Hello Acheybody -
Thank you for the reply.. It's just good to be able to vent sometimes. As for my double jointed mess. I thought it was great growing up, I was flexible, could bend my body in many directions that others could not. Yes hands and fingers, legs etc Could wrap my legs around my head, crawl through my body ect. Could have joined the circus... As I got older the arthritis set in and all the other medical issues began to come one on top of the other. I have seen 3-4 Rheumatologists, 3 of which didn't seem to care and didn't want to listen. Early this year when my Ortho told me "I don't know what else I can do, you shouldn't be in pain at this point" (this was after a very complicated knee replacement) I decided to try yet another Rheumatologist. This doctor spent an hour and 20 minutes in the room with me and did an exam that I had never experienced before. Then he sat and asked question after question. When he got to looking at my joints he said.... This is a big part of your curse... He said that many people that are double jointed to the extent I am, often develop fibro and other disorders, diseases etc. He said he worry's about the people like Cirque Du Soleil and others that spend their lives in a double jointed world. He said that at some point they will be sorry.
As a kid, I could not stand in a line or in one spot for to long without shifting positions because my knees would knock back and I would pass out. After my knee replacement, left leg only, the doc said that would not happen, well, he's wrong. That artificial knee knocks back just like my real one. I had no pain in the joints as a kid either. I would make sure she does not intensionly (forgive my spelling please) do things to "play" with her joints. I have no idea what a doctor would say as it took me 50 years to find one that said anything and I did abuse my joints as a child. It was cool to be different. LOL
Good Luck and Keep as Healthy as you can.
Diagnosis: Fibremyalgia, Chronic Myofacial Pain, Degenerative Disc Disease, Degenerative Joint Disease, Connective Tissue Disease, Lupus, Osteoarthritis, Anemia, Issues caused by being severely double jointed. Vitamine D Difficency.
Meds: Vicadin, Meloxicam,Omepraxole(high dose previced) Vitamin D 50K , Ambian, Savella,Lyrica, Tramadol, Cyclobenzopine, Voltaren Gel, and Pennsaid Drops.