Cheers! Welcome To The Land of Fog Where Everyone Forgets Your Name

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Date Joined Apr 2005
Total Posts : 17528
   Posted 9/4/2010 2:46 PM (GMT -7)   
Please do not post on this thread.  It was missing in Fibro 101 and I'm just replacing it.  But, it's good reading!
Welcome! If you’re a newbie turn please read.

Please understand that we use that title affectionately. Being new to the fibro forum means you get to be part of a very dynamic group of caring people who use education, humor, sharing and caring to help themselves and others cope with this disorder. Our forum covers a wide range of topics so before you post a question do a site search in the little box at the upper right side of the page below the "Join HealingWell" button to see if what you need answered has already been addressed.

We are interested in you and your background... Start a new link (Click on the upper left where it says New topic) and let us know about yourself and how you cope. Do you take any meds for your fibro? Do you have any other health problems? We are all about sharing and education here... so anything you can share will be welcome. We do like to have our posts be fibro-related but heaven knows it's affecting every aspect of our lives so that pretty much leaves the discussion topics wide open. Also, be careful about sharing too much personal stuff for your own security and safety. If you want to post an email address it will be shielded from spam robots on your personal page or you can use this format -> jeannie143 at healingwell dot net (that's mine.)

We understand that you all are in pain that no one else can see... Being stricken with an invisible disease like fibro is much like being hearing impaired. (As I am.) It is only when you try to interact with others that your limitations become obvious. And anyone who has never had this disorder has no idea of the constant, unrelenting, dull and sharp, stabbing and throbbing pain we live with... and they never will. Sooo, that being said, we try to help each other and educate our families and co-workers about fibro.

There are many theories about the causes of fibro including Lyme, car accidents, childbirth and others. If you keep an open mind and keep up with your health appointments you should be able to find some relief. Be sure to stay educated online and listen to others, always evaluating treatment options and meds. This increases your chances of finding help. One of our members found an excellent online article for doctors and it would help if you read it as well. It's called Fibromyalgia (FMS) and Chronic Myofascial Pain (CMP) For Doctors and Other Health Care Providers. (Just click on the colored word and it will take you to that site.) If it's ok for the doctor's to know this stuff, it's ok for you to learn about your disorder as well. Sometimes just understanding the reason for the pain makes it easier to handle.

We welcome you and enjoy your input. Some of our members are very knowledgeable and some of us are full of hot air, but we all pretty much have our hearts in the right place and we will help you all we can, even if it's just to listen. So cry and whine, laugh and smile, but do share. We all appreciate each other a lot! If you're one of the shy ones, who only reads, (we call you a lurker), that's ok, too. But we'd much rather hear from you if you have anything to say.

The thing I like about HealingWell is the members seem to understand fibro's drawbacks and limitations, and instead of offering false hopes and fake claims we just share what works for us with each other. Nobody is trying to sell you something. Some members have wonderful doctors who take a multifaceted approach to the disorder and use nutritional supplements as well as prescriptions and physical therapy. Some of our members have trouble finding doctors who will treat fibromyalgia. All of us have discovered that if we pool our experiences we can all learn new coping mechanisms for fibro.

Now, this is NOT depressing! It's just life! Heck, people in the middle ages died of tooth abcesses and simple infections. We don't have it so bad. We've got cars and elevators and electric appliances. All I can think of is the early pioneers who developed this DD while crossing the continent in a covered wagon without so much as an aspirin to their name. We CAN do this. We can have great lives despite our DD but we have to make it happen. I am not fibro any more than I am diabetes or asthma or hypertension or any of the other conditions this old body of mine is entertaining at the moment. I choose to be as happy and helpful as I can every day of my life as long as I can find my way through the fibro fog! JoKat, one of our few male members who chooses to post among the high percentage of women on our forum has an excellent attitude and his signature says it all, "Fibro is a life sentence, but not a death sentence."

I'm putting some of the links that we often refer to in this posting so we can bump up this post instead of all of them and you may pick and choose what you need to learn about. Just click on whatever interests you. Take care and be gentle with yourself.

FMS101: Intro to FMS

Fibro: A list of common symptoms

Fibro and Chronic Fatigue

Coping information


Some of us have had success with the malic acid and magnesium regimen.
Sherrine's post about it

Simple Flexibility Yoga

Fibromyalgia, eMedicine from WebMD A site for your doctor BY a doctor

Chat 101 ~ How to chat

Hope this makes things easier for everybody. If you have suggestions for links to helpful sites (that aren't selling anything) you may post them or email the links to any of the mods if you're not sure about them. And for all of our sakes, please read thru the Forum Rules so you know what is ok to post and what is going to be deleted or edited by the moderators.

I, along with all the moderators welcome you to Healingwell and look forward to sharing with you.<!-- Edit -->

Forum Moderator/Fibromyalgia
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7
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