Really? No Pain?

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MT Lady
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Date Joined Jul 2008
Total Posts : 969
   Posted 5/11/2011 7:22 AM (GMT -6)   
I went for an epidural yesterday, to Pain Management, an anesthesiologist for my lower back that has been awful for years - can't even tell you how long, as long as I can remember. Pain meds that I take do not take the pain away, only lessen it a bit. After a complete history and then a little discussion, she decides to do the epidural, which normally takes less than 10 minutes. I go into the procedure room, oh and she does it fluouroscopically, so that it is a lot more accurate. The others I have had, which total 6 or 8, don't remember, were never done under x-ray. Long story short, ONE HOUR LATER, I emerge from the procedure room and I was a mess. The pain was unbearable. She told me it is because I've been taking narcotics for so long for all the pain, that my body has stopped producing hormones or chemicals to stop pain. All I know is I saw stars. The reason it took so long was she kept stopping and giving me more numbing agent. She    was truly wonderful, very patient, very, very good.
Bottom line: I woke this morning to NO PAIN in my lower back, for the first time in years and years! I don't know how long this will last, but I am headed out the door for a pain free walk (God willing). I have been up now for 40 minutes and have yet to take any kind of pain med...this has not happened in 22 years!
Just had to share,
Miriam

Sherrine
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Date Joined Apr 2005
Total Posts : 17895
   Posted 5/11/2011 7:55 AM (GMT -6)   
FANTASTIC!!!!!!  I'll be praying that this is "forever"!
 
Sherrine
Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

crazykitty
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Date Joined Jul 2009
Total Posts : 4796
   Posted 5/11/2011 9:16 AM (GMT -6)   
Miriam, that is wonderful news!!! Like Sherrine said, "I'll be praying that this is "forever"!"

Hugs, Robin
Fibromyalgia, Heart Disease, Pulmonary Hypertension,
MCTD (Lupus, Scleroderma and RA)
Raynaud's, Degenerative Disc Disease, Osteoarthritis,
Osteoporosis, Hypertension and Migraines
"Where there is a will, there is a way"

Acheybody
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Date Joined Nov 2008
Total Posts : 6005
   Posted 5/11/2011 9:43 AM (GMT -6)   
Great, Miriam! I hope the same. How wonderful for you...

Debbie
...fibromyalgia, hashimoto's thyroiditis, hearing loss, elevated liver enzymes, skin grafting (back), arthritis, scoliosis, lumbar disc damage, sciatica, IBS, migraines, tachycardia, cancer surgeries (face).......daily Nortriptyline, Levothyroxine, & Clonopin, and Tramadol and Midrin as needed

grandmaroses
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Date Joined Jan 2011
Total Posts : 1355
   Posted 5/11/2011 10:10 AM (GMT -6)   
Wonderful Mariam!!
Take care
Rose



Insulin Dependant Diabetic, Fibromyalgia, Gerd, IBS, Sleep Apnea, COPD, Spondylolistesis, Diabetic Neuropathy, Fatty Liver, High Cholesterol

MT Lady
Veteran Member


Date Joined Jul 2008
Total Posts : 969
   Posted 5/11/2011 11:44 AM (GMT -6)   
Thanks everyone...it was short lived...three hours after I got up, decided to take a walk, which I was told to do..."walk, walk, walk" was the doctor's quote. Got to the end of the block and the pain came back...not as severe, but there, and so I turned back home. I'm alone during the day and so I was afraid to go too far...Oh well...I am hopeful that it will get better. She told me it can take up to two weeks to take effect...fingers crossed,
Miriam
Fibromyalgia, Osteoarthritis, scoliosis, back problems, hypothyroidism.

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 5029
   Posted 5/11/2011 1:05 PM (GMT -6)   
You had a nice effect from the local anesthesia, but the steroid has not had time to kick in yet. Keep it iced for the first 2 days, and don't do too much. Walking is for later in my experience. It can take a week for the injection to help, but you usually know if they got the right spot within 3 - 4 days. These things are rarely permanent, but my first one, an epidural at L5/S1 lasted most of a year. I thought they were pretty much always done under fluroscopy nowdays, as standard care.

I have not had much luck with facet joint injections. My last injection was a caudal, right in the tailbone, and it stopped pain in my legs and the lowest part of my back immediately. It's lasting so far, but I'm only a few weeks out. I still have a few zinger needle-like stabs in the feet, but nothing like before! Caudal is supposed to be the easiest to do, hits a bunch of nerves that run down into the legs and feet. It hurts right at the tip of the spine for a week, but seems so far to get rid of the horrible pain. An ice bag with padding is very helpful. You can get good ones that can go right next to the skin and hold about a quart from a medical supply or ask your pharmacist to order one.

I had muscle spasms right next to the spine that were injected with amazing results also. I didn't think it would work, but it broke the cycle and allowed me to stop diazepam (which is a great muscle relaxant).
Alcie
 
 

donnaeil
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Date Joined Jun 2006
Total Posts : 1156
   Posted 5/12/2011 2:08 AM (GMT -6)   
I am very happy for you. Don't start tap dancing yet, give it a couple of weeks. lol

A'int pain relief grand?

Donnaeil

MT Lady
Veteran Member


Date Joined Jul 2008
Total Posts : 969
   Posted 5/12/2011 11:12 AM (GMT -6)   
Thanks everyone.
Yesterday, I took 20% less pain meds than I have in years. Today, I waited to take any pain med until FOUR hours after I got out of bed, which is just unheard of in my life. That is the first thing I do, go for the pain med. Besides being nearly euphoric, it also gives me a wonderful feeling to know I am not just taking the medication out of dependancy, which has been suggested by a few doctors in the past. You begin to question yourself, you know? I know I am not addicted, because I have never taken more than what has been prescribed to me. But after today, seeing that I can get up and not reach for the pain meds, I know I was taking it for the pain, and no other reason. My fibro must be "in hiding" right now, no major flares, thank goodness. It's been my back pain that has been so awful. I realize this isn't a permanent fix, but if it continues to work this well, then I am willing to go through the discomfort of the injections every few months, if they will continue to give them to me.
fingers crossed!!
Miriam
Fibromyalgia, Osteoarthritis, scoliosis, back problems, hypothyroidism.

NotSoCrazyAfterall
Regular Member


Date Joined Mar 2011
Total Posts : 91
   Posted 5/12/2011 11:36 AM (GMT -6)   
Yea for you!!! And it has been studied and proven people who take narcotics or other medications for pain are NOT addicted. When the pain is less or gone, we naturally don't take it because we don't need it. This is just awesome for you :)
"Does it really hurt that much?" Uh...yeah!

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17895
   Posted 5/12/2011 12:32 PM (GMT -6)   
But your body can become dependent on it and, if you don't need it anymore, you still need to be weaned off the medication or you will have withdrawl symptoms. 
 
Sherrine
Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

MT Lady
Veteran Member


Date Joined Jul 2008
Total Posts : 969
   Posted 5/12/2011 2:18 PM (GMT -6)   
I would love some input from anyone willing to share. about a month ago, I went to see my rheumy. We talked about medications. I asked for a script for the Vicodin. He asked me how much I'm taking now. I told him, same as I've been taking for years. He then went into this whole discussion, telling me how when we are on high doses of narcotics (I take between 4 and 5 Vicodin a day), that God forbid, if I break a bone, my body no longer produces its own pain killing chemicals and so I will really be in severe pain, so he felt I needed to try an reduce the amount of medication. Now, did he suggest how I might do that? No. In the meantime, I find this pain management doctor, and you know the rest...
So I am wondering...anyone else here have this experience?
thanks so much
Miriam
PS - to Sherrine - I took one less Vicodin yesterday and then did not take one until four hours after I woke this morning. I would have thought, if I am dependent on the Vicodin, that my body would have been screaming for the narcotic when I woke this morning...strange, isn't it???
Fibromyalgia, Osteoarthritis, scoliosis, back problems, hypothyroidism.

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17895
   Posted 5/12/2011 4:46 PM (GMT -6)   
All these medications have different withdrawal "times", I think.  I checked out Vicodin and it said if you stopped it abruptly, the withdrawal symptoms would start within six to twelve hours.  You only stopped one pill and took another one four hours after you got up.  So that's probably why you haven't had any reaction.  Some drugs are more difficult to wean off of, too.  So maybe this is what happened with you.  But, I'm very glad to hear you could take less!
 
Sherrine 
Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

kat1611
Regular Member


Date Joined May 2011
Total Posts : 104
   Posted 5/12/2011 8:58 PM (GMT -6)   
Hi everybody! The dr.s know best, believe they tried everything on me! Just kidding. My family told me for 13 yrs that I was addicted to the pain meds that my dr was giving me even though I only took what I was prescribed. I had to come off all my meds to have my back fusion, no problem. When there was no relief from any physical therapy, shots, or anything else my surgeon and I decided to go with SCS. To do a trial unit you have to come off all meds to see if it helps. I was on Fentanyl 150mcg every 2 days, baclofen 10mg twice daily, and vicodin once daily, not to mention my meds for my epilepsy. They took me off everything except epilepsy meds within one month. That was in March. I just had my permanent unit put in last week and I've been off all meds except epilepsy since March. The pain was still there when I was off the meds so I didn't see the sense in starting back on them. When I talked to my pm dr she agreed. It's just frustrating that it takes us so long to find a solution to our problems. I hope you have found yours.

donnaeil
Veteran Member


Date Joined Jun 2006
Total Posts : 1156
   Posted 5/13/2011 2:16 AM (GMT -6)   
I was weaned off of two medications a few years ago with absolutely no problems. It is not like we are heroin addicts, and even they do not suffer much if their withdrawal is handled competently.

Not taking a med for fear of having to wean off of it does not always make sense. I had to wean off of sugar and other bad foods last year because I needed to lose weight.

Now that was suffering. lol

I am still drinking coffee though.

Donnaeil

vestabula
Veteran Member


Date Joined Nov 2008
Total Posts : 2859
   Posted 5/13/2011 5:36 AM (GMT -6)   
Miriam...I know how many drugs you weaned off of successfully over the past year...you even told us here on the forum.  It is such an accomplishment.  I will tell you that many years ago  I had four or five surgeries back to back and was given Fiorinal for the pain.  I was pregnant for twins during one surgery and the weight of them tore my stomach muscles at the surgery site.   After they were born I had to have yet another surgery to remove an ovary.  I had taken so much firorinal that the doctor could not relieve my pain after the operation.  He ordered an excessive dose of Morphine(trying to kill the pain) and I went into anaphyactic shock.  Then demerol and the same thing happened.  Now, I have to carry a medical alert with me that states I cannot have narcotics for pain...ever.  I had taken so much fiorinal for such a long time that  the chemicals in my brain had surpressed what ever it is they do to relieve the pain....or so the doctor told me.  Don't know the medical term for it...but it happened to me and is real.
 
We all react differently...what works for some do not work for others.  Some can go on and off drugs with absolutely no problems and never become addicted or dependent.  No one, however, should be in constant pain if they have a regamine that works for them and there are no signs of problems.
 
You have come so far over the past year...Kudos to you!
 
huggies
Donna 
 
 
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