alternative therapies

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New Member

Date Joined Jul 2010
Total Posts : 5
   Posted 7/15/2010 12:59 PM (GMT -7)   
I have only just joined so this may have been a recent discussion. I am the mom with the 14 yr old with fm. We are working our way through meds (the trazadone has helped with sleep ,and topomax has helped some with daily headaches ) but am interested in alternative therapies as well. She gets long nightly massage( from me) to help relax for sleep. Her diet is extremely limited - in part because of the irritable bowel, and, she is a teen - so there is little I can do in that department unfortunately. Other suggestions would be appreciated. Many thanks...Leslie

Veteran Member

Date Joined Jul 2009
Total Posts : 4796
   Posted 7/15/2010 1:45 PM (GMT -7)   
Hi Leslie, Your daughter is lucky to get a nightly massage from you, that sounds
very relaxing. I do relaxation therapy daily, it is a combination of deep breathing
exercises and meditation. I personalized my therapy by doing whats works for me.
There are many websites that teach deep breathing....I breath from the diaphram
and more less smell the roses and blow out the candles. Sometimes I meditate or use
visualization. Sometimes I play soft music and other times I like complete silence.
This and excercise relieves my stress.

Vitamins are important too. Many of us were found to be deficient in Vitamin D and that
will surely cause achiness. You might want to have your daughter's level checked.
Vitamin B-12 is important for energy and does help with fatigue. I take 5000mcgs daily.

Oh, and like I mentioned baths or long hot showers are wonderful!

hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements

Forum Moderator

Date Joined Apr 2005
Total Posts : 17528
   Posted 7/15/2010 6:55 PM (GMT -7)   
Many with fibro are deficient in malic acid and magnesium so I take a malic acid/magnesium supplement that has helped me a lot with pain and fatigue.  I also take a lot of vitamin D3 because I'm deficient in that, too.  There are links in Fibro 101 about these supplements and how they work in your body. 
I also use massage to help me and I walk and swim as my gentle exercise.  You do have to keep moving with fibro or you will be stiff as a board and in more pain.  There are some good stretching exercises that can be done sitting down so your daughter can do these while at school.  They were developed for long flights overseas but they really help us, too!  You will find them, too, in Fibro 101...the second thread on the forum.
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Forum Moderator

Date Joined Nov 2008
Total Posts : 5951
   Posted 7/15/2010 8:11 PM (GMT -7)   
Leslie, I sure wish I knew! I keep thinking, too, there's got to be a better way than chemicals. Doctors seem to know so little about nutrition, it astounds me even after all these years. Have you been to the IBS forum on Healing Well?

   Fibromyalgia, possible Meniere's, elevated liver enzymes, skin grafting on back, arthritis, scoliosis, lumbar disc damage, sciatica, IBS, migraine headaches, tachycardia, skin cancer surgeries on face
    Nortriptyline, Clonazepam, Darvocet as needed
    Multivitamins, l-lysine, probiotics, magnesium, malic acid, calcium + vit. D, vit. C
    Chiropractic adjustments
This too shall pass....

Nana Monster
Veteran Member

Date Joined Jul 2009
Total Posts : 957
   Posted 7/15/2010 9:31 PM (GMT -7)   
True Calm helps with pain some as it works with the neurotransmitters. For sleep Nite Time Herbs are great. For headaches
I hear Velarian Root is good (they work for migraines). All are NOW products and herbal.
For the bowel problems have you tried reflexology? You can go on-line to get a diagram of the foot and which areas to
massage. I've done it with my 5 year old grandaughter and it helps her out. She has some very severe issues in that department.

Good luck,
Nana Monster

Veteran Member

Date Joined Jun 2010
Total Posts : 554
   Posted 7/16/2010 7:18 PM (GMT -7)   
I second Robin's suggestions of meditation and deep breathing.

Also - Sherrine's suggestion of making sure you're not missing any important supplements can be more important that you'd think.

One word of caution with exercise - it is important - you do need to keep moving ... however, if she is just getting started on moving you need to break into it in baby steps. Really slowly, or you'll get whammied by it and it will set you back. When I was bad some years ago, I could only walk very slowly for maybe 3 minutes before my hips would sieze (sp?) up on me. So I would only do that much each night until I felt comfortable adding another minute. Sometimes you can do a multiple shorter sessions, instead of one single session. Slow is safer with fibro.

Oh - almost forgot - with the ibs issues, there is a site that helped me a lot some years ago. I don't have to be nearly as strict as she outlines, but it is a starting point and later you can try adding back some foods to see if she can be more free with her foods like I can be. (For example, this site says dairy is hard on ibs, but I live on lactose free dairy or I'd never get enough protein - and it doesn't bother my ibs.) Peppermints are my best friend for ibs by the way - my docs heartily approve peppermints, too.

Post Edited (TheChickenPrincess) : 7/16/2010 8:23:32 PM (GMT-6)

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