is EXTREME muslce weakness a normal part of fibro?

I had those symptoms, but I started taking adderall for energy and it seemed to help with that as I got more active. But yes, I do think it is normal for fibromyalgia. A complete feeling of overall exhaustion. I am sure that there are others who have these symptoms. But I think that the doctor is right about light exercise. I feel it is like use it or lose it. Try to keep moving around.

Hugs, Karen

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  Moderator-Depression and fibromyalgia

fibromyalgia, Chronic fatigue, depression,allergies

Off topic, hijacking thread for a second....your last name would start with a G???

Ok back to topic, I have moments of weakness, usually when I'm having a miserable day.

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'Brokenness means we are ready for change. Lord, come take my pieces and make me what you want.' Mark Brown

Sorry, I meant to Barbo, should have made that clear. Sorry

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'Brokenness means we are ready for change. Lord, come take my pieces and make me what you want.' Mark Brown

I find I feel weak if I am sedentary.  I need to keep moving and doing things.  Gentle exercise is so good to do...things like walking, swimming, and yoga.  Over exercising will just cause more pain.  So, if I were  you, I'd start walking daily or get a walking-in-place video if you live where it's cold and snowy right now.  Leslie Sansone has some great ones out there!  Pace yourself but keep active in your home.  I take care of all my own housework but I pace myself doing it.  I'm using my muscles and that is a form of exercise, too.  I know if I don't keep going, I'll get so I can't take care of my home and that's not acceptable to me.  

 

All of the above help me keep from becoming weak...and actually it gives me more energy.  I hope these ideas help you.

 

Sherrine 

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Forum Moderator/Fibromyalgia
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God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

When I first got fibromyalgia, I spent almost two years in bed. I could barely walk anymore. I had to hang onto furniture and even got myself a cane. I was aching, but it was more of a physical weakness. I started out really slow. Taking short walks here and there. We would go rock hunting. So I had to bend over a lot to pick up stones, and that would make my back ache, but found out the gentle stretching really does work. I am still not what I was, I don't expect to be because I am older now. But with pacing yourself, and walking as much as you can, I think these things can really help you. Swimming is great. Cross country skiing if you have snow. I want to try snowshoes this year. I don't know if I have the stamina. I was able to go back to work. Though I mentioned adderall before, that is what really changed my life, I still believe that you can gradually start off and eventually you will get stronger. Just keep trying and don't give up. The process could be slow, but it is better than lieing in bed. I can't stay in bed too long in the mornings anymore because my hips start aching so I have to get up.

I hope that you find what is right for you. Each of us learn that nobody is a like and we all have different things that work for us.

Take care,

Hugs, Karen

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  Moderator-Depression and fibromyalgia

fibromyalgia, Chronic fatigue, depression,allergies

Ok when i hear weakness..i immediately want to know if they checked your vit d levels...yes with fibro i can have weakness , but when my vit d got too low it was ten times worse...

Other than checking that, slow and steady with the exercise.. Some with fibro are advised to start with 5 minutes and add a minute every day or two..

I got a new recumbent bike, indoor, and if i push too fast , i have set backs.. So a gradual build up is better with fibro..i do gentle stretching and strengthening exercises daily and add the bike in on my less busy days..

hello
I must agree with all the advice on this thread. I too spent my first two years in bed or on the couch. Slowly, I began to tackle household items in small pieces. Often, I could only deal with one per day. After almost three years, I could manage more, but kept it simple. I always put each item away immediately! This allowed me to only have to deal with the bigger items as needed, like laundry. I de-cluttered my belongings which really helped; no more dust catchers. I bought a small apartment dishwasher and a set of pots and pans that practically washed themselves.
I started college. I walked about eight blocks to the college and then back, three or four times a week. My first semester I only took two classes. Then, I went full-time, for the next ten years.
All these things added up to less pain. I also learned what triggered my pain increases during time. Being active, even just a few 15 minute walks a day and doing three simple activities a day in-home, with breaks in-between, is a must. Give yourself a month to build up to this, maybe two.
Like almostmedfree, be careful of PT's. Some understand fibro, but others think that if you just push it, you will magically get soo much better.
Currently, my fibro has increased by 40% and for almost 2 years my activity has been severely limited. My muscles have definitely atrophied due to this. I just got back to a place, with the help of knee brace, where I can get back into the water and walk with stretches for 10 minutes, two times a week. This sounds like nothing, but it is a great start!
I suggest a "warm" pool for fibro syndrome as we tend to react badly to cold.
Best wishes

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Gentle Hugs
Lucinda

Fibromyalgia, Cervogenic/Disc Pain, Post Concussion Syndrome
(Mtbi), light sensitivity, misaligned knee cap, tibia tendon dysfunction, meniscus repair knee surgery (80% function), Esophagus Severe Pain, Anxiety and Depression History

livingyournewlifewithchronicpain.com

Synthroid, Norco, Diazepam, Fentynol Patch, PPI, H2 Blockers, CBD,

Plan for Well Living; Breath

Maybe my atrophied, weak muscles came on when my fibromyalgia was in its beginning stages.

I was having a lot of back pain from a work injury. I couldn't exercise, I couldn't be very active… Maybe that was the start for me.

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Fibromyalgia, CFS, MCS, scoliosis, herniated disks, spinal stenosis, osteoarthritis, sjorgens, sleep apnea, asthma, allergies, headaches. On a regiment of different supplements including sleep supplements. I eat nutritiously and do not eat foods I'm sensitive to and ever since a back injury triggered my fibromyalgia, I have been doing prescribed stretches twice daily.