep and when I do, I'm waking up every hour. I have 3 kids, ages 7, 5, and 2. They are going to daycare since I can't possibly be responsible for them in this state. I'm on so much meds right now, I don't trust myself to take care of them. It's hard to tell what symptoms are from the steroid or other meds and what symptoms would still be there without any meds.

Dr says that unless the MRI shows something else, it's Fibro. Problem is, my ins co still hasn't authorized it and the dr's office is worried they won't until after I have physical therapy.

I'm just really down and I don't even know what to do. And I already have a family member that said "Oh, I looked up the symptoms for Fibro online and most of those anyone could have." I know he was trying to make me feel better, but that really irritated me. My poor husband has had to work during the day, pick up the kids, make dinner, clean the house, and then do more work for his job after the kids go to bed. I feel completely useless and I feel like he thinks I would be fine if I wasn't taking all these meds and that the Dr is making me worse.

If you read this far, thanks for listening.

getting by
Forum Moderator

Date Joined Sep 2007
Total Posts : 42067
   Posted 6/10/2010 10:43 AM (GMT -7)   
Hi Crystallynn79,

Welcome to the fibromyalgia forum. I am so glad that you have joined us. You will find that there are a great group of members here that are very kind and compassionate. Very understanding too. We have been through it.

I am sorry that you are having such a hard time with your fibro right now. It kind of sounds like you are in a fibroflare. Not sure though. I can say that once you get your meds straightened out, you will feel better. You may never be pain free, but you can get it under control.

I find that the vicodin type medication works for me. I take norco, which is a stronger vicodin. But that doesn't always work for everybody. But neurontin did not help me whatsoever, but that does not mean that it wont work for you. I took flexeril, but switched to soma. It doesn't make me as sleepy as the flexeril did. I also take adderall for the fatigue. Not everybody needs it, but my fatigue is bad. I can handle the pain better than the fatigue.

Stess is a real contributer to fibro. When you get stressed, your muscles in your neck and shoulders get tight, causin severe pain. So try to keep your stress down to a minimum. It sounds like your husband is really supportive so that is good. I am sorry that he has to do extra, but I think soon, you will be able to do a little more. Just don't feel guilty about it, that does not help at all.

If you get the oppertunity, check out a thread called 'fibro101'. It is a very good thread. It is the second thread on the first page. You will find it very helpful.

I hope that you start to feel better soon. Know that we all understand where you are coming from. Take care, keep posting...

Hugs, Karen
  Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies

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