Hi Chrissie, welcome to the forum! Are you still awaiting a diagnosis? Fibro has many of the same symptoms of many of the autoimmune disease. Normally lots of bloodwork is done to eliminate the connective tissue dieases. Some of us have fibrro along with autoimmune disease...it can be frustrating waiting for the docs to sort it all out. I understand...it took a very long time to get my diagnosis. Hang in there don't give up...
We all tolerate meds so differantly, and it is trial and error for many of us to find what works best for us. For fibro I take Savella, use muscle relaxers as needed. Many of us were found to be Vitamin D deficient and required prescript
ion therapy to get our levels back into the normal range. Low levels add to achiness and fatigue. My rheumy recommended I also take 5000mcgs B-12 daily to help with fatigue and fog.
fibro pain can be excrucitaing at times, when I'm flaring, I describe it as bone crushing pain.
Heat is a fibromites friend, so is exercise, and doing what you can to distract pain. The motto here is... one day at a time. I have found you can still live a good life in spite of pain...the biggie is believing you can.
I hope you will be able to get your disability without going through another difficult time.
So glad you have joined us...feel free to comment , ask questions or vent. The members here are great...we do what we can to help one another...we do care!
I also have balance problems and am seeing a neurologist to see if I have something else in the mix.
PS forgot to tell you to make sure to check out fibro 101 ..top of pg. 1. sherrine has put together a wonderful resource for us...great info!
Fibromyalgia, MCTD (Lupus, Scleroderma & RA)
Raynaud's, Degenerative Disc Disease, Osteoarthritis,
Osteoporosis, Hypertension and Migraines
A new day, a new beginning :)
Post Edited (crazykitty) : 2/26/2011 7:39:02 PM (GMT-7)