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Regular Member

Date Joined Jun 2010
Total Posts : 198
   Posted 7/18/2010 6:40 PM (GMT -7)   
redface  Wow,
My doctor seems to finally have some of my pain under control, as long as I don't do anything to exert myself I feel like I can tolerate the world. Except for the fatigue.. I am so tired I just don't even want to move. I'm taking Savella, Lyrica, Mobic, Tramadol, Ambian and cyclobenzopine for sleep. If I don't take it I feel horrible, if I take it all I want to do is sleep. There seems to be no middle ground. My doctor has put me out on disability and I'm also fighting with my Aetna, my long term disability insurance and social security. That alon is exhausting. I have been dealing with this condition for years, been on every pain medication you can think of, had surgery on my back and knee and finally found a doctor that seems to know what he's talking about. Just frustrated all the way around I guess and too tired to deal with any of it today... Just ranting. Sorry
Diagnosis:  Fibremyalgia, Degenerative Disc Disease, Lupus, Osteoarthritis, Anemia, Issues caused by being severely double jointed.
Meds:  Vicadin, Meloxicam,Omepraxole(high dose previced)Cipro,2000iu Vit. D daily, 50,000iu weekly, Ambian, Savella, Voltaren Gel, and Pennsaid Drops.

Forum Moderator

Date Joined Nov 2008
Total Posts : 5951
   Posted 7/18/2010 9:57 PM (GMT -7)   
Minnie, I'm sorry you're having so many problems.  I wish I could give you some advice but all I can say is I care.  I noticed on another thread that you've read that book by Devin Starlanyl - me, too.  I thought it was really's been several years and I don't remember (of course!) most of it.
In your signature, you said you have issues caused by being severely double daughter seems to have the same problem, but no doctor has really taken an interest.  One time, skiing, she fell and her leg turned all the way around shocked , and she felt fine.  And recently, she pulled a ligament next to her knee, bad enough to keep her out of work for a week, just by regular dancing.  (This isn't a girl to try crazy moves or anything.)  She has rolled her ankle SO many times.  Her dad accidentally sat on her hand one time when she was little and her fingers bent backwards to her arm.  Again, no pain.  Does this sound like what you have? 
This too shall pass...   
.......fibromyalgia, hearing loss, elevated liver enzymes, skin grafting (back), arthritis, scoliosis, lumbar disc damage, sciatica, IBS, migraines, tachycardia, cancer surgeries (face).......I take Nortriptyline & Clonopin daily, and Darvocet as needed

Regular Member

Date Joined Jun 2010
Total Posts : 198
   Posted 7/19/2010 4:44 AM (GMT -7)   
Hello Acheybody -

Thank you for the reply.. It's just good to be able to vent sometimes. As for my double jointed mess. I thought it was great growing up, I was flexible, could bend my body in many directions that others could not. Yes hands and fingers, legs etc Could wrap my legs around my head, crawl through my body ect. Could have joined the circus... As I got older the arthritis set in and all the other medical issues began to come one on top of the other. I have seen 3-4 Rheumatologists, 3 of which didn't seem to care and didn't want to listen. Early this year when my Ortho told me "I don't know what else I can do, you shouldn't be in pain at this point" (this was after a very complicated knee replacement) I decided to try yet another Rheumatologist. This doctor spent an hour and 20 minutes in the room with me and did an exam that I had never experienced before. Then he sat and asked question after question. When he got to looking at my joints he said.... This is a big part of your curse... He said that many people that are double jointed to the extent I am, often develop fibro and other disorders, diseases etc. He said he worry's about the people like Cirque Du Soleil and others that spend their lives in a double jointed world. He said that at some point they will be sorry.

As a kid, I could not stand in a line or in one spot for to long without shifting positions because my knees would knock back and I would pass out. After my knee replacement, left leg only, the doc said that would not happen, well, he's wrong. That artificial knee knocks back just like my real one. I had no pain in the joints as a kid either. I would make sure she does not intensionly (forgive my spelling please) do things to "play" with her joints. I have no idea what a doctor would say as it took me 50 years to find one that said anything and I did abuse my joints as a child. It was cool to be different. LOL

Good Luck and Keep as Healthy as you can.
Diagnosis:  Fibremyalgia, Chronic Myofacial Pain, Degenerative Disc Disease, Degenerative Joint Disease, Connective Tissue Disease, Lupus, Osteoarthritis, Anemia, Issues caused by being severely double jointed. Vitamine D Difficency.
Meds:  Vicadin, Meloxicam,Omepraxole(high dose previced) Vitamin D 50K , Ambian, Savella,Lyrica, Tramadol, Cyclobenzopine, Voltaren Gel, and Pennsaid Drops.

Veteran Member

Date Joined May 2010
Total Posts : 1556
   Posted 7/19/2010 6:01 AM (GMT -7)   
Im sorry you are having it so rough right now. I do understand the fatigue and feeling like as soon as you wake up all you can think about is going to bed. I find that getting up and moving around some helps to wake me up some. Then again their are days where that bed is just too tempting and I think today might be one of them. lol It has been a long weekend with my kids, wanting to spend time with them and the grandson so not alot of rest this weekend. Today is back to normal sort of so after I take hubby to his part time job Im heading for bed. Hope you figure out a happy medium soon.
Gentle Hugs
DX: Fibro, Gerds, COPD, Osteoarthritis, Osteoporosis, High Blood Pressure, and Depression.
When I get where Im going dont cry for me down here. (Brad Paisley & Dolly Parton)

Veteran Member

Date Joined Jan 2005
Total Posts : 9090
   Posted 7/19/2010 10:08 PM (GMT -7)   
Hi Minnie!

I too understand the fatigue and there are a couple of medications that you can try to keep you from sleeping your life away. I take one called Provigil. It's used for people with narcolepsy and also for people who suffer fatigue due to the medications they have. I'm guessing that the combination of medications only makes it worse. There is another medication but at this moment I can't think of the name of it. If you have Aetna health insurance they may buck you on the Provigil but have your doc fight them and it will go through. I had to and got it to go. Without it I'd be like Sleeping Beauty without the 'Beauty'

If you're going through hell, keep going.

Winston Churchill

(> <) Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.

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