A Little Frustrated

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Lana Bear
Regular Member

Date Joined Jul 2010
Total Posts : 25
   Posted 7/13/2010 12:31 PM (GMT -7)   
Hi guys,
I talked to my rheumatologist today about my blood tests from last week.  They call came back normal.  My next appointment with him is August 3rd.  He didn't prescribe me anything different until I see him again.  He has me on Doxepin right now and told me to increase from one pill to two to see how that does.  He also told me to excercise more and thinks my cervical MRI might be playing a part in my symptoms.  He said I have a slight bulging disc in my neck which could be causing some of the symptoms.
I already knew about the cervical MRI and my chiro explained it to me.  We are working on the bulging disc problem in her office and with stretching excercises at home.  I explained all this to him but he said to increase the stretching and time I excercise to see how that does.  Then he said if that doesn't work, then he'll have me do an EEG.  One thing that surprised me is he stated he is not impressed with Lyrica or neurontin.  I've read mixed reviews on both but it seems Lyrica is one of the top treatments for fibro.  He hasn't ruled out fibro yet and he said this could be do to fibro as well.  I guess he wants to rule out other things first.
I was frustrated and disappointed after our conversation.  I do excercise daily by walking.  My fatigue level is better but it seems like the tingling and electric shock sensations are worse over the last couple of days.  I guess I was just hoping for something better, like an actual dx.  I was happy that the doctor actually spoke with me.  My neurologist is out until Friday and my next appt with him is August 2nd.  This really is a roller coaster ride.  I guess I just needed to vent.
I don't know if I should try to see if I can move my appointment up with the neurologist or not.  UGH!

Veteran Member

Date Joined Jul 2009
Total Posts : 4796
   Posted 7/13/2010 1:07 PM (GMT -7)   
Lana, I also have disc problems and if I get inflamation in the area I'll get the tingling
and electro shock feelings. I have had back surgery and have seen some improvement.
When the nerves are impinged you are at risk for nerve damage. Don't wait too long
if the sensations continue call your neurologist and let him know what is going on.
Hope you feel better soon!

Hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements

Forum Moderator

Date Joined Nov 2008
Total Posts : 5948
   Posted 7/13/2010 4:44 PM (GMT -7)   

I empathize with you - it's frustrating not to know. But I think it's better to have someone who will examine everything thoroughly and not just jump to the quickest fix. Lyrica worked for me for about 2 weeks, then fizzled out and that was that.

I once had a Primary Care doctor who prescribed antibiotics at the drop of a hat, without really checking to see if we needed them. Now we know how dangerous that can be in the long run. I often feel as if I have Strep throat but the doctor I have now calls an order into the lab for a throat culture - once in a while it is, but usually it isn't.

Hope you get some answers soon.

   Fibromyalgia, possible Meniere's, elevated liver enzymes, skin grafting on back, arthritis, scoliosis, lumbar disc damage, sciatica, IBS, migraine headaches, tachycardia, skin cancer surgeries on face
    Nortriptyline, Clonazepam, Darvocet as needed
    Multivitamins, l-lysine, probiotics, magnesium, malic acid, calcium + vit. D, vit. C
    Chiropractic adjustments
This too shall pass....

Veteran Member

Date Joined Jun 2010
Total Posts : 554
   Posted 7/13/2010 4:54 PM (GMT -7)   
So sorry you've feeling so frustrated, Lana Bear. I can see how you'd feel that way.

My personal and unscientific opinion of Lyrica is that it is extremely well advertised and must have a great marketing budget. The few people I know who have tried it in real life, however, did not find it beneficial, but all remarked on how doped up it made them feel. Maybe your doctor has seen these less than favorable results in his patients, too.

Maybe the answers aren't all clear - but if you persist I really think you'll get somewhere with this all.

Wishing you much better days.

Lana Bear
Regular Member

Date Joined Jul 2010
Total Posts : 25
   Posted 7/13/2010 6:39 PM (GMT -7)   
Thanks everyone!  Feeling sorry for myself doesn't do any good.  I got out of the house for awhile and had dinner with my niece after a trip to the library.  I did stop and see my mom.  I think I'm going to see if I can move up my appt with my neurologist and just explain my symptoms are getting worse.  I agree that it's good to have a doctor who actually wants to find the real problem.  As far as medication, I don't want to feel doped up all the time either.  I know something will be figured out and I just have to be more patient.  Thanks everyone for your support!

Regular Member

Date Joined May 2010
Total Posts : 200
   Posted 7/14/2010 9:38 AM (GMT -7)   
Hi fellow limbo-lander, sorry to hear about all that is going on. I understand your frustration! For me, it is frustrating because my neck has no problems but still I persist with the neck, shoulder and arm pain. What I don't understand is, I thought your tender point test came out positive for Fibro? Maybe I still have a lot to learn about how they diagnose it? So does this mean that when i have my appt. that even if I have most of the tender points, that I STILL might not have a diagnosis? Grr...

Lana Bear
Regular Member

Date Joined Jul 2010
Total Posts : 25
   Posted 7/14/2010 12:40 PM (GMT -7)   
Hey Bridget,

How are you doing? Yes, I had 14 points on the touch test but now he received a copy of my cervical MRI and thinks that might have something to do with it. A friend of mine has a husband with MS and wants me to see a MS specialist. I'm more confused than ever but I was able to move up my neurologist appt to this coming Monday. At least the energy level is pretty decent today. I've managed to get a few things accomplished but now time to relax for a bit. I'm learning to pace myself.
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