I don't know if this information will help any of you but maybe, so here is my story. I was dx'd with fibro years ago along with degenerative disc disease and facet syndrome so pain is a common thing in my life. about
a year ago my pain went crazy. My pain management doctor prescribed narcotics but they didn't help even taking 30mg oxycontin every 8hrs and oxycodone 3xday for breakthrough pain. I would wake up at night unable to move my body was so stiff, I'd be crying out when trying to move. Mornings were the worst then things would be better for a few hours then by afternoon the pain would return and I would dread going to bed because I knew the night would be terrible again.
I finally put all of my symptoms in the computer and Polymyalgia Rheumatica came up. I took printouts into my PM doctor and I was started on 15mg prednisone and within 12 hrs I was feeling better. I am now seeing a rheumatologist. Along with the prednisone I am using tramadol & baclofen for pain and muscle spasms. I'm not pain free but much better than a year ago when the pain was so bad all I could think was that I couldn't go on living with the pain as bad as it was.
PMR is an auto-immune disease that occurs mostly in women and normally over the age of 50. Most will show elevated sed rates or ESR but 20% don't show any elevated inflammation. My blood tests have always been normal. I also had the flu-like symptoms, my left shoulder was extremely sore and my upper thighs hurt when trying to stoop or climb stairs. I had pretty much all the PMR symptoms.
PMR is not a common auto-immune disease but it is quite debilitating and the only thing to help the pain is steroids. There is no cure and will supposedly burn itself out in 1-5 yrs. Just have to wait and see.
I hope none of you have it but if you are not finding relief from pain killers then it may be a possiblility.
DDD, osteoarthritis, facet syndrome, fusion surgeries C-5/7 & L-4/5 both in 2006, torn meniscus surgeries left knee 2000 & 2002, buldging disc L-2/3, fibromyalgia, polymyalgia rheumatica