My First Chemo Infusion Lasted Two Days

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Veteran Member

Date Joined Sep 2006
Total Posts : 1713
   Posted 6/30/2010 6:04 PM (GMT -7)   
My friends and family:
I went to the oncology center to get my first chemotherapy treatments yesterday.  They premedicated me with benedryl and anti-emetic (anti-nausea) medications, but it wasn't enough cause I got a bad reaction.  My heart started racing, my chest tightened up, I got short of breath, my back started hurting very badly, my face got so flushed, I got severly nauseous.  It was awful.  They stopped the infusion and waited for the reaction to back down.  Then they gave me more benedryl and other meds and held the taxol, but gave me the other med that only infused over an hour.  Then they sent me home with steroids to take that night and this morning.  
I arrived back at the office at 8:30 am today and got started with more benedryl and anti emetics and finally started up back with the taxol.  It was a success and they were able to infuse it properly without me getting a reaction this tiime.  They had to re start the IV though and that took three more sticks, so they decided that next week they are going to put in a port a cath in my chest for easy IV access.  If anyone wants to know more about that, just let me know and I will explain further.
Well I slept all day in the chair yesterday and came home and developed a migraine headache that lasted from 5 pm to 5 am and after I got some more pre meds today, it came back, so they gave me a tylenol and I took my percocet and it went away during this morning's infusion.  I slept all day there at the chemo office in a recliner and my husband and I closed up the joint at about 5 pm again.  Now we have to go pick up the phenergan from the drug store in case i get nauseous in the next few days, which they tell me that could happen.
So, once again, all your prayers worked wonders for me and I got through the first round of chemo although it was very trying to say the least.  Next time around will be better, I just know it.  Thank you for your support and prayers and love.  I feel it all and am so grateful to each and every one of you.
God bless you all.

Co-Moderator Chronic Pain and Fibromyalgia Forums
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.

Veteran Member

Date Joined May 2010
Total Posts : 1556
   Posted 6/30/2010 6:34 PM (GMT -7)   
Hi Linda, just wanted you to know that I am still praying for you and I am glad that the first round is over for you.
Gentle Hugs
DX: Fibro, Gerds, COPD, Osteoarthritis, Osteoporosis, High Blood Pressure, and Depression.
When I get where Im going dont cry for me down here. (Brad Paisley & Dolly Parton)

Forum Moderator

Date Joined Nov 2008
Total Posts : 5948
   Posted 6/30/2010 8:23 PM (GMT -7)   
Sounds grueling, Linda.  I'm still praying for you.  You are a very strong woman!
    Diagnosed: Fibromyalgia, possible Meniere's, elevated liver enzymes, skin grafting on back, arthritis, scoliosis, lumbar disc damage, sciatica, IBS, migraine headaches, tachycardia, skin cancer surgeries on face
    Meds: Nortriptyline, Clonazepam, Darvocet as needed
    Multivitamins, l-lysine, probiotics, magnesium, malic acid, calcium + vit. D, vit. C
    Chiropractic adjustments
Be yourself.  Everyone else is already taken.

Veteran Member

Date Joined Feb 2009
Total Posts : 686
   Posted 7/1/2010 3:43 AM (GMT -7)   
We are so proud of how you are handling this, Linda. You are such a trooper. God's blessings.
DX fibromyalgia 2007, osteoarthritis, obsessive-compulsive disorder OCD, depression, anxiety, sleep apnea, hysterectomy.

fluoxetine (prozac), abilify, trazodone, lorazepam, nabumetone, hydrocodone, c-pap machine.

Regular Member

Date Joined Oct 2009
Total Posts : 434
   Posted 7/1/2010 7:04 AM (GMT -7)   
You are so strong through all of this. You are in my prayers. Keep us updated.

Forum Moderator

Date Joined Apr 2005
Total Posts : 17501
   Posted 7/1/2010 9:36 AM (GMT -7)   
Linda, it sounds like now they have figured out what meds they can use to help you feel less ill during this procedure.  That's good.  The port is good, too.  I had one put in when I was hospitalized with Crohn's and I was glad to have it.  It's far easier and you won't be "stuck" all of the time.
You are in my thoughts and prayers.  You are a strong woman.
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Veteran Member

Date Joined Dec 2008
Total Posts : 2386
   Posted 7/1/2010 2:27 PM (GMT -7)   
Ask for zofran, it is more more effective than phenagrin. I too do chemotherapy. I hate to tell you it, but it gets worse. You can also do a pill form of chemo. You still get sick though. I was on phenagrin, compuzeen and zofran just to control me. It never failed, I had to do iv therapy 3 times a week just to get rehydrated. I was having a double end reaction, and I had to be pulled off of it when I started a double end version of blood both ways. They are talking about putting me on methotrexate now
Smurfy Shadow/Desirèe 
DX: Wegener's Disease, Migraines, Diabetese Type II, PCOS, Lactose Intolerant, Benign Heart Murmer, Depression, Asthma, Asperger's Syndrome, Necrotizing Gramultous Inflamation in eye, A.D.D., Acid Reflux, Tumor Behind the Eye, Carpal Tunnel, Fibromyolgia, Clasterphobic, Arthritis
Medications:  Tri Nessa, Percocet, Metformin, Prilosec, Protonix, Zantac, Advair, Cingulair, Albuterol, Calcium + Vitamin D, Pro-Air, Pepcid, Rolaids, Zofran, Compuzeen, Refresh Plus Eye Drops  PRN: Epi-Pen, Albuterol Nebulizer, Benedryl
Undergoing Radiation Taking Lorazepam (Ativan) on Radiation Days

Forum Moderator

Date Joined Apr 2005
Total Posts : 17501
   Posted 7/1/2010 2:47 PM (GMT -7)   
Desiree, I'm so sorry you have had such a horrible time but eveyone is different and the medications work differently with each person, too.  The Phenagrin might be just the ticket for Linda.
Linda and Desiree, my grandmother had cancer of the lymphatic system.  She had a large mass and they didn't touch it because they knew it would spread wildly.  They stitched her up and gave her 6 months to live.  She had chemo and it shrunk the mass to the size of a golf ball and it never progressed again.  She lived a full life and passed on 15 years later, at age 81, of Alzheimer's...not cancer!  So, both of you, keep the GOOD thoughts coming!
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

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