I posted this at the bottom of another posting, but meant to post it here! lol
You all have no idea how thankful I am to have found this website!
I was diagnosed with Fibro about a year ago. I have run the gammet on every med, procedure, blood test, etc.
I keep my happy face on most of the time...but I am just running on empty now. I am/was a very happy, outgoing person who loved life! I am now changing...I can see it, feel it, and others are starting to notice it. I am tired. Tired of being tired. Tired of being in pain. Tired of not being able to do what I want to do when I want to do it.
I have 2 children (9 & 12) who are obviously being affected by the changes taking place. They were once my whole world - I would do/did everything for them/with them. Now I struggle to make sure we try and do something 'special' every weekend. During the week, it's just too difficult. I work full time and commute an hour each way.
I don't know if my husband doesn't get it, or doesn't understand, or doesn't know what to do for me. He rarely says anything about it, but if asked, will do whatever I ask of him.
My friends and family are great. They are there for me, and force me to let them help me - although I too feel that guilt. They are the ones taking me to my doctor appts, etc.
This will hopefully be my only 'non happy' posting...I was just so happy to find you at a time when I really needed to just complain! lol
I feel that my pain in increasing and spreading to a new area each day. Now I have pain across my hips, up my entire back, to the back of my head. I have it down both sides of my neck and chest. I have it down both arms from shoulders to fingertips. And now I am getting migraines every other day.
Although it saddens me to know that you all suffer (or watch your loved one suffer), but I am relieved to know that I am not alone, that someone understands what I am saying, that someone believes me and that I finally have a place to go with all of this!
I have finally found a wonderful primary doctor that I love. We are trying everything, one thing at a time. After my original primary diagnosed me, he treated me for about 7 months - only to finally say that Fibro was not a real condition and that he could no longer treat me for it! HUH??? Really? But - you diagnosed me!!!
I have been through 4 rheumatologists, and have yet to find one with a bedside manner, who also does not talk about themselves the entire time after sitting in the waiting room for 3 hours to see them.
You name it - acupuncture, chiropractor, atlas treatments, novacaine injections, massage therapy, PT, savella, cymbalta, lyrica, gabapentin, all the anti inflammatories, pain meds, sleeping meds...sleep studies, MRIs, blood test after blood test...and everything I named was me asking for them, until I fould my current primary. It amazes me the disbelief in the medical field regarding this condition!
Sooo....thank you so much for letting me complain, and allowing me to vent in a safe place!
I hope the rest of my posts will bring smiles to all of you. Everything I have read so far tells me that this is a wonderfully supportive group of people!
Gentle hugs to everyone!