No new news from rheumy. He was hoping that I would either be really well with the prednisone or that it did nothing. Unfortunately I was in the middle. I feel that it may have helped but some of the burning, itchy muscle like pain is easing its way back in. It goes from elbow up around shoulders and neck and back to other elbow. Its not terrible but he didn't feel that the prednisone was the key because of this. He is going to let me stay on it, as is, for another 6 weeks, do more blood work and then will go from there.
He does say that about 40% of the time the blood work will come back negative even though there may be some issues. (Sed rate high 47 but all inflammation tests came back in range or negative.)
So, still undiagnosed.
I am very deficient in vitamin D and I know that can play a big part in muscle pain but he didn't say either way his opinion on that. I also added the symptom of the very dry eyes/mouth and other regions. He says that one way or another, given time, he will figure it out. So, I at least know that he is not going to abandon me or leave me without meds.
He is such a good doctor. I really like him and hope to never have to change.