waiting to go to sleep

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Veteran Member

Date Joined Apr 2008
Total Posts : 605
   Posted 8/8/2010 11:17 PM (GMT -7)   
Uggggggggggg I have such trouble getting to sleep!  I take 50 mg of melatonin and 150 mg of amitriptline and it still takes hours to fall asleep and then its only about 2 hours till Im up again.  I had to stop taking ambian cause that had me sleep walking and falling constantly.  What I wouldnt give for a nights sleep...
Mom of one gramma to 4 lover to One
Fibromyalgia,IBS,Stroke x3,endometriosis,Diabetes type 2,neuropathic pain,high blood pressure,severe nausea,atrophy,chronic pain,over 30 surgeries,torn hip joint,hypoglycymic

Regular Member

Date Joined Jan 2010
Total Posts : 197
   Posted 8/9/2010 12:22 AM (GMT -7)   
Hi Karen, I can relate. I'm awake until my mind joins my body in exhaustion. Any time between 1 and 3 AM is standard for me, usually closer to 3:00. Not much of a problem in the summer, but does create a problem once school starts and I have to be up and awake with an alarm clock and getting kids going on a schedule. Once I am asleep, I'm usually okay, but until then, it's me, the crickets and my laptop! Without the laptop or a book, I just toss and turn and stare at the ceiling, so if I have something to do, I get tired faster. Haven't found anything yet that will reliably help me sleep. Now and then, I will be blessed with a good night of sleep, but they are few and far between.
Fibromyalgia, High BP, Migraines, anxiety, Non Celiac Gluten Intolerant
Current medications: Topamax, Maxalt, Lotrel, Wellbutrin

Regular Member

Date Joined Jun 2010
Total Posts : 198
   Posted 8/9/2010 1:55 AM (GMT -7)   
I was right there with you until a couple of months agao. Can relate but am so glad I'm Kinda out of that loop right now, also very sorry your are having tis issue. When my Rheumy finally changed my medication , I'm taking enough now that I fall asleep within 15 minutes of my head hitting the pillow. I don't always stay sleeping through the night but usually can make in from 10pm-3am and at least 2 days during the week I sleep through. Before I was gettin g 3 hours a night (if you could even call it sleep) I"m up this morning at 3:00. Storm has rolled in and my body, feet,shoulders and back are burning like someone doused me in gasoline and lit the match, so I'm up.
At night I take Savella50mg, Lyrica 100mg, Flexeril and Ambian. Quite the combination but sleep usually comes easy now.
Hope you feel better
Vicadin, Meloxicam,Omepraxole(high dose previced) Vitamin D 50K , Ambian, Savella,Lyrica, Tramadol, Cyclobenzopine, Voltaren Gel, and Pennsaid Drops.[/color

"Trust in the Lord with all thine heart; and lean not unto thine own understanding.
In all thy paths acknowledge Him, and He shall direct thy paths." Proverbs 3:5,6

Regular Member

Date Joined Dec 2009
Total Posts : 387
   Posted 8/9/2010 6:52 AM (GMT -7)   
That was me last night. I had a difficult time getting to sleep and staying asleep. Hopefully tonight will be better for us all.

Veteran Member

Date Joined May 2010
Total Posts : 1556
   Posted 8/9/2010 7:06 AM (GMT -7)   
Hi all have any of you tried a small dose of valium to help you get to sleep. I am asleep shortly after lights out with the valium. I know it sounds like a bad drug but I was able to go off it for over a year with no side effects. I only went back on because of having problems with too many thoughts running through head to fall asleep. I hope you guys all get some good sleep soon.
Gentle Hugs
DX: Fibro, Gerds, COPD, Osteoarthritis, Osteoporosis, High Blood Pressure, and Depression.
When I get where Im going dont cry for me down here. (Brad Paisley & Dolly Parton)

Veteran Member

Date Joined Jul 2009
Total Posts : 4796
   Posted 8/9/2010 7:46 AM (GMT -7)   
I sometimes fall asleep and wake up 2 hours later due to pain or can't fall asleep.
Staying in bed then is difficult so I get up, nuke a bedbuddy, make myself a cup of tea,
read or go on the computer. I slept 12 hours last night but I think it was because I took
a muscle relaxer and 2 Excederin. I don't want that to become a habit....only use the
muscle relaxers for flares.

Recently, I have found a site on youtube...searched relaxation hypnotherapy and found
a variety of videos that really make me relaxed and drousy and found it helps.

Hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements

Veteran Member

Date Joined Nov 2008
Total Posts : 2858
   Posted 8/9/2010 7:53 AM (GMT -7)   

Robin...I found a reflexology site on YouTube thinking I would learn how to do it myself to relieve pain....just watching it makes me fall asleep...very hypnotic and relaxing!  You just never know what's gonna work but when I can't sleep I go to that video!


fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: valium Advil
Reach out and touch someone.  If they don't touch you back it's because you still  have brownie batter on your face.

Regular Member

Date Joined Aug 2005
Total Posts : 384
   Posted 8/9/2010 8:17 AM (GMT -7)   
I have been having problems with this off and on. I know how hard it is. I wish I had a fix for you. I tried unisom and it helped some nights.

Hope the insomnia goes away and you are able to get some rest.
Fibromyalgia,arthritis,raynauds syndrome,gastroparesis,IBS,depression,severe costochondritis, generalized anxiety disorder
God and Family is my life.

Forum Moderator

Date Joined Apr 2005
Total Posts : 17526
   Posted 8/9/2010 8:27 AM (GMT -7)   
It's important to be on a sleep schedule.  You are actually training your body to fall asleep at the "prescribed" time.  It took me a while but now I am asleep in a matter of minutes.  I never lay in the bed unless it's bedtime.  Also, since I was so used to having the television on in bed, I continue to do that.  It puts me to sleep, too. 
I will still have an occasional night I have problems gettng to sleep and that's when I get up and get on the computer for a few hours.  That helps me.   I don't fix tea like Robin does because the caffeine keeps me awake and tea is a natural diuretic.  I wake up several times a night to use the bathroom as it is.  shocked    But, what works for one doesn't work for another with this illness.
So, Karen, I hope you find what works best for you.  It's really miserable not to be able to fall asleep!
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Veteran Member

Date Joined Dec 2008
Total Posts : 2386
   Posted 8/9/2010 11:04 AM (GMT -7)   
I can relate. THe night before my MRI last Thursday, I tried everything but my sleeping pill cuz I couldnt have anything to drink. I ended up litterly never going to bed and went to the hospital for my sedation for the MRI. I hope you get some rest hon.
Smurfy Shadow/Desirèe 
DX: Wegener's Disease, Migraines, Diabetese Type II, PCOS, Lactose Intolerant, Benign Heart Murmer, Depression, Asthma, Asperger's Syndrome, Necrotizing Gramultous Inflamation in eye, A.D.D., Acid Reflux, Tumor Behind the Eye, Carpal Tunnel, Fibromyolgia, Clasterphobic, Arthritis, Anxiety
Medications:  Tri Nessa, Percocet, Metformin, Prednisone, Cingulair, Albuterol, Pro-Air, Morphine, Rolaids, Zofran, Compuzeen, Refresh Plus Eye Drops, Percocet, Immuran, Alvesco, Allerga, Gabapentin, Visteral  PRN: Epi-Pen, Albuterol Nebulizer, Benedryl Undergoing Chemotherapy Taking Lorazepam (Ativan) For MRIs and Anxiety, Surpressed Immune Sytem

Veteran Member

Date Joined Jan 2010
Total Posts : 1097
   Posted 8/9/2010 12:58 PM (GMT -7)   
Smurfy, in the future, if you're told nothing to drink, you should ask about a swallow of water to take pills. That's usually permissible, but no one ever tells you that.

I have been sleeping really well lately - just way too much of it. I am so exhausted, I'm tired when I wake up. I'm only waking up about twice a night now for the bathroom, and I've been able to fall back asleep, so that's good. In general, I'm sleeping better...and I think it's simply because my pain feels better in control.
Conditions: Fibromyalgia, Severe Myofascial Pain, Chronic Pelvic Pain (with permanent muscle damage), Femoroacetabular Impingement (CAM and Pincer), Carpal Tunnel Syndrome (both wrists), Reynauds, IBS, Scar Tissue/Adhesions, Ophthalmic Migraines, Severe Hot Flashes (both Surgical Menopause and medication related), plus physically unable to vomit due to the Nissen, and I have extremely tiny veins with a lot of scar tissue...a joy when it comes to having to give blood or get an IV started

Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT

Medications: Oxycontin, Cesamet, Tramacet, Cymbalta, Flexeril and Clonidine plus Laxaday, Vitamin D and a Multi-Vitamin daily

Regular Member

Date Joined Oct 2009
Total Posts : 434
   Posted 8/9/2010 3:45 PM (GMT -7)   
Just read your post.........Hope you finally got some sleep.  Insomnia is the pits.  I know- I've suffered with it for a long time, but recently it has gotten better so I'm thankful.
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