I just wanted to introduce myself

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New Member

Date Joined Aug 2010
Total Posts : 12
   Posted 8/25/2010 10:51 PM (GMT -7)   
Hi my name is Desiree and of course I have Fibromyalgia and along with that I have P.C.O.S. which is another bag of fun. I am 24 years old, although I feel more like 80. I am unable to work which honestly makes me feel like a useless human being. I want to be able to help my husband with the bills but I just can't. I am in pain all of the time. I'm not even sure what a day without pain feels like anymore. I was just diagnosed a year ago but I have been suffering since I was 19. I worked from the time I was 15 to up until about 2 years ago when I just couldn't stand to be on my feet anymore, along with the fatigue. I was diagnosed by a wonderful doctor but he has recently closed his private practice to go work for a hospital so I am starting fresh with a new doctor so thats frustrating, although he seems to be an understanding doctor. I had my first appointment with a rheumatologist this week and I feel it went well. He put me on some new medicine, so I'll see how that works out. I go back to seem him in a month. Currently my biggest problems are severe back pain, neck pain, insomnia, tenderness all over but more severe on my elbows and knees (I can't stand to have my elbows touched!), fatigue which sometimes has me sleeping all day, muscle spasms, anxiety, memory problems, migraines, IBS and foot pain. During the winter especially I have to walk with a cane. I have gained a lot of weight in the last few years because of the pain and lack of exercise. I went from kayaking, swimming, playing basketball and soccer to very little activity. I feel like a recluse because I rarely feel like leaving the house. I am going to be trying to get disability as soon as I find a lawyer, although my husband is a very caring understanding man I want to contribute in any way I can. Sorry to ramble on but I'm glad I found someplace with people that know what I'm going through.

Regular Member

Date Joined Aug 2010
Total Posts : 77
   Posted 8/25/2010 11:17 PM (GMT -7)   
Hi desiree it's nice to meet you. I'm Wendy I just joined this group this week as well. I have not been lucky enough to be diagnosed yet and am right now going through the "well your blood work came back normal so you must just be depressed" phase. Although they did start me on Savella last week, no help yet(supposed to start working in 3 weeks)

I struggle with the same things you're going through. I was just starting my sophomore year of college but because of the fatigue pain and hard time concentrating i've had since march i had to drop it for now. There is no way I could work right now and I cant remember the last time I had a pain free day or even a low pain day. It's so frustrating

This is such a good group of people here and they have a great sense of humore and truly do care about you!Can't wait to get to know you better.

New Member

Date Joined Aug 2010
Total Posts : 12
   Posted 8/26/2010 12:05 AM (GMT -7)   
I went through the "well your just depressed" phase for years. I'm not sure why every doctor is so into depression, lol. Now I go into the doctors office and say first thing, I am not depressed so don't tell me I am. I haven't tried Savella yet, I know its an anti-depressant but I don't know if they designed it specifically for fibromyalgia. I was on Cymbalta for a few months and of course, I'm not depressed so it didn't really help it just made me have awful negative thoughts. I really feel like if your not depressed, antidepressants probably won't work. I'm upset that pharmaceutical companies just rebrand medicine for fibromyalgia instead of researching it thoroughly and designing a drug specifically for it. It makes me feel like we don't matter. I'm sorry to be negative, I really hope Savella works for you but if you start having negative or suicidal thoughts stop taking it. I hope your doctor starts taking your symptoms seriously. I know I felt like a crazy person for years.

I had to drop out of college too. I can't concentrate very well. I forget what I was going to say mid-sentence, which is awful and embarrassing. I wish I could work and finish college. I feel like my dreams have been stolen from me. What were you going to college for? I was going to be a Veterinary Technician. Its sad that I couldn't get through two years of college but even if I did I don't think I'd be able to do the job.

I'm so glad there's positivity on here because I need it! I try so hard to be positive but my husband is the only person that treats me like I'm really sick. My parents are starting to come around since I keep dropping off books and showing them research. I wish this disease was more mainstream, it would make life so much easier.

Regular Member

Date Joined Aug 2010
Total Posts : 171
   Posted 8/26/2010 3:52 AM (GMT -7)   
Welcome Desiree and Wendy. You have come to a fantastice forum that has wonderful and understanding members. We've all been there and understand your fustration. Keeping a positive outlook is a huge part of dealing with this crazy illness. Be sure to check out fibro 101, tons of great info there to get u started.
Dx: Fibro, HTN, Depression, IBS, Lupus like symptoms

"The Lord is close to the broken hearted and He saves those whose spirits have been crushed" Psalm 34:18

Veteran Member

Date Joined May 2010
Total Posts : 1556
   Posted 8/26/2010 6:01 AM (GMT -7)   
Hi Desiree, and welcome to our fibro family. Sorry you have to be here but Im glad you found us. We have some wonderful and supportive people on this board and we all have our times of venting, asking questions, offering advice and sometimes just having fun. I think you will love it here I know I do. Im sorry that you are dealing with so much pain right now and you are so young. We are all different in what meds we can tolerate or cant tolerate. I couldnt take the cymbalta either but there are a lot of people who it seems to help. Gentle exercise helps alot too. There are alot of tips in fibro 101 for gentle exercising.
From what I have read though about savella it isnt an anti-depressant. it is a med that they use on kids who have ADD or ADHD and it seems to help some fibro patients. I have never used it but that is what I have read.
Anyhow welcome once again and hope to hear from you soon.
Gentle Hugs

DX: Fibro, Gerds, COPD, Osteoarthritis, Osteoporosis, High Blood Pressure, and Depression.
When I get where Im going dont cry for me down here. (Brad Paisley & Dolly Parton)

Forum Moderator

Date Joined Apr 2005
Total Posts : 17559
   Posted 8/26/2010 12:00 PM (GMT -7)   
Hi, and welcome!  I'm so glad you found us and joined the family.  We are all pretty familiar with what you are going through now.  But, you will find what controls your pain and you will have a full and enjoyable life in spite of this illness.
I developed fibro while watching TV.  It started in my feet and worked it's way up my body in a 45 minute period.  When it hit my elbows it was like I had banged both arms badly on the nerve (funny bone).  You know what that feels like...electrical shocks running down into my hands and fingers.  The only difference was that it didn't even begin to clear up for two weeks!  I couldn't do much of anything but cry.  But, I figured out what helped me with my pain and I've had a great life so far so keep that thought! 
Be sure to check out Fibro 101...the first thread on the forum.  There are links to good information about fibro and you will learn a lot there. 
I use ibuprofen with food, extra strength Tylenol, vitamin D3, and malic acid/magnesium supplements to help with my pain and fatigue.  I put links about the supplements in Fibro 101 and it tells how they work in the body.  Always talk to your doctor first, though. 
Also gentle stretching and gentle exercises help with the pain.  There are some stretching exercises on Fibro 10 that do help.  Walking and swimming are my gentle exercises that I can do daily.  I couldn't walk far at first but I continued to try and I got stronger and in less pain!  I now walk at least a mile first thing in the morning and walk around all day, too.  This makes my pain less, gives me more energy, and helps burn calories, too.  It's a wonderful exercise that is good for fibro as well as  your heart and it doesn't cost a cent.  Perfect!
Don't hesitate to ask questions.  We are here to help you.  I hope to hear more from  you soon.
Forum Moderator/Fibromyalgia
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Veteran Member

Date Joined Jun 2010
Total Posts : 554
   Posted 8/26/2010 12:17 PM (GMT -7)   
Hi again Desiree!

Thank you for giving me some good feedback on the Tai Chi thread about which videos you like for both Tai Chi and Yoga. I'm very excited to hear about those sorts of things. You're a real help telling me about the ones you've tried. If you ever know of any other stuff - I'm all ears!

Welcome to the forum. As has been said, this is a super place. I feel like I have a little of my sanity back since joining here. I can handle stuff better having friends here who support everything I do. You're gonna love it.

Again, welcome. I'm really glad you've joined us!

Veteran Member

Date Joined Jul 2009
Total Posts : 4796
   Posted 8/26/2010 2:16 PM (GMT -7)   
Hi Desiree, Welcome to the family! I've thought about doing Tai Chi. I do practice
relaxation therapy everyday...deep breathing and meditation. It helps with the pain
and a wonderful stress reliever.

I have been taking Savella for over a year and it has helped me, It took 2 months
before it kicked in though. I don't suffer from depression but believe my body was
in need of having my neurotransmiters level upped. We all tolerate meds differantly

It is hard when you are used to being really active. My lifestyle before my illnesses
was nonstop action. Even today I try to stay as active as possible. I hurt but if
I didn't "keep on keep'n on" I'd be alot worse. I walked 3 miles this morning and
try to walk everyday. Somedays I can only do a few blocks.

hoping you find a routine and med combo that works for you. Glad you joined us!

hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements

Forum Moderator

Date Joined Nov 2008
Total Posts : 5954
   Posted 8/26/2010 4:05 PM (GMT -7)   
Good to "meet" you, Desiree. Sorry you have to be here, though.
It really does help to find other souls travelling the same path, or at least, a very similar one. Not so lonely or hopeless!

...fibromyalgia, hearing loss, elevated liver enzymes, skin grafting (back), arthritis, scoliosis, lumbar disc damage, sciatica, IBS, migraines, tachycardia, cancer surgeries (face).......I take Nortriptyline & Clonopin daily, and Darvocet as needed

Veteran Member

Date Joined May 2008
Total Posts : 704
   Posted 8/27/2010 7:38 AM (GMT -7)   
Welcome Desiree and Wendy!!!
I'm glad you found a place to come and get info, meet others who are going thru what you are, and vent!! We understand what you are going thru and we are here for you.
Wishing you both some relief and gental hugs!!
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