Hi to all
A new acquaintance put me on to this site, I am a single mother to three children, 9,8 and 5yrs.
I have been reading a lot and still have many questions.
I have been ill since early this year and after a few different doctors I have been told that I have fybro and possibly sleep apnea.
I have my sleep study tonight, so it will be interesting to find out if I stop breathing while I sleep.
My specialist did the fybro trigger point test and as you can imagine I was reacting quite interestingly
though we are hoping to blame sleep apnea for a 24/7 headache that refuses to go away as well as fatigue, weak immune system, exhaustion.
My special is not 100% certain its sleep apnea but rates it his number 1 culprit, hence trying it first.
Paracetamol and anti inflammatory meds are of no help for muscular or my headache.
I am studying and have been struggling to complete assignments due to concentration and brain fog, I know the work, but getting onto paper is a struggle. We are also hoping to blame sleep for this too.
The thing that stumps me is, resting is good for me I have found, even though the doc tor says otherwise. My muscles burn, twitch and are sorer with more that I do. Primarily in my limbs.
I have a friend with fybro and she is the opposite, has to keep moving.
The only time I am stiff is sometimes after a nice hot shower my lumbar stiffens and if I drop something I get my children to pick it up, and sometimes my lumbar is stiff in the morning when I wake, and both usually clear by lunchtime.
Otherwise my all day everyday is muscular burning and twitching.
Initially my CK enzyme level was quite high and blamed for my muscular complaints, but as it braked down and come back down to a normal level my muscular complaints continued.
My gp called the muscles burning and twitching randomly - fasiculation.
I feel that if I can get the headache under control I can better manage the muscular fun and games.
Yesterday I spent way to long standing and walking and got home and lay in my bed hurting till I fell asleep, thank heavens my kids don't get up to too much while I crash.
Sorry to jump in thoughts, initially it hurt to sit in a chair, wherever the pressure on the muscles was, same with resting arms on the table when eating. Sitting on the recliner is ideal, as its soft.
Q: Do others have muscular burning?
Q: Is it helpful to have a muscle biopsy?
Any thoughts and questions gladly accepted.