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Veteran Member

Date Joined Dec 2008
Total Posts : 2386
   Posted 8/5/2010 8:54 PM (GMT -7)   
Flare ups. What is the worst fibromite flare up we have had?
Mine as early this year where I was at my apartment and had to get my male roommate (2 other female roommates besides me) to actually help me stand from sitting and I xplained to him to how to walk with me in case I fall (darn medical training LOL). It payed off, I  kept trying to fall. It took all I had just to stand and all I had to take just 8 steps to the bathroom. I'm sure we all had those days where we can not barely walk.
Smurfy Shadow/Desirèe 
DX: Wegener's Disease, Migraines, Diabetese Type II, PCOS, Lactose Intolerant, Benign Heart Murmer, Depression, Asthma, Asperger's Syndrome, Necrotizing Gramultous Inflamation in eye, A.D.D., Acid Reflux, Tumor Behind the Eye, Carpal Tunnel, Fibromyolgia, Clasterphobic, Arthritis, Anxiety
Medications:  Tri Nessa, Percocet, Metformin, Prednisone, Cingulair, Albuterol, Pro-Air, Morphine, Rolaids, Zofran, Compuzeen, Refresh Plus Eye Drops, Percocet, Immuran, Alvesco, Allerga, Gabapentin, Visteral  PRN: Epi-Pen, Albuterol Nebulizer, Benedryl Undergoing Chemotherapy Taking Lorazepam (Ativan) For MRIs and Anxiety, Surpressed Immune Sytem

getting by
Forum Moderator

Date Joined Sep 2007
Total Posts : 41938
   Posted 8/6/2010 5:53 AM (GMT -7)   
I remember not being able to walk.  I had a two year flare in the beginning, I think it was a flare anyway.  Could have been because it first hit me then.  I spent two years in bed.  What a waste, but I didn't know what was going on and I never had heard of fibromyalgia.  Luckily I found a good psychiatrist who helped me to get a life.  At least I can halfway function now. 
Good topic Smurf. 
Hugs, Karen
  Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies

Veteran Member

Date Joined Jul 2009
Total Posts : 4796
   Posted 8/6/2010 7:32 AM (GMT -7)   
My worst flares are those where everything is triggered, multiple flaring... migraine
with nausea, erupting lesions ...feels like skin is tearing because it is and joints and
extremites swollen and aching and when I have diarrhea with it, I'm living in the bathroom.
It isn't too often that I get these dualing multiple flares and I'm thankful for that because
it takes days to recover from them...they are soooo draining.

Flares make you appreciate the good days, and I do. Life is still Sweet!!!

Hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements

Veteran Member

Date Joined Aug 2008
Total Posts : 1771
   Posted 8/6/2010 7:39 AM (GMT -7)   
I think mine has just been happening over the last couple of days. Severe pain all over, can't sleep (because just rolling over brings on pain that makes me want to vomit), can sit, or stand (hmmm, I wish I could float).

I have horrible muscle knots/spasms in my arms, legs, hips, back, shoulders. ugghh

"There is no charm equal to tenderness of  heart." - Jane Austen

Veteran Member

Date Joined Jan 2010
Total Posts : 1097
   Posted 8/6/2010 10:04 AM (GMT -7)   
I think the worst flares I've had are when even the lightest touch on my skin is agony...I mean wrong is that?? I think the bigger question is "how often do you have flares and what do you do for them". For me, thankfully, I don't get them very often (maybe because I'm in an extended flare?) - my pain tends to stay pretty level now that we've figured out the right combo of drugs.

Conditions: Fibromyalgia, Severe Myofascial Pain, Chronic Pelvic Pain (with permanent muscle damage), Femoroacetabular Impingement (CAM and Pincer), Carpal Tunnel Syndrome (both wrists), Reynauds, IBS, Scar Tissue/Adhesions, Ophthalmic Migraines, Severe Hot Flashes (both Surgical Menopause and medication related), plus physically unable to vomit due to the Nissen, and I have extremely tiny veins with a lot of scar tissue...a joy when it comes to having to give blood or get an IV started

Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT

Medications: Oxycontin, Cesamet, Tramacet, Cymbalta, Flexeril and Clonidine plus Laxaday, Vitamin D and a Multi-Vitamin daily

Veteran Member

Date Joined May 2010
Total Posts : 1556
   Posted 8/6/2010 5:40 PM (GMT -7)   
My worst flares used to be in the winter if I had to go out at night. My back would spasm up so bad that there were a few times I ended up in ER. Since Ive lost weight I dont have the bad spasms anymore but still hate going out at night in the winter because Im a whimp when it comes to cold lol.
Gentle Hugs
DX: Fibro, Gerds, COPD, Osteoarthritis, Osteoporosis, High Blood Pressure, and Depression.
When I get where Im going dont cry for me down here. (Brad Paisley & Dolly Parton)
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