Fibro and tendonitis...and a Recision of my Diagnosis

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FibroProf
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Date Joined Feb 2011
Total Posts : 23
   Posted 4/17/2011 12:23 PM (GMT -6)   
I have read Fibro 101 and many posts. I have a question: How many of you have experienced tendonitis all over? i am dealing with tendonitis in my: achilles, elbows, rotator cuff, and knees! I went to the doctor who originally diagnosed me with Fibro, and he said: "Uh oh, that does not sound like fibro. Then he sent me for an EMG." Anyway, I am awaiting the results. Any of you have LOTS of tendonitis? If so, what helps? Thanks as usual...this board has been a lifesaver!

sotiredoffibro
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Date Joined May 2010
Total Posts : 1556
   Posted 4/17/2011 12:38 PM (GMT -6)   
Hi Fibro, I have had tendonitis when I was working but it was only in my wrists. Hopefully they get this figured out soon.

Gentle Hugs
Shirley

When I get where Im going dont cry for me down here. (Brad Paisley & Dolly Parton)

NotSoCrazyAfterall
Regular Member


Date Joined Mar 2011
Total Posts : 91
   Posted 4/17/2011 1:09 PM (GMT -6)   
Yes, I have a ton of tendonitis. And ligament trouble. At the moment, my achilles are settled down but oh they can get nasty. It's amazing anything can hurt that much, isn't it? I've also been told by a physical therapist I have hypermobility in my joints and spine - don't know if that has anything to do with the tendon problem. There are times where I can feel every tendon and ligament in my body which sounds like what you are saying. Do you get where you can feel your, say, shoulder apparatus? Like all the tendons/ligs that make the whole thing work?

That is really interesting what your doc said and I'm certainly curious about that test you had and what the results will be. Will you please share the results? I've never had that test so I guess I better look it up.
"Does it really hurt that much?" Uh...yeah!

FibroProf
Regular Member


Date Joined Feb 2011
Total Posts : 23
   Posted 4/17/2011 2:56 PM (GMT -6)   
Yes, I will let you know the test result. Apparently it can help a doctor diagnose MS or other neuromuscular condition. My tendons everywhere hurt...but I do feel my shoulder apparatus, and my knees are really bad right now. Won't get the results of my EMG for another two weeks, but I certainly will share! FibroProf

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 5028
   Posted 4/17/2011 9:17 PM (GMT -6)   
There's no reason you can't have fibro AND another problem, or lots of other problems. Fibro is well known to go along with lupus, and other conditions.
Alcie
 
 

Ragdoll05
New Member


Date Joined Feb 2011
Total Posts : 19
   Posted 4/18/2011 6:03 AM (GMT -6)   
I also have hypermobility of the knees and wrists. I can throw a knee or wrist out fairly easily if i am in a fibro flare. After doing a lot of digging around with search engines online I found that it is just another one of the many myriad symptoms of fibro and since fibro has a spectrum of symptoms not every one has every symptom. My mother was diagnosed with tendinitis by a family doctor who had no knowledge of fibro when her hands began to painfully buzz 24/7. For the last 20 years of her life she had the numb hands and no relief from the pain. She never saw a Rheumatologist. It makes sense to me that fibro and a type of tendinitis would both occur in ones body. It will be interesting to hear what your tests show.
"I'm lost. I've gone to look for myself. If I should return before I
get back, please ask me to wait."
author unknown

Fibro, CFS, lifetime wheat allergy, possible Sleep Apnea (no formal diagnosis), HBP

nana68
Regular Member


Date Joined Mar 2011
Total Posts : 474
   Posted 4/18/2011 2:40 PM (GMT -6)   
idea  I have tendinitis all over,rheumatologist is calling it fibromyalgia because all my blood tests come back negative even for arthritis.I also get sore tounge and throat which is more than irritating on a daily basis lately.I myself think it has something to do with the drug levaquin,I have taken it in the past and last summer I had it in my iv while in the hospital for a long period of time.It would be interesting to find out how many people who are diagnosed with fibromyalgia have taken levaquin or cipro.

TeresaR
Regular Member


Date Joined May 2011
Total Posts : 54
   Posted 5/25/2011 6:18 AM (GMT -6)   
I got tendinitis last month in both wrists and I was barely typing on the computer compared to normal, so yes, I understand that completely. Actually, it was the doctor I saw for that who pushed me to get the official fibro diagnosis. It was the first question he asked me - had I ever been diagnosed with fibro.

tjoceans
New Member


Date Joined Jan 2013
Total Posts : 3
   Posted 1/12/2013 6:01 PM (GMT -6)   
Interesting that some of you are talking about prescription medications being the cause of tendinitis/fibromyalgia. I was told that because I did not have this until after major surgery to remove a tumor from my abdomen that the surgery may have triggered it. The doctor who diagnosed me with fibro said that if that is the case, then it will be more easily treated or cured. I will have to dig into my medical records to see exactly how many meds I have been put on in the past and see if any of what I have now is a side effect of those drugs. When I was diagnosed with fibro (FM), I was diagnosed by a doctor who specialized in it, he checked for all the nodes on the body that are signs of symptoms of FM, which I had on every point. I had gone in with a major flair where I had to stand and walk and stretch my muscles and joints. I rubbed my entire body continuously. I could not sit in the room and relax. That day I saw another guy doing the same. I asked him what was the matter and he said in a frightened tone that he did not know. What a strange symptom to crop up on people. Anyway, I have found that walking meditation and stretching relieves what feels like nerve pain than taking a lot of prescribed medications, and the more exercise the better, even though I fight through the pain, I may not get much stronger, but I have less pain than I would if I were not exercising. I was looking today for info on whether fibro is same as tendinitis and has been misdiagnosed, temporal headaches come along with mine, and sometimes make me so hazy I can barely concentrate, and that is before I have to take something. I take 25 mg of Tramadol, if I have to, which is maybe twice a year. Today I had to take it because I was cleaning the house so thoroughly and moving furniture. I also have other diagnoses: one kidney, ADD/ADHD, and Bipolar Disorder. I take Seroquel (mood stabilizer and anti-psychotic) by the way Marijuana alone has been known to treat all these symptoms, Lamictal (mood stabilizer), Adderall for ADD/ADHD, Clonazepam prn for anxiety, and Propranolol prn for panic attacks or heart beats that feel like my chest is going to explode. I also have Rosacea, (which I was diagnosed with as a baby) on my cheeks, nose, chin, and forehead that I take Eucerin for. I been also taking many enzymes and that has helped Rosacea and tummy and digestive problems. I have also been taking Progesterone, which ladies, is good for women over 40, (although I am 35) for what our body loses in hormones, and also helps me breathe better (I don't know why). Symptoms are alleviated, not cured. All of these symptoms may still be there, but not as strong as they could be.

So many things to do, and can't do them today because of pain and tiredness also from Tramadol, and a lot of haziness.

When are we going to get everything that doctors put in our medical records over the internet? That would be awesome. It would be nice to see what sort of things they think are wrong and whether or not the manipulate the truth, without asking us or asking the right questions.

It might be more helpful if we all described our meds and symptoms and illnesses, etc. Maybe we can collectively come to some conclusions.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 1/12/2013 6:14 PM (GMT -6)   
***Please take out the mention of illegal drug use in your post. (use the pencil icon in your window) We have children who read this site.

Sorry you're in such misery. Are you sure the Roseca is roseca? Sometime the Lupus rash is mistaken for roseca. Wiith roseca you can see swollen capillaries. With lupus rash you're just bright red and sometimes you have acne like bumps that fade within a day.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

tjoceans
New Member


Date Joined Jan 2013
Total Posts : 3
   Posted 1/12/2013 6:17 PM (GMT -6)   
Oops! I should have mentioned heat helps FM, like heating pads, or heating blankets, Jacuzzi works miracles as long as you don't do ANYTHING strenuous afterwards.

tjoceans
New Member


Date Joined Jan 2013
Total Posts : 3
   Posted 1/12/2013 6:23 PM (GMT -6)   
Oops! I should have mentioned heat helps FM, like heating pads, or heating blankets, Jacuzzi works miracles as long as you don't do ANYTHING strenuous afterwards.

Oh! I'm sorry. I didn't know there were children reading this site. I sincerely apologize. I would never suggest anything like that to a child.

I get the capillaries just on the outside of the inside of my nose. I have some tiny dots on the tip of my nose, but otherwise I just get red, and more so when I have digestion problems or I have been around harsh chemicals like cleaning solutions. I always thought it was allergies; I mentioned to my mother that I thought I had Rosacea, and she remembered I was diagnosed with it as a baby by a doctor she took me to, because she thought I had the mumps.

I know we learn more and more about our bodies, nothing is in stone. I think it is Rosacea, I don't get the acne that fades.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 1/12/2013 8:53 PM (GMT -6)   
Get an ANA blood test with titers. It will rule out autoimmune diseases.

I don't think it's rosacea. Sounds more like a butterfly rash from lupus.
Did you have problems as a child too?
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 1/12/2013 10:43 PM (GMT -6)   
My Rheumy and PC kept saying tendonitis when my wrist and elbow kept hurting something terrible. Finally the Rheumy decided it was fibro.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

evenkeel
Regular Member


Date Joined Apr 2011
Total Posts : 312
   Posted 1/14/2013 12:30 PM (GMT -6)   
Yep, my first diagnosis was "widespread tendonitis" because I had to have a dx for FMLA at work. Even though the meds I'm on control the vast majority of my pain, my Achille's tendons still bother me a lot and I have what is pretty much chronic fasciitis. My knees also act up, but I've had ligament damage in both knees (one torn and one sprained). My elbows hurt a lot and are really tender when I flare, but since all of my blood tests have always been normal they still blame that on tendonitis and fibro.

Rosacea can look a lot like the lupus butterfly rash, but a doctor should be able to tell the difference between them. Rosacea runs in my family and my doc has said that it looks like I currently have a mild case. He was concerned about it being a lupus rash at first.
Fibro, chronic fasciitis/metatarsalgia, SVT, mild structural heart issues, total hysterectomy 6/2011. Meds: multivitamin, vitamin supplement, loratadine, 50mg tramadol + 1000mg acetaminophen, 100mg metoprolol, 600 mg gabapentin 3x/day, 4 mg tizanidine at bedtime for muscle pain/sleep issues as needed, 150 mg imipramine, 300 mg ranitidine, furosemide for finger swelling.

PlanetPain
New Member


Date Joined Jan 2013
Total Posts : 3
   Posted 1/18/2013 3:45 PM (GMT -6)   
Yes, I have widespread tendinitis all over. It was seen on MRI in both shoulders. An MRI also showed it in my elbow along w/ a torn tendon. I have it in my hips too, but have never had an MRI of my hips. It feel like tendinitis everywhere. See my post called "It's not always Fibro." I really don't believe I have fibromyalgia, but have lots and lots of document issues all over the place. The docs don't know what to do to me. It is too much and they just glaze over and call it fibromyalgia. So frustrating.

bluejeans
Regular Member


Date Joined Dec 2012
Total Posts : 269
   Posted 1/18/2013 4:06 PM (GMT -6)   
Does anyone have pain at the ankle up the nside of both legs to the knees. My does this fairly often aqnd I wonder what causes it. Heat helps it. One Dr. says it comes from my back, the other says Lupus causes it.
Post lymphoma,Spleenectomy, Lupus, Sjorgrens, RA , Fibromyalgia, GERD, short bowel syndrome, scolisis, arthritis of spine, spondylosis, splondylesis, DDD,DJD

Faith in God, the love of my family and a good attitude keeps me going.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 1/18/2013 4:10 PM (GMT -6)   
I know my ankles and knees hurt when they bump each other.
Joy
Lupus, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Degenerative Disk and Facet Disease, and Allergies

When life throws you lemons....
Pick them up and throw them right back at them! :))

Noutie
New Member


Date Joined Aug 2013
Total Posts : 1
   Posted 8/22/2013 3:45 PM (GMT -6)   
tjoceans said...
Oops! I should have mentioned heat helps FM, like heating pads, or heating blankets, Jacuzzi works miracles as long as you don't do ANYTHING strenuous afterwards.

Oh! I'm sorry. I didn't know there were children reading this site. I sincerely apologize. I would never suggest anything like that to a child.

I get the capillaries just on the outside of the inside of my nose. I have some tiny dots on the tip of my nose, but otherwise I just get red, and more so when I have digestion problems or I have been around harsh chemicals like cleaning solutions. I always thought it was allergies; I mentioned to my mother that I thought I had Rosacea, and she remembered I was diagnosed with it as a baby by a doctor she took me to, because she thought I had the mumps.

I know we learn more and more about our bodies, nothing is in stone. I think it is Rosacea, I don't get the acne that fades.

____

I have just finished reading A TON on celiac disease and non-celiac gluten sensitivity. I would get tested for this if you can, it's also an auto-immune disease. Insist!

liz574
Regular Member


Date Joined May 2013
Total Posts : 186
   Posted 8/22/2013 7:53 PM (GMT -6)   
Fibro, I have that type of pain in my arms, ankles, and even some fingers and toes...and the EMG and brain MRI were normal. So it doesn't have to be related to a more serious illness.

Here's something different: The massage therapist I saw today told me her mom has Fibromyalgia but she started developing all kinds of tendonitis and joint pain all of a sudden and it turned out to be related to a broken tooth and poor dental hygiene! Once she got it fixed, her symptoms returned to the normal FMS-type, which she manages well without medication.

Her doctor told her that even the smallest amount of bacteria getting into your bloodstream, if left untreated for a long time, can cause inflammation and it also affects your heart and circulation. What surprised me was that joint and tendon pain were symptoms of this. Weird. huh?

I'm gonna look into it myself since I have a molar that needs a crown.

Ladybug56
New Member


Date Joined Aug 2014
Total Posts : 4
   Posted 8/5/2014 11:12 AM (GMT -6)   
I've had fibromyaliga for appox. 20 years, diagnosed around 12 years ago. It's gradually gotten worse over the years but especially this past year or so. about 6 months ago I woke up and couldn't turn my right leg more than halfway out to the side without pain in my hip which went down my leg. I thought I'd pulled something and it would go away, long story short my doctor tried me on several anti-inflammatories which didn't touch it. Then physical therapy; made it worse. I thought with time maybe it would go away. So then about 6 week ago one day I'm fine, next morning I wake up to extreme pain in my left shoulder going down to my elbow. I hadn't done anything at all to cause it. It was bad enough to wake me up at night, throbbed all day, etc. This time my doctor tried me on a predisone pac, it took the pain level down just a touch. Although as of right now it still hurts like hell just to lift it out to my side. I've never broken a bone but I swear it feels like a broken bone in there! He decided have blood tests done to check for rheumatiod arthritis, and other inflammatory diseases, etc. to explain why this kept happening. Well what a surprise, they all came up negative for any kind of inflammatories. It makes me feel like I'm going crazy or am in the Twilight Zone, to people who don't have fibro there's no way to explain what you go through each day so you don't even try. I read in an article earlier that even though fibromyaligia is the inflammation of the tendons and joints since it isn't an "itis" disease it won't show up on an xray as inflammation. So I guess that would explain feeling why you feel like everything is inflamed? I don't know, it's frustrating.

Ljm2014
Veteran Member


Date Joined May 2014
Total Posts : 2228
   Posted 8/5/2014 1:55 PM (GMT -6)   
I often had tedonitis along with the other fibro symptoms...i also get bursitis at times..achilles tendonitis was one of the worse.. And i still often use a topical pain reliever on those tendons...but with the topicals and some use of tramadol..as well as stretching and light yoga...these stay manageable

bwfm
Regular Member


Date Joined Apr 2010
Total Posts : 442
   Posted 8/5/2014 9:26 PM (GMT -6)   
There are lawsuits against sulfa drugs for causing tendinitis.

I have rosacea and it was diagnosed by a punch biopsy. The theory that I may have had lupus had been thrown around for so many years that I wanted a definitive diagnosis. The scar is only noticeable if you're looking for it. My ANAs have never been high enough to be diagnosed with lupus, even though I have some of the symptoms, but apparently no organ damage or it would show up on tests.

I also have ocular rosacea and have had blepharitis three times.

I hope you can find some relief.

ak angel
Veteran Member


Date Joined Apr 2011
Total Posts : 3197
   Posted 8/6/2014 12:22 AM (GMT -6)   
Fibro prof - don't be surprised if your EMG comes back normal. I have known many people including myself have normal results. I use to get Tendonitis easily when I worked. It still can be set off real easily. Prednisone really helped the Tendonitis. My feet feel like I have constant Tendonitis. Mine flared up in my arms just because I was holding tight to an exercise equipment. It's common in fibromites.

riley_zzz
New Member


Date Joined Feb 2016
Total Posts : 5
   Posted 2/15/2016 3:54 PM (GMT -6)   
Have any of you heard of Ehlers-Danlos? It is often misdiagnosed as fibro and causes hypermobility and the worst kinds of tendon pain! But getting diagnosed is a huge pain (ha). One of my best friends was recently diagnosed after many years of mystery and misery.

thanks for the tips on tendonitis all over!
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