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Regular Member

Date Joined Sep 2010
Total Posts : 42
   Posted 9/13/2010 4:39 PM (GMT -7)   
Hello to everyone! I am new to this or any Fibro site. Everyone seems really nice from all of your posts. I was diagnosed last year and still haven't found a Dr that really knows about FM so I have just been "dealing with it." I take Savella twice a day and have been having a lot of pain lately and the fog is just madness! I am an office manager of an optometrist office that has 6 dr's and it seems like it's a big deal if remember what day it is let alone what dr is there that Also been having so much pain it is a huge chore to get out of bed and be able to go to work and run my office to it's fullest, and I love my job and my staff and would never want to cut my hours or step down either. I guess it is time that I start calling around to find a dr that knows and understands FM because my primary looks at me like I'm insane and am faking everything, so he clearly doesn't understand. Who is better as far dr's to see, a neurologist or a Rheumatologist?
I would appreciate the info. I really didn't know how I would feel joining and writing down all of my issues that I've been dealing with, but now that I have, I can see how this helps all of you so much, and hopefully myself.
 Hope everyone has a blessed day and thanks again for any info!
Thanks Again!!                  WestieLover77  

Veteran Member

Date Joined Jul 2009
Total Posts : 4796
   Posted 9/13/2010 5:30 PM (GMT -7)   
Welcome to the family Westielover...We sure have alot of animal lovers here...
I'm one too! This is a wonderful forum..lots of caring and supportive people here.

I think it is wonderful that you can work fulltime, managing an office.

Finding a great doc is half the battle, callling around to find someone who is
knowledgeable and BELIEVES in fibro is important. I was diagnosed by a rheumy.

I also take Savella...50 mgs 2x daily and take a muscle relaxer for flares.
Many of us were found to be vitamin D deficient and that will add to the achiness.
Taking 5000 mcgs of Vitamin B-12 helps with the fatigue.

So glad you have joined us. We really are like a family. We do care and are
here to help one another. Make sure to check out fibro 101, top of page one.
Sherrine one of the wonderful moderators here compiled a great resource for
us fibromites.

Hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements

getting by
Forum Moderator

Date Joined Sep 2007
Total Posts : 41931
   Posted 9/13/2010 6:40 PM (GMT -7)   
Hi Westielover,

Welcome to the forum. I am so glad that you have joined us. This really is a wonderful group of members.

I see an MD. I will be seeing him for the second time next week. My other doctor retired, so he suggested the one that I am seeing now. I just hope that he will keep up with my pain management. He wants to cut my muscle relaxers back, I don't want him to. Actually he wants to change it. The ones he wants to give me make me groggy. I don't like them.

There are many members who see rheumys and neurologists. Though I am not one. I am sure they will be posting to let you know how things go for them. And that should help you with your question.

As was posted above, by Robin, there is a thread called fibro101. It is very interesting. I am sure that you will find it helpful. I hope that you take the time to look at it.

Keep posting and let us know how you are doing. We have a daily koffee klatch that I think you will find interesting. It can be a lot of fun.

Take care,

Hugs, Karen
  Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies

Regular Member

Date Joined Sep 2010
Total Posts : 42
   Posted 9/14/2010 6:21 AM (GMT -7)   
Thanks guys! I plan on reading up on the Fibro 101 later at work if I have time or tomorrow is my day off. I have to say getting up this morning was a little easier knowing that I do have people out there that can relate to what I go through in daily basis and I enjoyed the Koffee Klatch, too. Thanks so much, looking forward to all of you as friends!

Have a great day,


Veteran Member

Date Joined May 2010
Total Posts : 1556
   Posted 9/14/2010 6:32 AM (GMT -7)   
Hi Carley and welcome to our fibro family, just wanted you to know that my internal medicine dr. is the one who handles all my fibro meds. I guess it doesn't matter what kind of dr. is the best, what is important is that they believe. I never realized until I started reading on these boards that there were so many doctors who didnt believe. I have never seen a dr. here in North Dakota that didn't believe in it. I hope you find a good dr. soon. Sorry you have to be here but you have found a great place to be. We have so many great people here that are always willing to give support. Feel free to ask questions, vent or offer support. Please keep us updated on how you are doing.
Gentle Hugs
DX: Fibro, Gerds, COPD, Osteoarthritis, Osteoporosis, High Blood Pressure, and Depression.
When I get where Im going dont cry for me down here. (Brad Paisley & Dolly Parton)

Regular Member

Date Joined Sep 2010
Total Posts : 194
   Posted 9/14/2010 6:50 AM (GMT -7)   
Hi there Carley,

Welcome! I am fairly new too. I have found everyone to be very kind and willing to share thier knowledge. I understand what you are going through. I've been out of my surgical coding job since June and yesterday had to come to the realization that I'm not ready to go back which means Long term dis. I feel that the longer I am out, the more they will need to fill my position with someone that can be productive. I also was dx by my rheumy. I am thankful that she has been treating me over 2 years. my first dx was polymyalgia rheumatica. After have a severe flare in June that's when she gave me the dx of FM.

I'll be praying for you. I have been pushing through at work for the past 2 years until my flare in June. This was the worse so far. My advice is listen to your body. Find you a doc that has knowlege of FM. I don't take savella but I am going to ask her about it. I rambling....sorry one of those days..

I wish you well and look forward to talking to you again,

Fibromyalgia,degenerative disc disease,depression,asthma
Cymbalta,ultram,neurotin,soma,vicodin for breakthrough pain
Juiceplus,coq10,chlorella,acetyllcarnitine,mucana,d-ribose,probiotic,fish oil,magnesium

Forum Moderator

Date Joined Apr 2005
Total Posts : 17528
   Posted 9/14/2010 9:26 AM (GMT -7)   
Hi, Carley, and welcome!  I'm so glad you joined our family.  Yes,  you do need to find a doctor that treats fibromyalgia patients.  My doctor is a board certified Internist.  Many here use a rheumatologist and some see a neurologist.  My Internist is also a Diplomate and he has to take tests every year, I believe, to keep that distinction.  It keeps him abreast of the new things in medicine.  BUT be sure to ask if they treat fibro patients because there are rheumys out there that don't, believe it or not!
I use ibuprofen with food, extra strength Tylenol, malic acid/magnesium supplements and vitamin D3 supplements to help with my pain and fatigue.  There are links about the supplements in Fibro 101 and how they work in the body.  Like anything with fibro, what works for one doesn't necessarily work for another.  But, we have members here that have gotten a lot of help from these supplements.
FYI, some members have had Savella stop working for them after a while.  Maybe this is why you are having more pain lately.  I'm not a doctor but definitely am guessing!
You do have to keep moving with fibro.  Try to get up and walk around as frequently as possible when at work.  That can help you so you don't get stiff as a board.  Also, in Fibro 101 is a link to some stretching exercises that you can do at your desk.  Most people wouldn't know you are doing them and they do help, too!
You are not losing your mind.  I am still amazed at how may doctors think this is all in our heads!  Mostly women get fibro.  Why?  I have no idea but I just bet if more men got it these doctors would start to take notice.  This is just my opinion but it really bothers me the way some people have been treated when suffering with fibro.  There is a link in Fibro 101 called Doctors Respond To New York Times Article.  I really like this link.  The NYT had an article talking about fibro and considered it a "garbage" illness.  Learned doctors wrote and corrected the ill-informed people.  Fibro is definitely REAL!
I'm happy to meet you.  Don't hesitate to ask questions because we are here to help you.  I hope to hear more from  you soon.
Forum Moderator/Fibromyalgia
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Regular Member

Date Joined Jul 2010
Total Posts : 202
   Posted 9/14/2010 9:40 AM (GMT -7)   
Welcome to the boards.

I just see a regular doctor but for right now he's pretty good.
He's the one that actually mentioned FM when I was first having symptoms.

Don't think about what you used to be able to do............Think about what you DID do today !

Veteran Member

Date Joined Jan 2010
Total Posts : 1097
   Posted 9/14/2010 12:20 PM (GMT -7)   
Welcome Carley! You've found a great place for information and support.

DX: Fibro, Severe Myofascial Pain, Chronic Pelvic Pain, Surgical Adhesions, IBS, IC-PBS, Carpal Tunnel (both wrists), FAI, Reynauds, Opthalmic Migraines, Drug Related Hot Flashes, Physically Unable to Vomit due to Nissen Surgery, Extremely tiny and scarred veins (hard start for IV's)

Meds: Oxycontin, Tramacet, Cymbalta, Cesamet, Flexeril, Clonidine plus Vitamin D + Multi daily

Regular Member

Date Joined Sep 2010
Total Posts : 42
   Posted 9/15/2010 5:46 PM (GMT -7)   
Thanks all for the warm welcomes! I found a Rhuemy today that I looked up and read pt remarks about him and he saounds good. I called and he DOES believe in FM, so I have an appt with him Oct. 1st! Hope it goes well and of course I will keep you all posted.

Thanks again,

Forum Moderator

Date Joined Apr 2005
Total Posts : 17528
   Posted 9/16/2010 10:24 AM (GMT -7)   
Carley, I'm so glad to hear this!  October 1st isn't that far away either.  You did a good job of hunting.  Be sure to let us know about your appointment and how things went.  We really do care about you.
Forum Moderator/Fibromyalgia
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Forum Moderator

Date Joined Nov 2008
Total Posts : 5951
   Posted 9/16/2010 3:12 PM (GMT -7)   
Hi, Carley, welcome! Sorry you have to be here, but this is a great place if you do. The doctor who treats me is an allergist/internist. I guess we run the gamut. I'm glad you got an appointment for not too far in the future.

...fibromyalgia, hearing loss, elevated liver enzymes, skin grafting (back), arthritis, scoliosis, lumbar disc damage, sciatica, IBS, migraines, tachycardia, cancer surgeries (face).......I take Nortriptyline & Clonopin daily, and Darvocet as needed
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