Morning Tulips. My sister and I had both been sick for years with diarrhea, itching, fatigue, hoarseness (which changed both of our voices, much deeper now and both will go hoarse very easily), muscle aches, etc. She had been seeing the doctor trying to figure it out. Her husband was researching online and found celiac disease, so she asked to be tested for it. The gastro laughed at her, said it is extremely rare and she couldn't possibly have it. He was WRONG and apologized to her. That was 11 yrs ago this last March. She went gluten free and started to get better. I had no insurance, no job, newly divorced, and no money for testing, so she convinced me to go gluten free too. It will be 11 yrs for me in July. Once you go gluten free, it's very difficult to be tested for celiac. That didn't matter to me though, since being gluten free worked for me too. 3 yrs ago, my neurologist did a celiac panel on me with gene testing. The panel of course, came back negative, which it should with me being gluten free. The genes came back double DQ1, which many doctors say is not celiac, some will even tell you there is no need to be gluten free unless you have DQ2 or 8 genes and flattened villi. Those doctors are WRONG, very WRONG. Our dad was diagnosed celiac 7 yrs ago this next Nov. Neither he nor my sister have been gene tested. My dad has to have one DQ1 gene for me to have 2. Am I celiac too? I truly believe I am.
If you have been tested and it came back negative, then go gluten free and see how you feel. If you haven't been tested, then at least have the doctor do the blood work for celiac.
There is no doubt in my mind that the gluten in my life for 45 yrs is the reason I have so many other problems. Gluten intolerance causes vitamin and mineral deficiencies and with those types of deficiencies, our bodies fall apart.
Because of my many intolerances and leaky gut syndrome, I can't seem to take the meds. Everything I tried has caused a flare with my leaky gut, which I have been trying so hard to heal. I think if I take ibuprofen or Aleve as I used to, I will be ok, but I can not take the megadoses the rheumy wants me to take. Meloxicam made me so sick, then I tried 500mg of Aleve twice daily, which made me just as sick. I don't know if the Flexeril caused issues or not, but I was sick for over 6 weeks from the meds and for now, I am afraid to try anything.
Gluten Intolerant, Small Fiber Sensory Polyneuropathy, Gluten Ataxia, Sleep Apnea, CFS, Raynauds, Hypothyroid, Fibromyalgia