Feels like a sunburn???

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Kookai
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Date Joined Aug 2017
Total Posts : 13
   Posted 8/22/2017 1:22 PM (GMT -7)   
Hey Sherinne...

The Gov't will be paying the bill. We have Provincial Health Care, whereby we present a card when we see the Dr., & there isn't any money exchanged.

For sure, I'll ask if whatever bloodtest she orders will be for Lyme and/or Lupus.

You also offer a good point in suggesting that I tell her that I have heard of people being diagnosed with Fibro when in fact they had Lyme or Lupus because the symptoms are so similar. As you said, she very likely will know what to do since she's board certified & also an Internist.

My GP did say that the MRI results mentioned arthritis in the spine, but he didn't say WHERE. I know for sure it's in an area of the cervical discs, but I won't know where or how bad 'til I get the copies of the MRI results myself. Likely, that won't happen for another week or so.

IF the Lyme and/or Lupus has been ruled out, but nobody has told me, I would find that very odd, especially if I wasn't told I was being tested for it. Surely my GP would have said something yesterday if that were the case.

lgG, lGM and lgA are all fine in the bloodwork. As mentioned previously, B12 levels are great. ESR & C-Reactive protein were fine as well. A/G Ratio, Gamma Globulin, Alpha 1 Globulin, Beta Globulin, Albumin Electrophoresis, Protein Electrophoresis, & Alpha 2 Globulin...all normal. I don't know if you understand all of this or not, but this is everything the Neurologist had tested in the bloodwork.

I will check to read about the link you send with me. Thanks for sharing!!!! smile

Sherrine
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Date Joined Apr 2005
Total Posts : 17556
   Posted 8/22/2017 2:16 PM (GMT -7)   
The ESR and CRP would be high if you had ankylosing spondylitis. These tests show inflammation and AS is an inflammatory illness. Fibro is not consid inflammatory.

Sherrine

Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Kookai
New Member


Date Joined Aug 2017
Total Posts : 13
   Posted 8/22/2017 2:45 PM (GMT -7)   
Ok, so I'll assume I don't have ankylosing spondylitis. Thanks for the information!! smile
"DON'T DRIVE FASTER THAN YOUR GUARDIAN ANGEL CAN FLY'

Kookai
New Member


Date Joined Aug 2017
Total Posts : 13
   Posted 8/28/2017 8:19 AM (GMT -7)   
Hello Everyone....
I'm getting very close to my Rheumatologist appointment, which will be this coming Wednesday (Aug. 30).
It's certainly my plan to tell her about the tender spots I have. I must clarify though, these spots are tender..I don't have pain emitting from those areas at all..just that they're tender.
I've read in some earlier posts about burning sensations. My Neuro mentioned the possibility of Erythromalalgia, but I honestly do not think I have that. I don't have the terrible swelling associated with it, nor do I have the pain. Yes, the bottoms of my feet become quite red..crimson in fact, & they feel very very warm, but not warm or hot to the touch. As for the 'pain'., I described it as a mild sunburn which to me is not pain. I will also tell the Rheumatologist about this as well,unless it's in notes sent to her from the Neuro.

The Neuro did run blood tests, but they came back absolutely fine. I'm not sure what a Rheumy would test for, but I'm sure she would test for things that perhaps the Neuro did not. Does anyone know what sort of things the Rheumy would ask for in a blood test. I'm expecting ANA & ENA which the Neuro did not have tested.

The pins/needles I'm experiencing are still in existence. Some days are worse than others, but in all honesty, I don't feel the need for medication. I fail to understand that although things may be going on in the spine...how do they halt the spread of symptoms? Can they not shut them off to a degree. In my opinion, medications would just mask the problem,not elminate it. I worry about the spread of the nerve problems. Thank goodness for my best friend.

If any of you have anything further to add in the way of information, I'd be most grateful.
Wishing you all a wonderful day!!!!
"DON'T DRIVE FASTER THAN YOUR GUARDIAN ANGEL CAN FLY'

Kookai
New Member


Date Joined Aug 2017
Total Posts : 13
   Posted 8/29/2017 3:51 AM (GMT -7)   
Thanks so much for sharing your information with me. I'm at the point now where I'm nearly demanding they find out what's going on with me. A guessing game of over 3 years is not acceptable. '

While there may be things going on in the spine..I know for sure there's narrowing in a nerve opening in the neck, I haven't heard back from the Neuro about the MRI I had Aug. 13. No news is good news..but
has the situation worstened or what. The pins/needles & burning has to be caused by something. I am not diabetic, have not had injury, etc.etc. In his report, the Neuro stated the EMG does not test for small fibre neuropathy. The question in my mind is if a patient is suffering this long; why do they not also test for small fibre neuropathy, or do a skin biopsy?

I'm grateful to have been referred to a Rheumatologist to see if there's anything going on in the immune system. Yes, I have some tender spots..the insides of each elbow..points on the back of my neck, front of chest, the insides of both knees, BUT I do not have pain that comes from these areas at all.

My main 'beef' is the burning in my feet, along with the pins/needles that happen in my legs. Although the pins/needles are tolerable, they're very annoying to say the least, & have been going on for far too long. I know nerves can't be cured, but further damage can be prevented; just how I don't know. I fail to understand just why Drs are quick to blame things going on in the spine, but they don't seem to do anything about stopping progression, or do they in fact know how to stop progression.

I took Gabapentin a about 1 1/2 yrs ago. It did help the pins/needles to a degree, but in all honesty, I truly didn't need the Gabapentin, & it certainly didn't do a thing for the burning.

So, I'm off to see the Rheumy tomorrow. I'm expecting a requisition for bloodwork to be done. The Neuro did send bloodwork results to her (I'm sure he would have done this), but I also do think the bloodwork she might order would have some differences. After all a Neuro likely doesn't know all the features of bloodwork to do with rheumatology.

Anything any of you might offer further would not only be welcomed, but very much appreciated.

Enjoy the day to the fullest!!!!!!

Kookai
New Member


Date Joined Aug 2017
Total Posts : 13
   Posted 8/31/2017 7:56 AM (GMT -7)   
Hello everyone!!!

I saw the Rheumatologist yesterday. She performed a very thorough examination, & didn't mention anything about Fibro at all, so I'll assume that's not what I have.

She did order bloodwork, checking for ANA, Rh Factor, ESR, & C-reactive protein along with the usual in CBC. So far this morning, all the results are within normal ranges, except ANA which hasn't come back yet. If that falls into the noramal category, then I very likely don't have any autoimmune issues.

She did tell me that her rule of thumb is that "no news is good news"..I won't be hearing from her because of normal results or something very minor. Of course if there were anything way off the charts, etc...that would be different.

So, onward & upward...I have my MRI scan results, & will post in a different area of the forum.

Thanks to all of you for your valued support.
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