hello all .. thought I would finally sign up to be able to post on here since I have ben reading and lurking for a while. In November of last year I had a complete hysterectomy at the age of 38, and in january found out I had a severe infection that landed me in the hospital for 5 days. It was after the healing that i realised i had joints and muscles that felt like they werre turning to stone. Then my skind started feeling like i was burned all over. Then add on the whole painful to walk on feet that feels like they are bruised and stomach problems and I cant do it anymore! I have been diagnosed with Fibro, in march 2010, at least that is the best answer they can come up with. I have gone through Cymbalta, Savella, Lyrica, and none of them worked. neurontin didnt do much either.... all they all had in common was making me gain 35 pounds.
I am going to a pain management specialist in the next week or two, the neuro did a nerve study and said i have severe carpal tuinnel in both hands. The Rheumatologist says I have an abnormal antibody often found in Scleroderma or Lupus but all other tests come up negative for either disease. My regular doctor just keeps trying to psh the newest meds on me...oh and tells me to exercise more which just makes me more miserable....it is a vicious cycle. I do take amitryptiline at night to hopefully help me sleep, but if I am in a flare, its off to the ER for dilautid, valium, and toradol, and ativan.
Sorry for rattling on, just at the end of my rope and have been stuck in an ongoing flare, which seems more like day to day life now. I have checked out fibro 101 and have a great hubby that is always by my side, but I felt that I need to meet others in my position. I have been off work since Feb and am still waiting to see if SSi will accept me, right now i make it on disability.
I am lost , confused, sad, and sick of being tired and in pain!