Thank you for giving me some idea about EDS...I'm beginning to really wonder about my daughter. I hope you don't mind reading some background information for possible red flags? From what you've said, it sounds like a pretty significant problem...and I feel for you!
As a baby, my daughter didn't stiffen her legs when we'd hold her up, like the other kids - they just stayed limp. Doctor said no problem. At about 6, she fell on a ski slope and, according to my husband, her leg turned completely around the wrong way!..then she got up and skiied away. He also accidentally sat on her hand and it bent backwards all the way to her arm. We just thought how lucky that these things never hurt her (and how funny that she could brush her hair with her foot and fold herself practically in half to hide in the closet!)
She was never fast or strong like her sister. She rolled her ankles a lot, and fell down on the basketball court at the least shove, but again, the doctor said no problem. She's now a junior in college, and when she jogs or exercises hard she often gets bad stomach cramps, which is mystifying. This summer, when she injured her knee, she was just dancing normally in a club, and suddenly had to leave the floor in agony, wrapping the knee for a couple of weeks.
High school English - you are brave! I'm a sub and just teach elementary - those big kids intimidate me too much!! Incidentally, my parents were both English teachers. Thanks again.
...fibromyalgia, hearing loss, elevated liver enzymes, skin grafting (back), arthritis, scoliosis, lumbar disc damage, sciatica, IBS, migraines, tachycardia, cancer surgeries (face).......I take Nortriptyline & Clonopin daily, and Darvocet as needed