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Lana Bear
Regular Member

Date Joined Jul 2010
Total Posts : 25
   Posted 7/3/2010 2:09 AM (GMT -7)   
I thought I would take this opportunity to introduce myself.  I've posted on a couple of other threads.  I've had back/neck problems for about five years because of a car accident.  I was rear ended at a stop light and wound up with a bad case of whiplash.  I went to a chiropractor with good results but over the last year, my symptoms have gotten worse and changed in many aspects.
It started with a light vibration in my toe about four months ago.  I didn't think much of it because I would get the occasional eye twitch.  The vibrations turned into buzzing sensations, muscle twitching, electric shock sensations (which are constant now), tender to the touch.  One day my husband barely touched me and I cried out in pain.  I went to the ER, they dismissed me with anxiety.  Even my doctor told me it was all in my head.  I rarely saw this doctor because I wasn't that sick until last December.  I thought it was stress from my job and the aspect of being laid off.
I did go to another ER where I was diagnosed with parathesia but they didn't know the cause.  My cat scan was fine and they ran various blood tests.  I saw a neurologist and had an MRI of the brain done.  I have an MRI of the nect this morning.  All my blood tests have come back fine except I was low in B6.  I have started taking supplements for that.  Lupus, lyme disease, and rheumatoid arthritis have all been ruled out.  MS has not been completely ruled out at this point.
They did find 8 lesions on my brain but they weren't active.  The neurologist explained it as scar tissue or gray matter.  It could have been a result of my car accident.  I've read where lesions don't necessarily mean MS.  I have a follow up brain MRI in September.  My chiropractor encouraged me to see a rheumatologist so my first appointment is Tuesday.  I will take all my records with me.  I have an appointment with a new GP next week.
I've been disgusted with the lack of care from some doctors.  There are days when I can barely use a pen and i know this is not all in my head.  Fibro seems to fit a lot of my symptoms.  Thank you for the warm welcome and support already. 

Veteran Member

Date Joined Mar 2009
Total Posts : 900
   Posted 7/3/2010 2:34 AM (GMT -7)   
Hello Lana Bear, I feel for you about some of the care doctors give or don't give. Nice to have you here.

Veteran Member

Date Joined Sep 2009
Total Posts : 663
   Posted 7/3/2010 4:57 AM (GMT -7)   
Hi Lana,

Welcome to our healing well family! I am sorry you are going through this right now. Getting a diagnosis can be very trying, to say the least. I know my Doctor and a few specialists had to rule out many things before I got dx'd. Now my SED rate is elevated so here I go again! Hang in there, at some point I think they will figure out what is going on with you. In the meantime, keep posting here. We have alot of wonderful and supportive people that give wonderful advise and can just be here if you need to vent. Take care and once again, welcome.
Gentle Hugs,
Fibromyalgia, Chronic daily headaches, Migraine disorder (with and without aura), GERD, High blood pressure, Depression and Anxiety
Oxycontin, Flexeril as needed, Lopressor, Lexapro, Omeprazole, Clonazepam as needed, Promethazine as needed for nausea from migraines

getting by
Forum Moderator

Date Joined Sep 2007
Total Posts : 41844
   Posted 7/3/2010 7:32 AM (GMT -7)   
Hi Lana Bear,

I already welcomed you to the forum, but welcome again. I am so happy that you started your own thread. It lets us get to know you better.

As you can see we have a wonderful group of members here and we all understand what you are going through. Getting a diagnosis is hard sometimes, they have to rule everything else out. And that takes time, time that just seems like forever for us. But hang in there. It sure sounds like you have fibro.

Know that we all understand what you are going through and we are all here for you. I hope that you are having a pain free day today. Take care hon.

Hugs, Karen
  Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies

Forum Moderator

Date Joined Apr 2005
Total Posts : 17501
   Posted 7/3/2010 9:11 AM (GMT -7)   
Hi, Lana, and welcome!  I'm so glad you found us and joined in!  Yes, getting a diagnosis can be an ordeal and I'm glad you are getting other doctors.  You definitely don't need doctors that think it's all in your head.  You are going through the correct procedures to get a diagnosis, too.  It is important to rule out those other illnesses first, since many have the same symptoms as fibro.
The buzzing/vibration is strange, isn't it?  I get that too.  I sometimes feel like water is running down my leg and I get buzzing in my legs, too.  I actually fell last week because I felt like there was a bug crawling inside my sandal while I was walking my dog!  I should have known better.  But, when you get your diagnosis, then you can handle those things better because you will recognize them for what they are.
Be sure to check out the Fibro 101 thread...the second thread on the forum.  There are links to good info about fibro including What Else Could It Be.  Also, check out the link called, Doctors Respond to New York Times Article.  You will see what the doctors who really are studying fibro think is going on...and it's NOT all in our heads! 
I'm happy you are here.  Don't hesitate to ask questions.  We have great members that love to help one another.  I hope to hear more from you soon.
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Regular Member

Date Joined Aug 2005
Total Posts : 384
   Posted 7/3/2010 11:42 AM (GMT -7)   
Welcome. I hope that you are having a better day.

Getting a diagnoses is important, hang in there.
Fibromyalgia,arthritis,raynauds syndrome,gastroparesis,IBS,depression,severe costochondritis
God and Family is my life.

Veteran Member

Date Joined May 2010
Total Posts : 1556
   Posted 7/3/2010 2:51 PM (GMT -7)   
Hi Lana and welcome, I know how frustrating it is to know that there is something wrong and then to go in to the ER or Doctor and have them tell you they dont know what it is. I hope you get an answer one way or another soon.
DX: Fibro, Gerds, COPD, Osteoarthritis, Osteoporosis, High Blood Pressure, and Depression.
When I get where Im going dont cry for me down here. (Brad Paisley & Dolly Parton)

Lana Bear
Regular Member

Date Joined Jul 2010
Total Posts : 25
   Posted 7/3/2010 3:59 PM (GMT -7)   
Hi everyone,

Thanks for the welcome. Today wasn't too bad but it was hot and that seems to bother me more. Even the cold or air conditioning can be trying at MRI was quick today and I got a film to take to the rheumatologist on Tuesday. I'm not sure if the report will be back but I got the results from my other MRI and blood tests a couple of weeks ago. I read my MRI and it states white matter not gray matter. But it says they were unremarkable and no hint of sclerosis on the one blood test. I don't know what it all means. I have to go to the other ER to get a copy of my blood tests from there.

I did find out today my other aunt has fibro. I think she told me before but it was several years ago. I'm not sure if there is a genetic factor or not. I will read the threads that you guys have recommended. I had more energy today so that was a good thing. I know this is going to take some time but I wish I could get something to take these electric shock feelings away. They are so annoying lol...Maybe I'll ask the rheumatologist about it...

Regular Member

Date Joined May 2010
Total Posts : 200
   Posted 7/3/2010 11:13 PM (GMT -7)   
Hi Lana,

Welcome to the forum. I have just started posting on here as well. I found this board because I was researching both MS and Fibromyalgia. I am also waiting to get a diagnosis-- hopefully sooner rather than later! i have all your exact same symptoms and had even convinced myself that I probably have MS (mainly because my Aunt has it). But they found NO lesions on my brain and no neck problems. So the next step for me is to get tested for Firbromyalgia. It is hard when a lot of the symptoms overlap. But I still go back to the fact that heat bothers me the most and i thought that was more a sign of MS compared to Fibro?

i hope you find answers soon! i know it can be so nerve wracking. And doctors don't help much!!

Gentle Hugs

Lana Bear
Regular Member

Date Joined Jul 2010
Total Posts : 25
   Posted 7/4/2010 12:02 AM (GMT -7)   
Hi Sherrine,

I get the water dripping on me feeling from time to time too. It's either my leg or face. It's good to know others get this and I'm not losing my mind.

Hi Bridget,

That's how I found this board too, by researching MS and Fibro. I guess it could be either one for me but I honestly don't know. I was reading some of the symptoms on the Fibro 101 thread and mine really do match. It's great to finally talk to people who understand what I am going through. I know either way, I will just be happy to get diagnosed. I just have to be patient. (Easier said than done some days)

Veteran Member

Date Joined Mar 2010
Total Posts : 1286
   Posted 7/4/2010 10:19 AM (GMT -7)   
Hi Lana Bear and welcome!! You will find many caring and kind people here.
Denise from Pittsburgh, Pa
 ***diagnosis: high blood pressure, gastritis, fibromyalgia, hepatitis (SVR/cleared),  disc problems in neck, depression, anxiety & stress, cervical headaches, porphyria-PCT, IBS
 ***meds: metroplol 25mg, zoloft 150mg, gabapentin 300mg 3x a day zocor , (soma, fioronal, tramadol, as needed).
 ***other supps: calcium, vit D 2,000-4,000 per, milk thistle, vit C &E, acidopholos (sp?),  
CO-Q 10,  flax or fish oil, ginsing, magnesium, B complex,

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