Hip/leg pain with prolonged fibro?

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New Member

Date Joined Jun 2011
Total Posts : 1
   Posted 6/21/2011 6:34 PM (GMT -7)   
Anyone else have chronic hip and leg pain after having had it in upper body for over 15 years?

(I added a Subject to your post. It will bring more people in to read it)

Post Edited By Moderator (Chutz) : 6/21/2011 9:38:00 PM (GMT-6)

Veteran Member

Date Joined Jan 2005
Total Posts : 9090
   Posted 6/21/2011 8:36 PM (GMT -7)   
Hi Kpeter~

And welcome to the Fibro Family. I'm not sure that I can answer your question as accurately as you want but I'm happy to share what I've been through with fibro and hip/leg pain.

My fibro probably started nearly 15 years ago but was very slight at the time. Add a tragic even to my life in 2000 and the fibro went wild. Was diagnosed a year or so later by my PCP. The majority of my pain is neck/shoulder/head and lower back/caboose/thighs. The muscles in these areas are what make life very challenging at times. But, I have to add, I also have a collapsed disk in my lower back that pinches the nerves going down both legs. Sometimes it's one leg more than the other, sometimes not. Also I've had hip pain since my first pregnancy but with fibro it's much worse.

One of the frustrating things about fibro is that it can spread and/or move around the body. It can be fast or slow...no one knows how or why except that it's likely the central nervous system that is mostly involved.

I do hope something in here helps...
Chutz wink
Moderator on the Fibromyalgia and Chronic Pain forums
Daily Donnybrook: Fibromyalgia, Insulin Dependent Diabetes. Ulcerative Colitis, Rare form of Dermatitis, Collapsed Disk, Osteoarthritis (especially in right hand and neck) and a couple of other adjunct agitations.
Use the talents you possess, for the woods would be very silent if no birds sang except the best.

Regular Member

Date Joined Jan 2011
Total Posts : 42
   Posted 6/21/2011 9:06 PM (GMT -7)   
I've had fibro mostly in the upper body, shoulder neck, for years. This winter I started with the right hip, then the left hip joined in, lower back, then leg pain and so it goes. Very stiff and sore, lifting legs for stairs hurts, walking hurts, pain at night in bed and so on.

I think I'd rather have the upper body problem, as my mobility was not too bad! I try to get in walks and some days are painful but I can push on, others I just go short distances.

freddy girl

Regular Member

Date Joined May 2011
Total Posts : 174
   Posted 6/22/2011 3:38 AM (GMT -7)   
For me it has been going the opposite way pain in hip and legs must have started well over one and a half year ago in the meantime. Pain in shoulders/elbows/ neck, basicaly upper body, started more than 6 months later. I guess it can be different forall of us, but thats how it went with me.

"Live in the present, remember the past, but fear not the future, for it doesn't exist and never shall" (Christopher Paolini - Eldest)

Veteran Member

Date Joined Sep 2006
Total Posts : 2861
   Posted 6/22/2011 5:21 AM (GMT -7)   
Mine started in lower body and I thought maybe I didn't have fibro cause everybody complained of neck/shoulder pain...Chutz, I am like you too with severe disc degeneration and bursitis, so for me it doesn't really which one is giving me pain. Kpeter, mine has moved to shoulder and upper back, shoulder blades just recently and I've had fibro for 7 yrs. Go figure.LOL


Regular Member

Date Joined Jun 2011
Total Posts : 53
   Posted 6/22/2011 6:20 AM (GMT -7)   
Mine started in the hands and feet...neck, shoulders, and arms joined in a couple of months later...chest and hips have decided to join the party recently....but my wost pain is still in my hands, wrists, feet, ankles and knees.....One morning I expect to wake up and say my hair hurts (my poor attempt at humor)

Veteran Member

Date Joined Oct 2009
Total Posts : 4927
   Posted 6/22/2011 7:23 AM (GMT -7)   
My fibro is muscle pain all over. But I have sciatic pain and spine pain from injured and degenerated discs - and it feels different.

If you have new pain in hip joint area, maybe running down outer thigh, it could be sciatica. Ask your doc if an MRI would be a good idea just to rule out spine problems.

My MRI showed where the new pain was coming from. Steroid injections have helped a lot.

The doc can manipulate your hip joint to see if you just have hip bursitis too. I've had that, and a steroid injection there, which doesn't hurt, relieves that.

Of course there are lots of other things to rule out too. Eg: Google exercises for piriformis muscle, which can pinch sciatic nerve too. If the stretches that are shown in videos and diagrams work, then you can help yourself.

Regular Member

Date Joined May 2011
Total Posts : 227
   Posted 6/22/2011 8:09 AM (GMT -7)   
I get all over pain. For a week my shoulders and arms are the worst, the next week is my knees and thighs, the next week my back and neck, and then maybe a mixed bag of randomness all over. So fun!

Forum Moderator

Date Joined Apr 2005
Total Posts : 17524
   Posted 6/22/2011 8:43 AM (GMT -7)   
Hi, Kpeter, and welcome!  I'm glad you found us and joined the family.  I've noticed in the past few years that my hips and legs hurt more.  My doctor pressed on my thighs and I just about went through the roof!  He then said I had bursitis in my hips and it's fairly common with fibro patients.  The nerve runs from the hips down the legs, hence both hurting more.  It comes and goes for me but I use ibuprofen for pain so that helps inflammation.  He offered to use cortisone shots in my hips but, since it comes and goes, I didn't take them. 
Be sure to check out Fibro 101...the second thread on the forum.  There are links to good info about fibro and you will learn a lot there.  Read the links called Symptoms and A Thorough Explanation of Fibromyalgia.  These a great starting places in this thread.
I'm looking forward to getting to know you better.  Don't hesitate to ask questions because we are here to help you.  I hope to hear more from  you soon.  
Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Post Edited (Sherrine) : 6/22/2011 9:46:20 AM (GMT-6)

Regular Member

Date Joined Jun 2011
Total Posts : 33
   Posted 6/22/2011 9:35 AM (GMT -7)   
Bursitis is very common among people with Fibromyalgia (FMS). I have it in both hips and shoulders. I've been through a couple of rounds of physical therapy too. Even with treatment, mine is very persistent and has dragged on for almost 4 yrears. I have bursitis in both hips and shoulders.

There are a couple of other options rather than using a shot of steroids. Steroids lower the immune system which is not something that anyone with FMS needs. Fresh pineapple has an enzyme that breaks up bursitis. Eat a much of it as you can stand. Or, you can go to the health food store and ask them for Bromelin tablets - the higher strength is better. Same effect as eating pineapple.

Another not very well known remedy for chronic pain is a substance called Sarapin. It is a derivative of the pitcher plant and is a very effective, nontoxic pain killer. It is given by injection and most often used by holistic physicians. I just happen to have a rheumy who also uses it. In my case, it was used to break a chronic pain cycle in my lower back. I did not enjoy the injection process, but if I had to doit again I would. In my opinion, this is a much better choice than using a steroid.

I hope that my comments are helpful to you. Take care.

Regular Member

Date Joined May 2011
Total Posts : 30
   Posted 6/24/2011 4:12 PM (GMT -7)   
I have most likely had fibro for 16 years. Of course in the first several years my mom was told all my pain was from growing pain (I still get the same growing pains). I have had problems with my hips since I was very young. My hips are not turned correctly and the ligaments are very loose. Now, as an adult, I have a problem that my hip muscles are no longer working properly and so my lower back muscles are compensating for them. My back can no longer take the pressure of doing the work for the back and hips, so my mobility is severely limited. I have done the shots of steroids and had radio frequency nerve ablation on both sides from L3-S1. I've had some relief, but now I mostly need PT to retrain my muscles to work properly. I hope you feel better soon!

Heather Lynn
Regular Member

Date Joined May 2011
Total Posts : 283
   Posted 6/25/2011 8:47 AM (GMT -7)   
I too have fibro that started in my neck/back and now affects my hips/knees/shoulders. At least some of the hip and knee pain is explainable as IT Band Syndrome and hip bursitis, but it's been an especially difficult problem to manage. I blame fibro for that. I have found some relief via PT.

New Member

Date Joined Jun 2011
Total Posts : 3
   Posted 6/27/2011 10:52 PM (GMT -7)   
Hello, this is my first post to these forums.I have had chronic fibromialgia probably for years but diagnosed in 2002,I have migraine headaches that go on for months 24-7 seizures,chest pains,spasms soo bad I have had to ram my chest into the cushions on our couch to get some relief,carpel tunnel,I have a walker,cane,liftchair,craftmatic bed that raises and lowers me down an RS2 unit and on and on it goes.A year ago this past february my left hip started really bothering me...i told my Dr. at the pain clinic and they did I believe a MRI and it showed slight degeneration.They gave me some injections,I tried accupuncture,laser procedures and on and on just for the hip....i have already done crainiosyncro therapy,water therapy,regular therapy,seen soo many Dr.s finally in July last year I all the sudden couldn't hardly walk with my left leg...this went on for months and soo much pain.i went to my gynocologists and told her and part of it was a cyst that had burst but even after all of that still soo much pain...then in February of this year the pain got soo bad and moved down to my upper left leg and felt like I was being shocked and severe pelvic pain .....more injections and i have tried all the medicines that are out there and they do not even touch my pain and I know you all can relate.I am amazed at all the people that have this...my grandma when she was little had to be lifted with bed sheets because she arthritis soo bad...it is genetic they believe.My Dr. after years said we have tried everything and now you just have to try and deal with it like always...tons of hot baths soothe muscles for a short time but i believe the worse it gets (fibromialgia) the more stuff that happens...I didn't think i could hurt any worse than what i have already experienced...you do not thin there is any different area that hasn't killed you and then a new symtom appears with a vengence. Good luck to all of you..

New Member

Date Joined Jul 2011
Total Posts : 2
   Posted 7/5/2011 7:20 PM (GMT -7)   
I use microwaved rice socks to sooth the hip pain, also at times biofreeze but I just read another thread about Voltaren Gel that was posted some time ago. I have never heard of it so I posted and asked how it worked and if she anwesers I will let you know about that too!
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