What Helps With Pain?

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New Member

Date Joined Jul 2010
Total Posts : 14
   Posted 8/13/2010 10:31 PM (GMT -7)   
Hello everyone!
I just wanted to find suggestions of what you all do to keep your day time pain at it least painful?  Do you use some other pain medications? Or supplements?   If so what do you use?  I have nothing but Ibufroen to take during the day, but it does cause swelling and fluid retention and really doesn't help all that much.  Ultam had to be stopped because I started taking Effexor.  I can take Vicodin when I get home, but am at a loss what do to during the day.
Thanks for any and all advice......Twinkle
I gave you a subject.  You will get more responses that way.

Post Edited By Moderator (Sherrine) : 8/14/2010 8:21:08 AM (GMT-6)

Veteran Member

Date Joined May 2010
Total Posts : 1556
   Posted 8/14/2010 6:04 AM (GMT -7)   
Hi twinkle, just wanted to let you know that before I started getting ultra sensitive to oral pain meds I would take darvocet. I could still function on it and be able to work. I found the best thing though was to take it right when I got to work so that it would last through the shift. It is more mild than alot of the pain medicines out there but it does help. If I were you though I would try it on a day where you can be at home all day to see how it affects you being we are all so different in how our body reacts. Now for pain I wear Fentanyl Patches
and I refuse to change them until I am really feeling the pain. They can be changed every three days but I find that they can work almost 2 weeks before my pain gets really bad, but thats just me I guess. I should be changing it today but I want to put a new one on, on Tuesday when I have the port put in. So I will suffer for a couple days, at least I have my diazapam to help me sleep at night. lol
Gentle Hugs
DX: Fibro, Gerds, COPD, Osteoarthritis, Osteoporosis, High Blood Pressure, and Depression.
When I get where Im going dont cry for me down here. (Brad Paisley & Dolly Parton)

Veteran Member

Date Joined Jul 2009
Total Posts : 4796
   Posted 8/14/2010 6:30 AM (GMT -7)   
Hi Twinklestar, from the moment I wake, I start to do what I can to keep my pain
level down. Before I get out of bed, I do a series of gentle stretching. Each morning
I take a long hot shower, and later in the day may take a hot soak in the tub.

Exercise is very important to help prevent stiffness so I get a daily walk in. Keeping
busy with my hobbies takes my mind off pain. i also do relaxation therapy.

I take 50mgs Savella 2x daily and will take a muscle relaxer, cyclobenzaprine for
flares. Vitamin D is needed to help with energy and achiness so I take 2000IU daily.
For helping with fatigue I take 5000mcgs of B-12. I also take Excederin occasionally
and make sure I take my multi-vitamin daily.

We all seem to tollerate thing differantly, it's all trial and error. Hoping you can find
a great combo that helps you!

hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements

Forum Moderator

Date Joined Apr 2005
Total Posts : 17524
   Posted 8/14/2010 7:21 AM (GMT -7)   
I use malic acid/magnesium supplements and vitamin D3 to help with pain and fatigue.  There are links about them and how they work in your body in Fibro 101...the first thread on the forum.  If you haven't read that, you should.  There is a world of information in it.
Forum Moderator/Fibromyalgia
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Veteran Member

Date Joined Mar 2009
Total Posts : 4717
   Posted 8/14/2010 9:35 AM (GMT -7)   
I was going to say Davacet too. It is on the same level as Tramadol.

What is the reason why you wait until you get home to take the Vicodin? Is it because it makes you tired?
Lyme disease, Fibromyalgia, Hashimoto's Thyroiditis, Adrenal Fatigue, Rheumatoid Arthritis(Just diagnosed)
Prescription Meds: Savella, Tramadol, Hydrocortisone, Plaquenil
Supplements: Thyro-complex, Magnesium, Calcium, Potassium, Folic Acid, Fish Oil, Vitamin C, Probiotics, GI Repair, Vitamin D 50,000IU and Joint Supplement

Co-Moderator Lyme Disease Forum

New Member

Date Joined Jul 2010
Total Posts : 14
   Posted 8/14/2010 8:04 PM (GMT -7)   
Hi, all........Thanks Sherrine for putting a subject in.  Truth be told, I think I was falling asleep as I was typing that.   It's amazing I spelled everything decent?!n
Anyway, thank you to each of you for all of your responses.  I have tried Malic Acid  in the past, but stopped for some reason.  I think I was having heart palpatations at the time and stopped everything I didn't absolutely need.  Then never started it. Also at the time, I had to travel out of town to get it.  But now, there is always the internet.  I had never considered Darvocet.  It's worth some thought.  I guess I am at a stage where I am still working full time, at least trying to do that as long as I can, and I think and feel that if I would take Vicodin during the day, it would make me sleepy, because that what happens about 2 hours after I take it at home.  Also, Vicodin makes me itch, no matter what I do.  Part of the reason I can't afford to be more sleepy during the day is because I am SOOOOOOOOOOO tired during the day and already have trouble staying focused, and I probably had chronic fatigue but have never been diagnosed, and it's just me in life, making all my decisions, and (stop, take a breath) and I don't have anyone else to lean on. ( I could use a hug her, I have to admit idea )  So, there, that's why I am looking for help for pain during the day, because that is where I have the most trouble managing it.  I will eventually need something other than Vicocin, because the itching is getting to me.
Wamly, Twinklestar
It is the journey that counts......

Forum Moderator

Date Joined Nov 2008
Total Posts : 5951
   Posted 8/15/2010 3:21 AM (GMT -7)   
((((Twinklestar))) here's a hug for you! We all need them, and this kind is never too hard! Welcome to the forum.

I also take Darvocet when I'm in a flare, but like you, I try not to take narcotics during the day unless I'm really hurting. I keep reading that they're going to take it off the market because it's "ineffective" and easy to abuse - ?? I think, more likely, it's because it's gotten so cheap the big pharmaceutical companies can't make money off of it anymore (the generic stuff I take costs about three dollars for thirty.) I want to try Darvon (same drug, but without the acetominophen) but my pharmacy doesn't carry it. Someone here (foggy brain doesn't remember who) said she gets it, so I know they still make it.

Vicodin has helped me after surgery, but pretty quickly I find I'm too groggy with it. Either it's stronger, or it's just me - or both.

Do you have a good doctor you can hash this all out with?

...fibromyalgia, hearing loss, elevated liver enzymes, skin grafting (back), arthritis, scoliosis, lumbar disc damage, sciatica, IBS, migraines, tachycardia, cancer surgeries (face).......I take Nortriptyline & Clonopin daily, and Darvocet as needed

Veteran Member

Date Joined May 2010
Total Posts : 1556
   Posted 8/14/2010 8:34 PM (GMT -7)   
((((((((Twinklestar))))) another hug for you, I just wanted to mention that if the Vicodin is making you itch it might be that you are alergic to it. You might want to call your dr. and tell him about the itching. Just got a little concerned when you mentioned the itching.
Gentle Hugs
DX: Fibro, Gerds, COPD, Osteoarthritis, Osteoporosis, High Blood Pressure, and Depression.
When I get where Im going dont cry for me down here. (Brad Paisley & Dolly Parton)

Veteran Member

Date Joined Jun 2010
Total Posts : 554
   Posted 8/14/2010 9:55 PM (GMT -7)   
((((( Twinklestar )))) Hugs from me, too. smilewinkgrin

One other supplement - I take a handful of sour cherries (aka tart cherries / pie cherries / montmorency cherries) every day. Heard an interview on the People's Pharmacy radio show once talking about how the cherries, or the juice is as good as prescription med for arthritis inflammation and pain. I don't believe I have arthritis (knock wood) but tried it anyway. It helps me a lot. It might take time to build up in your system - can't remember that. If I skip it a while, I feel it. You can google to find health info about them. I tend to try anything that's a "normal-ish" food before anything else.

Vitamin and mineral deficiencies - even slight ones - can sometimes make a BIG difference to us. So make sure you're covered on all those things.

*hugs* again.
Why my username? It is real life nickname. I love chickens. Will have my flock of hens one day! :D .............. DX'd with Fibromyalgia, chronic hives, sensitivities and allergies, migraines with auras, tmj, and IBS. Not sure what else!

New Member

Date Joined Aug 2010
Total Posts : 2
   Posted 8/15/2010 12:52 AM (GMT -7)   
Hi Twinkle...I take Methadone 20mg and at bedtime I take Ambien 10mg. I also use Flexeril for flare ups. As far as vitamins go I only take Viatmin D 2000IU a day. Just this week I have started Nuvigil and so far it is really working to fight the fatigue. I tried Savella but it made me nauseated on the higher dosage. My doctor wants me to try it again but I'm going to wait a while since I just started the Nuvigil.....hope this helps:)

Veteran Member

Date Joined Oct 2009
Total Posts : 4930
   Posted 8/15/2010 2:40 PM (GMT -7)   
I can't take any of the codeine, darvon, percodan or fentanyl meds. They all make me vomit. Flexeril helps but makes me really sleepy and triggers serotonin syndrome with my only really good med: tramadol.

Personally, I'd stop the effexor and take the tramadol. Tramadol helps with mood in addition to pain, and it's best (for me at least) on the muscle-type pain of fibromyalgia.

At bedtime I've been taking 2 mg diazepam, which is a very good muscle relaxant. It only works for 4 hours, but when I wake up I just take a half pill and can get back to sleep. If I think about it early enough I take Elavil or temazepam, but they last about 12 hours.
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