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Wow, these med side effects are scaring me!

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Wow, these med side effects are scaring me!  
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Red_34
Forum Moderator
Joined : Apr 2004
Posts : 23578
Posted 3/17/2011 6:24 AM (GMT -7)
I will find out for sure if I have Fibro on April 4th but I was thinking about asking my doc to prescribe me something to help me get out of pain. After reading these posts about the med side effects, I am scared to even try some of them!

I have Ulcerative colitis and I am very sensitive to medications. I don't want a med that will make my Uc worse (I already have enough trouble with it) and I can't take codeine in any form as I am highly allergic. I tried Wellbutrin once quite a few years ago and I was a crying mess for the week that I took it. I was reading how some of these meds can raise bp. I already have an issue with my bp dropping dangerously low and the last thing I need is for a med to raise it considerably or even dropping it even lower.

Someone please tell me if the have ever used a med that doesn't increase bp nor cause intestinal problems?!
SHERRY
Moderator-Allergies/Asthma and Alzheimer's, Co-moderator-UC
~Left sided Uc-'92**Unable to tolerate ALL mesalamines**
Colazal(9 daily)/6mp(50mgs)/Bentyl-Prilosec~allergies-Singulair/Zyrtec~Reynauds~OA-Tylonel Arthritis~Scoliosis~Sacroilitis~Dry eye-Restasis~GAD-Klonopin (.25mgs)~Rosacea-Metrogel/Elidel
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Alcie
Veteran Member
Joined : Oct 2009
Posts : 5052
Posted 3/17/2011 6:56 AM (GMT -7)
I have all sorts of stomach problems and sensitivities to most meds - a whole typed page in small print. I tolerate TRAMADOL the best.

I can't take much of anything else for pain without taking Zofran for nausea, except Vicodin seems tolerable too. It just doesn't work well on fibro for me. It's the only thing I can take for surgical pain, so I save it for that.

All the so-called fibro meds gave me side effects that were awful or didn't work at all. I tried SSRIs, SNRIs, muscle relaxants, Cymbalta, Savella, Lyrica, and everything else I've ever heard of.
Alcie

 

 

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Red_34
Forum Moderator
Joined : Apr 2004
Posts : 23578
Posted 3/17/2011 7:41 AM (GMT -7)
The lowest possible dose of Tramadol cut in half makes me vomit, get the shakes, vertigo and tunnel vision...so that is a no go for me. Vicodin contains codeine - the last time I had Vicodin was for out patient surgery, I got rushed to the hospital by ambulance. They took Darvocet off the market, which was the only med that I could somewhat tolerate. I can not take anti-inflammatories because it causes me to bleed from my Uc. I can take Flexeril and I do sometimes takes those but they make me feel like a zombie. I was on Skelaxin for a short time and that seemed to work okay but I can not combine it with Neurontin or I just can't function. I tried that combo for about a month and I never got over the side effects.

If I have to, I can always start back on a low dose of Flexeril daily. I was taking 10mgs at night but that made me feel out of it so then my doc cut it in half and gave me 5mgs in the morning and 5mgs at night. It was a bit better but it still made me a little spacey.

When I was having nerve related pain due to a couple bulging discs my neuro wanted me to start on Lyrica but my insurance said that it wasn't approved for neuropathies but if I get a Fibro diagnosis, the insurance may cover it. But I don't know if I want to be on that either because of the side effects.

I'm just so confused!
SHERRY
Moderator-Allergies/Asthma and Alzheimer's, Co-moderator-UC
~Left sided Uc-'92**Unable to tolerate ALL mesalamines**
Colazal(9 daily)/6mp(50mgs)/Bentyl-Prilosec~allergies-Singulair/Zyrtec~Reynauds~OA-Tylonel Arthritis~Scoliosis~Sacroilitis~Dry eye-Restasis~GAD-Klonopin (.25mgs)~Rosacea-Metrogel/Elidel
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GSDgirl
Veteran Member
Joined : Mar 2010
Posts : 1286
Posted 3/17/2011 7:52 AM (GMT -7)
Sherry, I really hope you find something that works for you!! Soma works pretty well for me but a lot of docs don't want to prescribe it. Flexeril made me a zombie and hungover feeling and the soma doesn't. I have also tried all the "fibro" meds and none of them were acceptable to my system, side affects galore. Good Luck
~*~*~*~*Denise from Pittsburgh*~*~*~*~*
Hysterectomy, appendectomy, depression, anxiety, neck problems (not a surgical fix), Fibro, high BP, high cholesterol
Long lasting remnants (side effects) from Hepatitis C and it's treatment. The good thing is that I cleared the live virus in 2008.
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Red_34
Forum Moderator
Joined : Apr 2004
Posts : 23578
Posted 3/17/2011 7:54 AM (GMT -7)
What's wrong with Soma that docs don't like to prescribe it?
SHERRY
Moderator-Allergies/Asthma and Alzheimer's, Co-moderator-UC
~Left sided Uc-'92**Unable to tolerate ALL mesalamines**
Colazal(9 daily)/6mp(50mgs)/Bentyl-Prilosec~allergies-Singulair/Zyrtec~Reynauds~OA-Tylonel Arthritis~Scoliosis~Sacroilitis~Dry eye-Restasis~GAD-Klonopin (.25mgs)~Rosacea-Metrogel/Elidel
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GSDgirl
Veteran Member
Joined : Mar 2010
Posts : 1286
Posted 3/17/2011 7:58 AM (GMT -7)
They say it is addicting but honestly, I have taken it off and on for about 10 years and never had the addictive "need" for it or withdrawl when I don't take it.  I don't really know what the main problem is, maybe someone else knows better.
~*~*~*~*Denise from Pittsburgh*~*~*~*~*
Hysterectomy, appendectomy, depression, anxiety, neck problems (not a surgical fix), Fibro, high BP, high cholesterol
Long lasting remnants (side effects) from Hepatitis C and it's treatment. The good thing is that I cleared the live virus in 2008.
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vestabula
Veteran Member
Joined : Nov 2008
Posts : 2859
Posted 3/17/2011 8:21 AM (GMT -7)
Some people have had great success with prescription drugs but I am not one of them.  I was on Lexapro and Valium.  The initial side effects were hellacious but I duked it out.  I was not instructed on how to wean properly (they did nothing for my pain so I decided to go off) and am still reeling from withdrawals.  Not everyone will suffer the way I have...thankfully some get relief from SSRI/SNRI's benzo's and narcotics.  The problem with them is that they stop working and you have to updose or switch to another drug and begin dealing with the 'start up' effects all over again.  Benzo's (valium, ativan, xanax, klonopin) are now under intensive scrutiny here in the states (are banned in parts of Europe) as they are highly addictive and take forever to get out of your system...unlike SSRI's the drug attaches to every cell in your body.  I have a friend who went to her doctor to fill her klonopin Rx and was told 'We are no longer prescribing benzo's for long term use'.  She went into the worst withdrawals and  lost her job.  The same thing is happening with narcotics.  I just read that they may pull percocet and vicodin off the market.  So...what are we all to do???

I personally will take whatever fibro throws in my face compared to what these drugs have done to me.  They have killed my spirit.  I will never ever take another drug in that class....EVER.  I gimp along with Advil and Tylenol...hot baths and a heating pad.

For those of you who read this and have found relief from the drugs I mentioned, please do not be offended.  This is just my opinion and experience.  We all know by now that everyone reacts differently.

Donna

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MsBunky
Veteran Member
Joined : Jan 2010
Posts : 1097
Posted 3/17/2011 8:38 AM (GMT -7)
I have been on various meds for pain and Fibro, with varying results. Currently, I take extended relief Oxycontin (40mg 2Xday), Tramadol Extended Relief (100mg 2Xday), and Tramacet for break-through pain. I'm also on Cymbalta, Flexeril and Cesamet.

The worst side effects were in the first week for me. I had horrid nausea when I started Cymbalta, but after about 3 days, it completely disappeared. I do get some dizziness with these different meds, and I almost always suffer from dry mouth and mild constipation. Overall, the side effects have either disappeared completely or are mild enough to handle, but it did take going through hell to get to this point.

hugs to all,
Pam
DX: Fibromyalgia, Severe Myofascial Pain, Chronic Pelvic Pain, Surgical Adhesions, IBS, IC-PBS, Carpal Tunnel (both wrists), FAI, Type 2 Diabetes, Reynauds, Visual Migraines, Drug Related Hot Flashes, Hard Start for IV's, Unable to vomit due to surgery.

Meds: Oxycontin, Tramadol, Tramacet, Cymbalta, Cesamet, Flexeril + Vitamin D + Multi daily
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Sherrine
Forum Moderator
Joined : Apr 2005
Posts : 18047
Posted 3/17/2011 10:06 AM (GMT -7)
Sherry, have you tried the anti-inflammatories?  Did they cause bleeding?  The reason I'm asking is I have Crohn's and take ibuprofen, but always with food, and I'm not having a problem at all.  My doctor has me taking Prilosec because it helps protect the stomach from ibuprofen 70% of the time, too.  I have to watch the entire digestive tract but have done fine for 24 years.  But, if it makes you bleed, stay clear of it. 

 

I also take extra strength Tylenol...no more than 4,000 mg a day.  That's the highest safe amount.  I have had liver panels twice a year and my liver is fine so this doesn't bother me, either.

 

You might try the malic acid/magnesium supplements I talked about in Fibro 101.  These have helped me with control of the pain.  That and vitamin D3, since I was deficient in that, too. 

 

I'm dealing with fibro without the medications and narcotics that are commonly given out.  Some of the meds they are giving out are used for seizures.  I really don't want to fool around with the brain chemicals.  That's just my opinion.  I don't suffer from depression.  Many do and do need to take the SSRI's but I haven't and won't.  As far as the narcotics go, my doctor talked to me about them and said that you take the narcotic and your body will become accustomed to it so then  you need more to get the same relief.  This can lead to addiction so I don't want to go there, either.  The only time I have been pain free in 24 years was when I was hospitalized and they put me on morphine.  That was heaven!  :-)    

 

I don't take anything except what I mentioned above for my fibro and have done well.  I do a lot of stretching and gentle exercise.  I keep a positive outlook on my life and I meet challanges, too.  I just did my yard clean up and spread 99 bags of mulch...by myself!  Now THAT was a challange if I ever saw one.  But I paced myself over several weeks and accomplished it.  Pacing yourself will help you so much.  This allows you to do what you used to but in a different time frame.  It all gets done eventually. 

 

Also, gentle massages help me.  I chose my MT because she was in an organization that makes them continue to take classes on how to massage people with various health issues.  There are different techniques with different illnesses.  Here is the link to see if  you have someone in this organization that is close to you...just in case you are interested.

 

http://www.amtamassage.org/findamassage/index.html?utm_source=%2Ffindamassage%2Flocator.aspx&utm_medium=web&utm_campaign=redirect

So, this is what I have done to keep the pain at bay.  I always have pain but I'm so accustomed to it now that it's just a part of my life.  I felt I had to, too, because of the Crohn's disease.  UC is so similar and has many of the same issues so we both know we have to be careful.  I, too, am sensitive to medications.  A little goes a long way for me.  So, I hope this might help you and you don't have to start on other meds.  If not, you will find the right combination that will help you.  Just work closely with  your doctor, which I know you will do, and you will be just fine.  As I said before,  you can have a good life in spite of this illness!

 

Let us know what you end up doing because we really do care about you.

 

Sherrine

 


Forum Moderator/Fibromyalgia
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7
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Red_34
Forum Moderator
Joined : Apr 2004
Posts : 23578
Posted 3/17/2011 10:09 AM (GMT -7)
Ah if only I could take Advil! lol Actually I did take two yesterday but that was a big big mistake. I was in soooo much pain yesterday that I had to do something. I am paying for it today with my Uc BUT I am feeling much better pain wise today. I think we had a weather front coming in which is why I was so darn achy! They use Klonopin to help aid in Fibro? I take Klonopin but only when absolutely needed. I have had one prescription (30) pills last me 6 months so far.

Pam, I am glad you finally found something to work for you. I noticed in your sig you have Raynaud's. How long have you had that? Do you take anything for it?
SHERRY
Moderator-Allergies/Asthma and Alzheimer's, Co-moderator-UC
~Left sided Uc-'92**Unable to tolerate ALL mesalamines**
Colazal(9 daily)/6mp(50mgs)/Bentyl-Prilosec~allergies-Singulair/Zyrtec~Reynauds~OA-Tylonel Arthritis~Scoliosis~Sacroilitis~Dry eye-Restasis~GAD-Klonopin (.25mgs)~Rosacea-Metrogel/Elidel
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Red_34
Forum Moderator
Joined : Apr 2004
Posts : 23578
Posted 3/17/2011 10:12 AM (GMT -7)
Sherrine, yes I have tried Ibuprofen off and on thru the years. Almost instant problems, including bleeding. And I've been on Prilosec for 5 years due to acid reflux. I was taking Celebrex on occasion as well but I had to stop that after going into a severe Uc flare. I can take Aleve once in a while and do fine. But more then 3 times a week is sort of pushing it.
SHERRY
Moderator-Allergies/Asthma and Alzheimer's, Co-moderator-UC
~Left sided Uc-'92**Unable to tolerate ALL mesalamines**
Colazal(9 daily)/6mp(50mgs)/Bentyl-Prilosec~allergies-Singulair/Zyrtec~Reynauds~OA-Tylonel Arthritis~Scoliosis~Sacroilitis~Dry eye-Restasis~GAD-Klonopin (.25mgs)~Rosacea-Metrogel/Elidel
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Sherrine
Forum Moderator
Joined : Apr 2005
Posts : 18047
Posted 3/17/2011 10:22 AM (GMT -7)
That's too bad.  But, you will find something that will help you be in control of the pain.  Sometimes, even though I'm taking the ibuprofen and Tylenol, I'm still in a lot of pain.  My doctor did give me Vicodin for breakthrough pain but I've never taken one.  They are in my medicine cabinet for peace of mind only!  tongue

 

You will find that fibro waxes and wanes.  You can be miserable and then feel so much better the next day...or even the same day sometimes.  I just wait it out.  When I'm having a really bad day, I still do my stretches and my walk but then I spend more time on the computer on the forum or doing genealogy.  I'm glad you are feeling better today!

 

Sherrine


Forum Moderator/Fibromyalgia
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7
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DebOuch
New Member
Joined : Mar 2011
Posts : 1
Posted 3/18/2011 12:04 PM (GMT -7)
I was diagnosed with Fibromyalgia in November and it has just gotten worse over tha past several months. The doctor prescribed Nerontin and Savella, but these are not helping my symptoms. From my research on the subject, it appears I have all the normal symptoms with pain from a low ouch to the high omg just put me out of my misery. I am attempting to work a full time job which takes more than I have and find I have no life left other than the fibro. While pain medications may be highly addictive, I have to do something. Depression is setting in and I take Seroquel and Ativan for bipolar to help. The related IBS alone makes it difficult to maintain my job, can I make it to the bathroom? I am seeing an new Rheumitologist on Wednesday, does anyone have any suggestions on how to make him feel the pain I feel and give me some relief. I have disability available from my job, but my last doctor said there is no problem with fibro and holding down this 10 hour a day job plus a 45 minute drive each way....I am having difficulty typing with the pain and holding thoughts is sometimes extremely difficult....Is there anyone out here to hear this, do you feel this, how can you keep going????
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Sherrine
Forum Moderator
Joined : Apr 2005
Posts : 18047
Posted 3/18/2011 12:35 PM (GMT -7)
Hi, Deb, and welcome!  I'm glad you found us and joined in.  I would keep a journal of how you feel when  you are doing things...for example you mentioned the pain when typing.  You can rate the pain and that will help your doctor understand better.

 

Be sure to check out Fibro 101...the first thread on the forum.  There are links to good info about fibro and you will learn a lot.  In there, there is a link called Pain Charts and Pain Journal.  You can print out these charts and the journal to help you.  The pain charts thoroughly help in explaining the pain you are feeling at any particular moment.  They use charts like these in the hospitals across our nation.  This will help you.

 

I'm looking forward to getting to know you better.  Don't hesitate to ask questions because we are here to help you.  Hope to hear more from you soon.

 

Sherrine


Forum Moderator/Fibromyalgia
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7
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mscrowbar
Veteran Member
Joined : Nov 2010
Posts : 877
Posted 3/18/2011 12:50 PM (GMT -7)
Debouch, I hear you and I feel your pain. I too live with fibro and hold a full time job. I usually start the day out well and slowly as the day progresses so do the aches and pains.

I think you will get more responses if you open a new post and title it "new with questions" or something catchy like that. Maybe one of the moderators will come along and move this one for you so you wont have to retype everything.

Anyway, Welcome...hope to hear more from you.
Denita
***************************************

Fibromyalgia. Arthritis/bursitis/meniscus tears in both knees.
Cancer survivor
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FibroNana
Regular Member
Joined : Sep 2010
Posts : 194
Posted 3/18/2011 2:04 PM (GMT -7)
Hi Deb,

I worked or should I say pushed my way through work for over 2 years..I was blessed in that my rhuemy started following me from the beginning and she knew when I had reached my breaking point. I agree 100% with Sherrine, keep a journal and document everything, This started for me in 08/08 finally got the dx in 06/10. I have been unalbe to return to work and like you I was blessed again that my company had disability ins. and I had enrolled. Thank You Lord!!  I was on short term, then approved for long term and now am working with an advocate in filing for SS benefits. Before June of last year, I would work and most days just come home and sleep. I wish you well and again like Sherrine said this is an awesome place to ask questions and just vent if you need too..I am so thankful for this forum. 

Hang in there and listen to your body,

Gentle hugs,

Jerrie/Fibronana

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Jeannie143
Veteran Member
Joined : Apr 2004
Posts : 6056
Posted 3/18/2011 2:27 PM (GMT -7)
sherry,
my only fibro med is generic prozac. the rest of the stuff I take is malic acid and magnesium for my fibro. Wish you didn't have to do this with us...
~ Jeannie
Moderator for Fibromyalgia and Diabetes

Into each life a little rain must fall... followed by large hail and damaging winds!
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