I just wanted to say Hello from a 45 year old female!
I was diagnosed with Fibro last month, after seeing different docs since Feb. I realize that this is short, compared to many of you, but it seemed like a very long time for me. I am never sick!
I started getting symptoms, achy joints and muscles, 4 summers ago. It seemed to be much worse right before my monthly cycle. I mentioned it to my OB/GYN. We were building a house at the time, with my husband and I doing all of the work, plus I was in a rock band, which played outdoor street dances several weeks during the summertime. I also had 2 college students, who we had to move several times each from dorm to home, etc. So, my doc said it was due to overuse of my body during this time. Things would clam down once it cooled off, and it wouldn't start back up until it warmed in late spring of the next year.
This past summer, it didn't go away. And by Feb. 2010, it had gotten worse, and it wasn't only centered around my cycle and I had more symptoms. I had so many blood tests done, and of course, they all came back negative, except for having low Vitamin D, but since I lived in the north, I was told that this was normal, due to use only being able to get vit. d naturally from the sun 4 months out of the year. I was then off to see a Doctor of Interman Medicine.
This guy was great! He did more blood and urine tests, and he sent me for an MRI. By late April, I had much muscles weakness, but only on one side of my body, so this really concerned him. The MRI came back with 2 very small spots, so he sent me to a Neuologist for an EMG. Of course, that came back negative, so I was then sent to a specialist Neuro.
This guy was a jerk! He kept telling me that my symptoms were being cause by the fact that my daughter was getting married in a couple of weeks. Exucse me? Has my daughter been planning a wedding for 4 years??! I don't think so. He saw the spots on the MRI and thought I should have another one done, this time with contrast. I was supposed to have that done with a follow-up with him on the same day. That day came, had another MRI, and then I was supposed to see him. We got a message back saying he had an emergency, and that he would have to call me with the results. This was not OK with me, since I had a 3 hour drive to see him! I through a fit, and low and behold, I got to see him.
The spots were from my heart beating and this showing up on the MRI. He had suspected this after seeing the first one, but he wanted to make sure. After hearing this, I spoke to another Neuro, who said that both of the neuros should have been able to see that this was the case, and that there was no reason for me to have the follow-up MRI!! So, again, the neuro said I was stressed due to the wedding and said "I'm sorry, there is nothing I can do for you. Perhaps you should see a phychaitrist"!!! Aarrggh...Are you kidding me?! Look at my medical records. You have to go back 5 years to see a doctor's visit other than my yearly check up and my broken ankle and subsequent surgery. I'm never sick, and I'm not looking for attention, nor am I stressed!
The wedding came and went, and it was great! I danced two slow dances, one with my husband and one with my son. I know my limits. So, I recently saw a Rheumatologist, and it didn't take long to get my diagnosis of FM. I was relieved to find out that I'm not crazy! :)
I am taking 50,000 IU Vitamin D, plus I am to be in the sunlight until my skin turns pink. I also take Amitriptyline for sleep. I always thought I slept great, but apparently, since I don't ever remember my dreams, my REM sleep is screwed up, so I take that to make my sleep patterns better. I have doctors who don't believe in pain killers other than NSAIDS, so that really upsets me. I would like something for the really bad days, but the docs here are so worried about addiction! Let me worry about that, please!
I get laid off in the summertime, but I will be returning to work in 3 weeks. I'm real nervous about that because I don't feel any better, in fact, I have been feeling much worse in the last couple of weeks. If anything is said to me at the wrong time, I will snap off a sarcastic comment, and I risk being fired. I'm usually on a real even keel, but I can only handle so much pain each day, and the 750 mg of Advil every 6 hours isn't helping at all, nothing is.
Thanks for listening! I'm sorry about the book. I'm usually not a chatty cathy, but I the thoughts just kept coming.
Again, I just wanted to say Hello!
(Edited to show change from mg to IU for Vitamin D)
Post Edited (Ntish) : 7/22/2010 6:06:40 PM (GMT-6)