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Regular Member

Date Joined Apr 2010
Total Posts : 382
   Posted 9/3/2010 1:40 PM (GMT -7)   
It's been one of those years.....Finally found MIL has hairy cell leukemia.  Don't know if you remember she had a colonoscopy, puncture, infection, month in rehab because she lost moblility came home, she lives with us. She started to go down hill again and now we know why.  They said 90% chance of remission however her age/health issues play a role in it too.
I know there are other cancer paitents here, she starts chemo in a few weeks.  Right now the biggest concern is she has lost 30 pds and still loosing.  She only eats 3 times a day and not as much as she use too.  I have tried everything with her, trying to get her to eat 6 small meals a day, candy, ice cream, ensure, etc.   She tells me she can't her stomach will get upset, I try to explain that we need to have you eat because when you start chemo that will be another problem.  
When I try to reason with her, she starts getting upset and on the verge of crying....any advice would be greatly appreciated.
Today was my thyroid appointment, test was normal, duh.  He wants to do another scan and lab work....ugh!!!  I go look I was hopeing you come in here and tell me that it wasn't normal so I can have a reason to feel this way.......went through the problems I have been having.........he goes Fibromyalgia...... do ever feel the need to strangle your doctors........I'm thinking of several right now.

Veteran Member

Date Joined Jul 2009
Total Posts : 4796
   Posted 9/3/2010 2:06 PM (GMT -7)   
Kellie, life can be crazy at times ...that is for sure. I'm sorry about your MIL.
My Dad had a hard time keeping weight on also. He had no appetite and looking
at a big meal made him nauseas. He would say "I'm not going to eat if I'm not
hungry." Getting him to eat enough was a struggle also. He mixed his cereal with
ensure and drank it with his meals and in between meals but he continued to lose
the weight. I know it is frustrating because you want the best for her. She is very
lucky to have you in her life. All you can do is continue to encourage her and give
her your love.

Kellie are you saying your doc finally has a dx for you? ...yup life can be crazy!

Hope you are feeling better soon!

Hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements

Forum Moderator

Date Joined Apr 2005
Total Posts : 17524
   Posted 9/3/2010 2:42 PM (GMT -7)   
Kellie, does your MIL get nauseous?  If so, there are medications that can help.  I used to get partial bowel obstructions and would be terribly nauseous.  Once in the hospital, they would give me something that took all the nausea away.  Maybe they would want to try this with her.  She does need to keep her strength up for what is ahead of her.  I'd explain it to her that way, too.  You want her strong and healthy so she can fight this illness.  Ask her what her favorite things are that she would enjoy eating and try to get that for her. 
I remember when my FIL was fighting cancer.  He, too, had absolutely no appetite but he did manage to eat some.  The Ensure, it seems to me, would coat her stomach and help ease the nausea.  I'm just guessing but it does have all the nutrients in it.  I know you've tried this.  Now you need to talk her into it.  How about making "popsicles" with the Ensure?  Maybe the coolness and the fact she is getting a little at a time could help and she wouldn't get nauseous.  I bet the chocolate flavor would be great!
Forum Moderator/Fibromyalgia
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

getting by
Forum Moderator

Date Joined Sep 2007
Total Posts : 41909
   Posted 9/3/2010 3:08 PM (GMT -7)   

I am so sorry for what your MIL is going through. You are so kind to her and that is such a blessing for her. I think you have been given some really good advice. Keep up the good work at taking care of her. Pace yourself my dear.

Hugs, Karen
  Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies

Forum Moderator

Date Joined Nov 2008
Total Posts : 5951
   Posted 9/3/2010 3:21 PM (GMT -7)   
Both my parents, at the end of their lives, had no appetite. That's really a tough one. If you're not hungry, you're not. The body starts shutting down and just doesn't need as much...I'm not saying that's what's happening to your MIL, but maybe her digestive system just needs a rest. Or maybe I don't know what I'm talking about.

Anyway, Kellie, good for you for hanging in there and trying. It's so hard.

Yes, I feel a need right now to strangle my daughter's gastro doctor...I won't go into details but I DO know what you mean!

...fibromyalgia, hearing loss, elevated liver enzymes, skin grafting (back), arthritis, scoliosis, lumbar disc damage, sciatica, IBS, migraines, tachycardia, cancer surgeries (face).......I take Nortriptyline & Clonopin daily, and Darvocet as needed

Veteran Member

Date Joined May 2010
Total Posts : 1556
   Posted 9/3/2010 9:04 PM (GMT -7)   
Hi Kellie, Im sorry that you and your family have to go through all this. I am lucky enough to still have an appetite except right after the chemo. It is scary that she doesnt feel like eating already. Im sorry you arent getting the answers you need at the drs. too. I will continue praying for you and your family.
Gentle Hugs
DX: Fibro, Gerds, COPD, Osteoarthritis, Osteoporosis, High Blood Pressure, and Depression.
When I get where Im going dont cry for me down here. (Brad Paisley & Dolly Parton)
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