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Regular Member

Date Joined Aug 2010
Total Posts : 33
   Posted 8/21/2010 1:17 AM (GMT -7)   
shakehead  Hi everyone.  I am new to this forum mainly because I have no support from my friends and family.  Not even my own husband.  After many years of being misunderstood I finally found a doctor that has gotten me to a better quality of life! (I'm not as miserable as I was)  I have been having a lot of difficulty dealing with the pain lately.  I have been more bumbed out that ever.  I also have other issues besides fibro.  I am very fustrated, feel like fibro has taken over my life!  I wanted some feed back on Cymbalta. Has anyone had good results with a medication other and Lyrica?   Oh before I forget has anyone heard of Adderral being used for fibro?  My friend was put on Adderral for her fibro, was recently diagnosed.  I thought it was really weird~  Chronic fatigue is not my main concern since I also have Hypothyroidism.  My concern is THE PAIN! please help.

Veteran Member

Date Joined Oct 2009
Total Posts : 4931
   Posted 8/21/2010 7:42 AM (GMT -7)   
Lyrica was about the worst med I ever tried. Gabapentin was not fun, got serotonin syndrome when I mixed it with tramadol after taking both for a long time. I felt SO much better off gabapentin - after a week of withdrawal cold turkey.

All I take now is tramadol in lowest dose and no more than 2 or 3 times a day max.
Diazepam helps with muscke spasms. It's a great muscle relaxant and won't cause serotonin syndrome - in fact, stops the symptoms.

Veteran Member

Date Joined Jul 2009
Total Posts : 4796
   Posted 8/21/2010 8:17 AM (GMT -7)   
Hi Medtech, Welcome to the fibro family. I am sorry for your pain! Finding
ways to help with pain is trial and error for most of us...what works for one
doesn't always work for another. I tried Cymbalta and could not tolerate it. It
made me nauseas and dizzy, but there are members here who do well on it.

I have been on Savella for a year now and have been helped some. With fibro
I don't think we are ever completely pain free. It sure helps to find something
to take the edge off. I use a muscle relaxer cyclobenzaprine) for flares and it
helps but makes me drowsy.

Heat helps many of us...soaking in a hot bath or taking long hot showers.
Most of us use moist heat heating pads(bedbuddies). Exercise is important too.
Inactivitiy will make you more sore.

Many of us were found to be Vitamin D deficient and that can add to achiness.
You can ask your doc to be tested if you haven't been already.

Checkout fibro 101 pg. 1 on the top of the page...lots of good info!

I'm so glad you have joined us. There are many wonderful caring people here
who are very understanding. Come back to post with any questions or concerns
you have. We care :)

Hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements

Forum Moderator

Date Joined Apr 2005
Total Posts : 17526
   Posted 8/21/2010 8:45 AM (GMT -7)   
Hi, Medtech, and welcome!  I'm so glad you found us and joined in.  It's really tough not being believed.  We've all been there.  Now I don't care if they believe me or not.  I know I'm in pain and so does my doctor so that's good enough for me.
I don't know about the Adderall.  I've never taken it.  I use Ibuprofen with food, extra strength Tylenol, Vitamin D3 and malic acid/magnesium supplements.  These have help me be in control of my pain. 
Be sure to check out the Fibro 101 thread....the first thread on the forum.  There are links to good information about fibro and you will learn a lot there.  You might want to check out the Spoon Theory link and also Doctors Respond To New York Times Article link.  These might help your husband and friends possibly understand just a little of what you are living with.  Also, there are links about the vitamin D and malic acid/magnesium supplements and how they work in your body.  These have helped me a lot with pain and fatigue.
You really do have to keep moving with this illness.  If you sit or lay too much, you will be stiff as a board.  I do the gentle stretching exercises that you will find on Fibro 101 and I also walk and swim as my forms of gentle exercises.  The exercise helps keep my muscles more flexible and gives me more energy, too.  I am in less pain after a walk!
I'm happy you are here!  Don't hesitate to ask questions because we are here to help you.  Hope to hear more from you soon.
Forum Moderator/Fibromyalgia
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Forum Moderator

Date Joined Nov 2008
Total Posts : 5951
   Posted 8/21/2010 9:07 AM (GMT -7)   
Hello, Medtech,

I'm sorry you're having such a time with pain. That is my biggest roadblock, too. I can get my energy going if I can DO things, but there's such a fine line between doing the right amount and doing too much! So, I have a narcotic pain reliever, Darvocet, in my arsenal, just in case. Most of the time, I don't use it. But it's nice to know that if the pain starts accelerating out of control, it's there. I know it's not right for everyone, nothing is. I also take Nortriptyline (antidepressant - have taken it for 18 years) and Clonazepam (for sleep, last 3 years) but I'm weaning myself off of both of them very slowly because I'd prefer not to take anything every day. Plus, it would be nice to be able to have a glass of wine with my husband, and drinking anything on these drugs makes me feel awful.

You'll get lots of good info from everyone here. Welcome!

...fibromyalgia, hearing loss, elevated liver enzymes, skin grafting (back), arthritis, scoliosis, lumbar disc damage, sciatica, IBS, migraines, tachycardia, cancer surgeries (face).......I take Nortriptyline & Clonopin daily, and Darvocet as needed

Veteran Member

Date Joined May 2010
Total Posts : 1556
   Posted 8/21/2010 9:29 AM (GMT -7)   
Hi Medtech, welcome to our fibro family, sorry you are dealing with all this pain but like the others have said it is trial and error with us as to what will work and what wont. I cant take most oral pain meds due to being over sensitive to them. What works for me is a Fentanyl patch. These can be switched every 3 days but I make mine last for up to 2 weeks at a time. That is just how I am though. I also take diazapam at night to help me get to sleep. I hope you find something soon to give you some relief.
Gentle Hugs
DX: Fibro, Gerds, COPD, Osteoarthritis, Osteoporosis, High Blood Pressure, and Depression.
When I get where Im going dont cry for me down here. (Brad Paisley & Dolly Parton)

getting by
Forum Moderator

Date Joined Sep 2007
Total Posts : 41915
   Posted 8/21/2010 11:08 AM (GMT -7)   
Hi Medtech,
Welcome to the HealingWell Fibromyalgia forum.  I am so glad that you have joined us.  You will find that all the members here are very helpful and kind and compassionate.
I do take adderall for fatigue.  I find that I can handle that pain better than the fatigue.  The adderall makes it so I don't sleep all day and night.  I did that that for two years in 2002 and 2003.  That was hard on me.  But with the help of a good psychiatrist, I was actually able to work a part time job last year. 
I see that you have been directed to fibro101.  It is a very interesting thread.  There is a wealth of information there and I hope that you take the time to check it out. 
I do take norco for pain.  I do have pain still, but it is tolerable. 
I hope that you find what is right for you.  Keep posting and again Welcome!!!!
Hugs, Karen
  Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies

Regular Member

Date Joined Aug 2010
Total Posts : 33
   Posted 8/21/2010 12:27 PM (GMT -7)   
Hello everyone. Thank you all so much for your support and input. I really appreciate it. I did not know of all the other side effects that could be caused by taking certain medications together! such as serotonin syndrome....yikes! and the Vitamin D Vitamin D level as at 16 last year. My doctor is very big on supplements and a healthy diet and I've found that those changes seem to make me feel better. I have been taking Neurontin and Tramadol for a while now. I am very hesitant about the Cymbalta because I don't want to feel groogy. I have a very active 4 yr old. I also take Cyclobenzaprine, Celebrex, Xanax (for sleep), and on occasion Vicodin. I used to be an athlete (soccer and track) so exercise is not a problem, I do makes me feel better. My problem is that I over do it. I want to continue with strength trainining but if i push myself too much I pay the price the next day (hehe) I was diagnosed with fibro in 2006 but did not research it at all because everyone thinks i'm "crazy" or "it's all in my head" you guys are trully awesome! THANK YOU SOO MUCH!

Dx: Fibro, Hashimoto Thyroiditis, Adrenal Fatigue, Migraines, IBS, GERD, Degenerative Disc Disease, Osteoarthritis, Spinal Stenosis, Sciatica

Meds: Neurontin, Tramadol, Cyclobenzaprine, Celebrex, Xanax, Kapidex, Sythroid, Cytomel, as needed Imitrex, Phenegran, Vicodin

Regular Member

Date Joined May 2010
Total Posts : 110
   Posted 8/21/2010 12:52 PM (GMT -7)   
I understand your concern about what to take and how you are going to react but we don't all react the same way. I took Savella with minor side effects while others I know tried and hand major. That can be said about ever medication out there though. rolleyes

Have they checked your D and B levels yet? Mid/late summer would be a very good time to get that test done. My Fibro pain seemed to be mostly nerve related. Savella helped me at least 90% and I did find out through all the testing that I have Rosacea and Psoriatic Arthritis and Polyps (one being pre-cancer). I also found that my Cholesterol medication was causing severe complications. Recently jumped off of Savella and noticed that my Arthritis didn't hurt as much and a slight cloud lifted. I switched to LDN which has given me even more control back then Savella did. I still can't remember much of squat short term but it's improved and my concentration is a bit better and when things settle down with the switch I may look at adding one of the ADHD meds to try to get my brain back in sync. :) But..... I have very little pain and for that I'm grateful.

Vit D, Tart Cherry Juice and DL-phen were things I added on my own. I sleep better and my feet don't hurt as much.. and my general mood is better. I was low on D though and fine on the B's. Best to have a doc run the tests to rule out things.... Pssst.. I DO have a bottle of Vicodin tucked in my dresser for when I need it..

Truthfully.. I'm still waiting for the Jetson Era to come into play.. Step in a room and all these scan's do their thing and bam... they tell you what all is wrong! idea
DX: Fibro, PA (Psoriatic Arthritis), Psoriasis, Rosacea.
Formerly Savella, Now Lisinopril, Vit D, Prilosec, Ambien, LDN, Tart Cherry, DL-Phen

Forum Moderator

Date Joined Nov 2008
Total Posts : 5951
   Posted 8/21/2010 2:37 PM (GMT -7)   
My sentiments exactly! Or how about Star Trek? I think Dr. McCoy used one of those, too.

...fibromyalgia, hearing loss, elevated liver enzymes, skin grafting (back), arthritis, scoliosis, lumbar disc damage, sciatica, IBS, migraines, tachycardia, cancer surgeries (face).......I take Nortriptyline & Clonopin daily, and Darvocet as needed

Regular Member

Date Joined Jul 2010
Total Posts : 416
   Posted 8/21/2010 5:31 PM (GMT -7)   
Welcome to the forum. I am here on occasion, and the chronic pain and Rhuematoid arthritis forums as well. Had to take the time to answer your question because I have been through this. I have done Lyrica..had horrid side effects. Now I have been on Tramadol and Cymbalta for about a year. If I don't take the Cymbalta because I forget I get so dizzy and sick to my stomache. It is as though I was on a boat. I can't stand and I'm weak. This is if I miss one dose. I personally wish I had never started taking Cymbalta. I didn't even know, or was never told, that the two together can cause so many issues. I just know that it has gotten a whole lot of hype because it's makers Ely Lili. Seems to me they are trying to sell a miracle pill to treat several issues when we all know there is no miracle. Take care with whatever you decide. Heather
Big Hugs, Mama6

DX. with Fibromyalgia, Narcolepsy, Poss. RA or Psoratic Arthritis, Herniated disc 3x in last 7 months
Meds: Nuvigl, Cymbalta, Tramadol

Mother to 5 wonderfull kids. Oldest is 18 and just left the nest for animation school. Youngest just started 2nd grade. So I am crazy, and feeling my age plus some.
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