My trip to the primary and the oncologist today!

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Veteran Member

Date Joined Sep 2006
Total Posts : 1713
   Posted 6/15/2010 4:12 PM (GMT -7)   
Today I had two drs appts.  One was to my primary early this morning.  He examined me and decided that the pain was over my appendix, but said it could still be scar tissue from the recent surgery three weeks tomorrow.  So, tomorrow I go for the cat scan with contrast.  Hopefully, It will tell the tale of what is up and why I am still in so much pain.
At 2:15 pm, I arrived at my oncologist office.  I met many of the staff and they were all so nice.  They drew at least 10 vials of blood and got the results instantly.  My WBCs are still elevated and my H and H are low as well as my RBC's, which just means I'm a bit anemic and that there is an infection brewing somewhere--could still be my UTI.
The doctor answered many questions and said that this endometrial cancer works a lot like ovarian cancer, in that when it spreads, it usually spreads to the abdomen.  He says with the chemo, I should have an 80% chance of a cure rate.  I will need to have chemotherapy once a week for six weeks.  I will lose my hair and I will get somewhat nauseous.  There is a chance I will have numbness and tingling in my extremities after about three treatments. The agents they will use are carboplatnum and taxol.  Then after the chemo, I will have a half dozen radiation treatments.
He found the copy of the path report confusing and said he will call the pathologist himself and discuss this, as well as he will speak to my surgeon to make sure they are all on the same page.  That inspired confidence in me for sure.
I have a follow up appt with both the primary and the oncologist next Tuesday.
I have to resolve my infection and pain before I start treatment, as the chemo attacks the immune system.  But I can't wait too long so it doesn't spread on me.   It's a fine line I am walking right now.
But I hope for the best and I'm keeping positive.  I promised I'd share my updated info with all my great friends on here.  Please continue to pray for me, if you will.  I will be most indebted to you.
Co-Moderator Chronic Pain and Fibromyalgia Forums
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.

Forum Moderator

Date Joined Nov 2008
Total Posts : 5948
   Posted 6/15/2010 4:17 PM (GMT -7)   

Here's wishing you all the best - thanks you for keeping us updated. We are all pulling for you -
    Diagnosed: Fibromyalgia, possible Meniere's, elevated liver enzymes, skin grafting on back, arthritis, scoliosis, lumbar disc damage, sciatica, IBS, migraine headaches, tachycardia, skin cancer surgeries on face
    Meds: Nortriptyline, Clonazepam, Darvocet as needed
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Be yourself.  Everyone else is already taken.

Regular Member

Date Joined Mar 2010
Total Posts : 42
   Posted 6/15/2010 5:06 PM (GMT -7)   
In my thoughts & prayers Linda! Take care of yourself!

Low Vitamin D


Ergocalciferol (Vitamin D)
Fish Oil-Omega 3
Low dose Asprin

Veteran Member

Date Joined May 2010
Total Posts : 1556
   Posted 6/15/2010 10:38 PM (GMT -7)   
Lindaloo, just wanted you to know that I am glad there is such a high success rate for your type of cancer. We will all keep praying for you and you keep your positive attitude and we will get through this together

Regular Member

Date Joined Aug 2005
Total Posts : 384
   Posted 6/16/2010 12:18 AM (GMT -7)   
I pray that things will be ok. Sounds like you have a great team of dr.'s working with you.
Fibromyalgia,arthritis,raynauds syndrome,gastroparesis,IBS,depression and roseca
God and Family is my life.

Regular Member

Date Joined Jan 2010
Total Posts : 166
   Posted 6/16/2010 10:54 AM (GMT -7)   
You are in my thoughts and prayers! Your doctors sound great, as does your attitude. Sometimes it IS all about the attitude.

Irish Babe
Veteran Member

Date Joined May 2007
Total Posts : 1380
   Posted 6/16/2010 11:44 AM (GMT -7)   
Thank you for keeping us updated. I do hope they can knock out that infection very soon, my DH is still on antibiotics to get rid of his infection. They do seem to hang around for awhile. I hope the pain is 'just' the scar tisssue, I've had that after abdominal surgeries, too. Boy, does that hurt.
Your team of drs seem to have a good plan in place for you and they seem very optimistic. What I love is your positive attitude, I have noticed that in so many of your posts in the past. Your strength and faith truly inspires me. I of course will continue to pray for you, on that you can count.
God bless.  Alice.

Veteran Member

Date Joined Sep 2006
Total Posts : 1713
   Posted 6/16/2010 2:19 PM (GMT -7)   
Well to be honest, I am not always positive.  Sometimes my thoughts get the best of me and I start to doubt.  But then my hubby says, "Linda, you are going to be alright.  Just trust in the Lord."  and I bounce back with an 'I know you are right!"
Thank you for the wonderful support--all of you.  You don't know how much that means to me.  I will keep my head on straight and try to remain positive.  Some times are better than others.  I tell you when they gave me that 80% chance of it not recurring, I was thrown.  I was hoping for a number in the 90th percentile.  But it is what it is, so that's where you just keep on keeping on. 
Here's hoping that I respond well to the chemo and that all goes well.  My husband says he will be with me every step of the way, so I am not alone, thank God.
Please keep writing to me and praying for me.  I am leaning on all of you.  God bless every one of you.

Co-Moderator Chronic Pain and Fibromyalgia Forums
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.

getting by
Forum Moderator

Date Joined Sep 2007
Total Posts : 41817
   Posted 6/16/2010 2:20 PM (GMT -7)   
Hi Lindaloo,

We are all rooting for you here. And are praying for you. I too am happy that your type of cancer has such a high survival rate. And I also think it sounds like you have a very good oncologist.

I will be keeping you in my thoughts and prayers, and thank you for the update. You do sound like you have a positive attitude and I feel as posted above, that it does make a huge difference in beating cancer. Keep your chin up sweetie, and know that we all care about you.

Hugs, Karen
  Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies

Regular Member

Date Joined Oct 2009
Total Posts : 434
   Posted 6/16/2010 3:22 PM (GMT -7)   
Hey Lindaloo.  You really sound like you have a great team of Doctors.  I am continuing to pray for you and was wondering about you just today so I'm glad you posted an update.  You have alot of people praying for you.  Keep us posted!

Veteran Member

Date Joined Jul 2009
Total Posts : 4796
   Posted 6/16/2010 4:05 PM (GMT -7)   
Keeping you in my thoughts and prayers, Linda. Your husband sounds like a sweety,
very loving and supportive. Continue with positive thoughts:)
Hugs, Robin

Veteran Member

Date Joined Aug 2008
Total Posts : 1771
   Posted 6/16/2010 4:45 PM (GMT -7)   
I'm keeping you in my prayers, Linda.
"There is no charm equal to tenderness of  heart." - Jane Austen

Forum Moderator

Date Joined Apr 2005
Total Posts : 17497
   Posted 6/16/2010 8:24 PM (GMT -7)   
Linda, you are a very strong lady and an inspiration.  I'm glad you have good doctors and your prognosis is good!  Did they find out what was going on in the CT scan you had today?  I am keeping you in my prayers.  Some day, this will only be a bad dream.
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Veteran Member

Date Joined Aug 2006
Total Posts : 9657
   Posted 6/16/2010 8:33 PM (GMT -7)   
will be positive for you and know that you'll do better than 80%...
Hugz and Prayers....
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...


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