How does 1 get a dignosis?

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Regular Member

Date Joined Jun 2010
Total Posts : 36
   Posted 6/28/2010 11:48 AM (GMT -7)   
I'm new here and tired. Where to start? I don't know. I've been tested for Lyme disease by blood work and haven't gotten the results in yet. I've had a backache that just won't quit. I also get these very bad headaches that do not respond to iboprophen or tylenol. So then I ask myself, is it allergies. When my knees hurt I ask myself is it because of my weight? I really don't know. I've been also sweating a lot during the day time. I get easily fatigued. For instance last night I was making a cake and I actually got tired from using the beaters and had to have my son hold the bowl for me and scrape it out. It was just too much on me as my arm was exhausted. I know I do sound so whiney and like a cronic complainer. I have also been out of work for over a year due to anxiety/ panic attacks. I've not had a panic attack in a while. My memory isn't as good as usual either. I'm frequently constipated too. Um....I'm tired already and writing this post I know I'll forget something but am hoping for support. How do I get a dignosis? Is there a blood test I can do? Do doctors take you seriously when you asked to be tested for this? How do I get the doctor to check me for this? I have no insurance right now so even getting my blood tested for Lyme disease was a major cost. Um....if you can help me any information would be greatly appreciated. Any feedback would be great. Please don't tell me it's all in my head. It's so hard to explain to those around me (my husband for example) that I really do feel exhausted and sleep isn't really refreshing at nights. Oh, I have not had a headache for days now! Yippee! I've been experimenting with different over the counter meds for my backache. Maybe the Aleve and pain patches are working? My back seems to have stiffness as well as pain. Sorry for rambling. I'm trying to fit in all the details. yeah I'm just editing to ad that my best friend for a while was my heating pad both for my headaches and backache.

Post Edited (blessedwith3boys) : 6/28/2010 12:52:21 PM (GMT-6)

Veteran Member

Date Joined Jul 2009
Total Posts : 4796
   Posted 6/28/2010 1:16 PM (GMT -7)   
Hi blessedwith3boys, Welcome to our forum! I'm so sorry you are so tired and in
pain. Getting a diagnosis of fibro does take some time because all the connective
tissue diseases need to be ruled out first. There are symptoms of fibro that fit other
disorders, so bloodwork is done first.

After other diseases are ruled out a doc familiar with fibro usually a rheumatologist
can make a diagnosis based on certain criteria. a person with fibro has widespread
pain that affects all four quadrants of the body...upper and lower. There are certain
designated places on the body called trigger or tender points. The doctor will check
these out for tenderness.

Check out fibro101, second thread page one...there is a great resource of info
including a long list of fibro symptoms.

No one here would ever tell you it is all in your head..WE KNOW IT IS REAL...
that is why this forum is so great...we all understand pain and we are here to help
one another.

Heat is a fibromite's friend, so take long hot baths when you are able. Most of us use
bedbuddies( microwave rice heating pad). Exercise is very important too. I'm a
walker and it helps with stress also.

I'm glad you have joined us!. Ask all the questions you want. We care ! keep us
posted and let us know how the Lyme test turned out.

Hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements

Veteran Member

Date Joined May 2010
Total Posts : 1556
   Posted 6/28/2010 3:19 PM (GMT -7)   
Hi blessedwiththreeboys, Im sorry you are having such a rough time, but Im glad you found us.
Robin is right, none of us will tell you it is all in your head. We know what it is like to look normal but not feel normal.
There is no blood test that will tell you that you have fibro, The drs. to a trigger point test on different parts of your body to see if there is pain there. Usually you get the diagnosis after they have tested for all other possibilities.
Again I have to agree with Robin as far as seeing a rhuematologist. They are better trained in doing the trigger point tests and testing for other possibilities.
There is a great bunch of people here that are willing to help with any questions.
Welcome again
Gentle Hugs

Veteran Member

Date Joined Mar 2010
Total Posts : 1286
   Posted 6/28/2010 6:24 PM (GMT -7)   
Honestly I would try to get state assistance as far as the health insurance goes because the cost of the tests will add up and they can get pretty pricey. The first test they did on me was a MRI of the brain and I don't even know what that would cost.

I wish you luck and stick around, there is a lot of really nice and caring people on here. And it was mentioned above to read Fibro 101, it is really informative.
Denise from Pittsburgh, Pa
 ***diagnosis: high blood pressure, gastritis, fibromyalgia, hepatitis (SVR),  disc problems in neck, depression, anxiety & stress
 ***meds: metroplol 25mg, zoloft 150mg, gabapentin 300mg 3x a day zocor , (soma, fioronal, tramadol, as needed).
 ***other supps: calcium, vit D 2,000-4,000 per, milk thistle, vit C &E, acidopholos (sp?),  
CO-Q 10,  flax or fish oil, ginsing, magnesium, B complex,

Forum Moderator

Date Joined Nov 2008
Total Posts : 5951
   Posted 6/28/2010 9:37 PM (GMT -7)   
Hello,It sure sounds like it could be fibro. I had to chuckle at your description of getting tired while beating cake batter, not because it's funny, but because that's just like me. Then again, it could be something else, or a combination of fibro and - who knows what.

The pain IS real! I had a nurse at the hospital the other day say that fibro is just a wastebasket diagnosis, something they call symptoms that don't fit anywhere else. (Really? Are we still in that place in 2010??) I was there for my daughter, and didn't feel like getting into it, and besides, I'm very old-hat at this and not in any danger of being made to feel like a hypochondriac. But whatever you do, don't let them softsell your pain. That's what gets me - when someone else tries to tell you how YOU FEEL!

As for the tender-point test, I've heard many times that sometimes those specific points won't be tender - besides, they can move around from day to day. Anyway, good luck to you!
    Diagnosed: Fibromyalgia, possible Meniere's, elevated liver enzymes, skin grafting on back, arthritis, scoliosis, lumbar disc damage, sciatica, IBS, migraine headaches, tachycardia, skin cancer surgeries on face
    Meds: Nortriptyline, Clonazepam, Darvocet as needed
    Multivitamins, l-lysine, probiotics, magnesium, malic acid, calcium + vit. D, vit. C
    Chiropractic adjustments
Be yourself.  Everyone else is already taken.

Regular Member

Date Joined Jun 2010
Total Posts : 36
   Posted 6/30/2010 6:08 AM (GMT -7)   
Well, my test for Lyme disease came back negative. My backache was gone or at least almost gone for most of yesterday but it's back today.
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