Is it or isn't it inflammatory?

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Regular Member

Date Joined May 2010
Total Posts : 61
   Posted 9/8/2010 4:06 PM (GMT -7)   
Hi everyone hope you all are good,

havent been on the forum for a while due to health probs and medical appointments....and fatigue. I am very confused at the moment because all the stuff I have read on fibro so far says that it is not inflammatory yet I have recently went down bad with Costochondritis and have and inflammatory problem in my ear that is causing a pulsing kind of tinnitus. I have left one doctor who tried to say my chest pain was from MY BRAIN and was found out of hours on two occasions to be pretty bad costochondritis. I spoke to a female doctor over the phone two days ago and she told me that fibro is an inflammatory condition :O, after i said i have costo and i thought fibro wasnt supposed to be inflammatory, so why so many sites of inflammation, not even going to talk about the bladder. I have pretty much had it up to my neck and submitted lots of times due to attitude of doctors, ive been getting complicated migraines acting as tias and the doctor i wont be going back to told me medically unexplained symptoms no more testing. Sweet huh.
Like many of us I have hypothyroid and also psoraisis which are both autoimmune in nature and i wondered if anyone who has more knowledge could explain why im coming down with more and more symptoms. Im now referred for a MRI to exclude MS and other causes of neurological symptoms and due to see an ENT specialist. Is this the normal path for fibro? I have never had bloods taken for RA or Lupus and wonder if my full blood count would have shown signals of anything going on. Bloods are fine at moment thankfully. Much much frustrated and confused. Sorry for venting but I am trying to get on top of someething that has had me at its mercy for two years.

Hope everyone else is coping better than me . Hugs

Regular Member

Date Joined Aug 2010
Total Posts : 80
   Posted 9/8/2010 4:43 PM (GMT -7)   
I don't really have any great answers, unfortunately, but am very curious to see what others have to say. It sure seems like it would be...things seem to inflame and flare up for me from one day to the next. I have no clue what NORMAL is when it comes to fibro...or which pain and ache may be something else. I do have the chest pain that gets worse from time to time and my dr thinks that is part of it for sure. She asked me which pains just don't seem to make sense to me. Some of them do b'cuz of known problems such as neck, hands, shoulder, foot, low back and such. The ones that didn't make sense to me were the chest, ribs, and outter hip pain. To her these were very normal and almost seemed to be the final convincer for her when doing the fibro diagnosis. I would think blood tests couldn't hurt. They did mine to rule out the others b'cuz the symptoms are so similar. Can I ask...what are "tias"?? I have seen this term a couple times today. My dr seems to think that the fibro will continue to show itself in random wierd ways, and will be different from one day to the next. It is kinda scary for me b'cuz how do you know when something else is going on or do things just go untreated while I assume it all the fibro. I know they say it does not cause the pain but amplifies the all seems confusing to me...and that is scary cuz I am lost and confused more often than I am confortable with these days. Best of luck to you...I hope someone has some answers that we can both learn from.
Trying to keep my focus...

Fibro, deg/bulg discs in neck, rotator cuff tear, exteme nerve pain in hands after carpal tunnel on both, multiple foot surgeries with pain still, IBS, tension headaches, (Lap band)

Savella, MS contin, Vicoden, claritin, prilosec, flonase, vitamins, calcium

Regular Member

Date Joined May 2010
Total Posts : 61
   Posted 9/8/2010 4:51 PM (GMT -7)   
hi sobermommy a tia is transient ischemic attack or mini stroke (reversible) had two episodes within a month, neurology said complicated migraine, had numbness down one side numb tongue and face but idk cos now my ears are starting to rumble and pulse and ive seen menieres associated with fibro so i guess im jumping to conclusions i hope i havent had a tia or have MS but youre right ya know they should have done bloods but they wont im in uk and nhs is all cost effective, i have pain in my hips on awakening and i think its all connected, i had other kinds of chest pain apart from the costo and had treadmll testing and echo done nothing found, fibro is a beast and very challenging

Hugs to you hun ty for replying

Veteran Member

Date Joined Jul 2009
Total Posts : 4796
   Posted 9/8/2010 4:53 PM (GMT -7)   
Ohsofibro, I'm sorry you are going through this. I feel your frustration. I always
thought fibro not to be inflammatory. I know it isn't uncommon to have conditions
that are inflammatory along with fibro.

Some disorders' symptoms are gradual. Sometimes it does take years to fully
figure out what is going on. Many of these diseases are confusing to specialists
because of the overlapping symptoms and it can turn out that a person may have
an overlap disease. It does take a lot of patience to wait for a diagnosis, I've
been there... I'm one with an overlap disease...MCTD.

Fibro does not turn into an autoimmune connective tissue disease. It is it's own
condition. Your doctor is doing the right thing by doing bloodwork to eliminate
possibilities. I think bloodwork should be checked and rechecked only because of
my own personal experiance. It is good to have neurological testing done to make

Wishing you the best and try to relax. I do deep breathing and meditation to help
with stress and walk daily. Sending gentle hugs :) Keep us posted.

Hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements
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