fibro flare question

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New Member

Date Joined May 2010
Total Posts : 11
   Posted 8/29/2010 4:51 PM (GMT -7)   
I would like to know how everyone else feels when they are having a flare. On my so called good days (I still have pain but can get through the day) my back,shoulders and neck are my main hurting spots but on other days it feels like I have a bad flu. Everything hurts all over from head to toe and I feel awful. Is this what all of you call a flare? I do not take any pills from the doctors because of all the side effects. I just try to stay with natural things. Also I only get about 2 maybe 3 of these so called good days a week and the rest are bad days. Will this ever get any better than that? I have a hard time falling asleeep and staying there too. I would appreciate anyone help on this.

Regular Member

Date Joined Aug 2010
Total Posts : 171
   Posted 8/29/2010 6:58 PM (GMT -7)   
HI Peggy I"m sorry your feeling so bad. To answer your question, yes that is a flare. Have you been diagnosed with fibro? There's a lot of great info in the fibro 101 thread at the top. We have all been where you are now so I'm gonna send you a soft hug and welcome!

Dx: Fibro, HTN, Depression, IBS, Lupus like symptoms

"The Lord is close to the broken hearted and He saves those whose spirits have been crushed" Psalm 34:18

Regular Member

Date Joined Aug 2010
Total Posts : 77
   Posted 8/29/2010 7:01 PM (GMT -7)   
oh peggy i so hear you this is the first day i've been out of bed for the last 2 weeks! yes when i get hit with a flare i feel like my knees are the size of cantaloupe and you can't even look at me because it just hurts my body to look at me. my fingers hurt as well as my knees legs back name it

as far as the sleeping goes i'm right there with you i cant remember the last time i actually stayed asleep for more then an hour. i was even telling my mom today which sitcoms i've seen from beginning to ending

gentle hugs to you!

Forum Moderator

Date Joined Nov 2008
Total Posts : 5951
   Posted 8/29/2010 7:26 PM (GMT -7)   
Hi Peggy,
This is something I've always wondered about too - why the flu feeling? My doctor just says "yup, that happens, and we don't know why." So I try not to stress about it, but that's pretty hard, esp. when it happens on a day you have to be with it. Sometimes it seems to come after I've used my muscles too much. Maybe our muscles release some kind of toxins that make us sick?

...fibromyalgia, hearing loss, elevated liver enzymes, skin grafting (back), arthritis, scoliosis, lumbar disc damage, sciatica, IBS, migraines, tachycardia, cancer surgeries (face).......I take Nortriptyline & Clonopin daily, and Darvocet as needed

Veteran Member

Date Joined Jul 2009
Total Posts : 4796
   Posted 8/29/2010 8:36 PM (GMT -7)   
Hi Peggy, I'm always thankful that flares don't last forever, though they seem like
they do. My pain level is definately amped up and I describe it as bone crushing
pain. The pain is deep and seems to radiate from the bone through muscle and
at times my skin is very sensitive to light touch. Fatigue is overwhelming because
of the insomnia. The fog is worse when I'm flaring.

I do what I can to distract the pain and am a big believer in relaxation therapy.
Doing deep breathing exercises and meditation helps. Soaking in a hot tub is a
must for me when I'm flaring. I also make sure I exercise...some gentle stretching
and a short walk really seem to help. On days that I'm not flaring, I have walked up
to 3 miles but ae a slow pace.

I use a muscle relaxer for flares and that seems to take the edge off the pain, but
does make me drowsy, that is why I don't use Flexeril on a daily basis.

Wishing all of us flare-free days!

Hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements
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