Fibromyalgia Help Please

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knees hurt
New Member

Date Joined Aug 2010
Total Posts : 1
   Posted 8/17/2010 7:47 AM (GMT -7)   
I dislocated my knee over a year ago and had surgery on it as well. The other knee I dislocated in HS sports when I was a senior. I am 45 now and I started having chronic knee pain in both knees about 3 months after the knee surgery. The pain has never gone away and I wear knees support braces daily. The past 2 weeks my left shoulder back and chest have started with pain also and then about a week ago my left elbow now has severe pain. I have been on vicodin for over a year now and my muscles seem to be twitching and fluttering in my knees, thighs, legs, and hips. I have had depression and sleep apnea for many years now and the past two years I require ambien to go to sleep every night or I will not sleep. The pain I am having now is waking me up at night several times a week. My knee doctor prescribed Lyrica for me about 3 months ago and I tried it and could not take it because it made my head feel disoriented and headaches. I tried it again this past weekend for 3 days and it seemed to be working until last night I had a terrible migraine so I stopped taking it today. My muscles are really twitching today and the pain is back in full force today. I have a call into my pain doctor for help and I am waiting for his reply. Does anyone have any insight that can help me with what is going on with me? I am tired of going to doctors and paying co-pays to hear no real solution to my problem. Is there a better doctor to go to for this?? I am currently seeing a knee surgeon and pain doctor as well as my general doctor with no real solution or help. I pray that I find a way to control or manage what ever it is that I have so I can take care of my kids and live my life. Thank you taking time to read this.

Forum Moderator

Date Joined Apr 2005
Total Posts : 17501
   Posted 8/17/2010 8:54 AM (GMT -7)   
Hi, Knees Hurt, and welcome!  Ouch!  I've had a little pain in my knees and also hips so I know how awful that is on the weight bearing joints.  I'm sorry you are having these problems but fibro could possibly be causing some of this.
Here are my suggestions for you.  First, check out the Fibro 101 thread...the first thread on the forum.  There are links to good info about fibro and you will learn a lot.  There is a link of symptoms.  Maybe print that out, go through it, and check every symptom that pertains to you.  If you "see" yourself in that list, start looking for a doctor that believes in fibromyalgia.  Many of the things you mentioned happen to many of us!  But, they can also be symptoms of other health illnesses and you need to have them ruled out first.
Check out your yellow pages.  Many times doctors will list what illnesses they treat.  This can be a help.  I see a board certified Internist for my fibro but many here see a rheumatologist.  Then, when you decide on a doctor, call and ask if they treat fibromyalgia patients.  Believe it or not, there are still doctors out there that think this is all in our heads.  mad   
Once you find a good doctor, they should run you through a battery of tests to rule out other illnesses.  Check out the What Else Could It Be link on Fibro 101.  If you have gone through a lot of tests already, get your medical records and take them with you so you don't have to pay for a lot of repeat testing.  They do belong to you, regardless what they say.  You, after all, paid for them!  Remember, you are the boss.  You are hiring the doctor to take care of you. 
There are some vitamins and supplements that have helped me and others on this forum.  I take malic acid/magnesium supplements and vitamin D3 supplements and they both help with my pain and fatigue.  There are links about these, too, in Fibro 101, and how they work in your body.  Check with your doctor, too.  My doctor didn't think the malic acid would help but he said it wouldn't hurt either, and he was wrong.  They help me a lot!
Also, gentle stretching exercises (on Fibro 101) and gentle exercise in general really helps, too.  The more flexible you are, the less pain you seem to least thats what happens to me.  If you sit or lay too long, you will be stiff as a board.  I walk and swim as my exercise.  Since you have your bad knees, water exercise would be great...even if you are just walking in the pool.  I do hope you have access to a pool in your area..a YMCA or something like that.  Perhaps you can get some physical therapy to help strengthen your knees, too.
Moist heat helps a lot, too.  Many have a Bed Buddy.  You can find these at Walgreens and other places or you can make your own by taking a tube sock, filling it 2/3's full of raw long grain rice, and tying a knot at the end.  You pop this in the microwave and it gives off moist heat due to the moisture in the rice.  It feels soooo good on those achy neck and shoulder muscles.
I'm so glad you found us and joined in.  Don't hesitate to ask questions because we are here to help you.  Let us know how things go for you because we really do care.  Hope to hear more from  you soon.
Forum Moderator/Fibromyalgia
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Post Edited (Sherrine) : 8/17/2010 9:58:31 AM (GMT-6)

Regular Member

Date Joined Jul 2010
Total Posts : 202
   Posted 8/17/2010 9:12 AM (GMT -7)   
Welcome knees hurt

I recently started having issues with my knees.
Wasn't able to exercise cause they hurt so bad.
They weren't swollen but they felt like they were.
Just had a real "fullness" feeling in the back of my knees.

Physician's assistant told me to take aleve before exercising to see if that helped and he thinks I also have the start of arthiritis in them.
They haven't hurt as bad lately.

There are wonderful people here that will give you loads of support.

Don't think about what you used to be able to do............Think about what you DID do today !
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