FIBRO AND CHILLS WITH NO FEVER

New Topic Post Reply Printable Version
26 posts in this thread.
Viewing Page :
 1  2 
[ << Previous Thread | Next Thread >> ]

Bonzofibro
New Member


Date Joined Aug 2011
Total Posts : 6
   Posted 8/10/2011 11:35 AM (GMT -7)   
It seems that whenever I go into a flare one of the major symptoms that plagues me is chills.  Of course the body aches and fatigue are there along with it and when it is really bad all I can do is stay in bed, sleep and hope it passes soon. 
 
Does anyone get those chills with no fever and why do you think that happens.??? eyes

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17528
   Posted 8/10/2011 12:06 PM (GMT -7)   
Hi, Bonzofibro, and welcome!  I'm so glad you found us and joined in.  Yes, chills and fibro can go hand in hand.  I know I get cold easily so I carry a cotton sweater with me at all times...and I live in Florida!  Our symptoms are so weird and no two fibromites have exactly the same symptoms.  It's a crazy illness.  Below is a link to an article called Fibromyalgia Information for Neurologists.  This shows all we go through and at the bottom she mentions how we can be hot one minute and chilled the next.  Hope this helps you.
 
 
Be sure to check out Fibro 101...the second thread on the forum.  There are links to good information about fibro and you will learn a lot there.
 
Try to do gentle exercises every day.  You already know that sitting and laying make you very stiff and, actually, this does make your pain worse.  I've had fibro for 24 years.  Four years ago I started walking because it is a weight-bearing exercise and I had just been diagnosed with osteoporosis.  I had to start out slowly because my body wasn't used to it.  I only could walk four houses down the street before I had to turn around and head home.  But I didn't give up and now I start each day with at least a one mile walk.  I don't feel like going but I know my pain will be less and I will have less fatigue by the time I get home.  I sure wasn't expecting the walking to help fibro that much but it sure does!  Quite a few members are doing this now and getting some relief.  I don't stay still too long or I pay for it with more pain.
 
I'm looking forward to getting to know you better.  Don't hesitate to ask questions because we are here to help you.  I hope to hear more from you soon.
 
Sherrine 
Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

mscrowbar
Veteran Member


Date Joined Nov 2010
Total Posts : 877
   Posted 8/10/2011 12:12 PM (GMT -7)   
Hello and welcome to healing well.

I do not get the chills per say. I do however get hot flashes and then chills from that. All night long, covers on, covers off. Endocrinologist says its from the high dosage of synthroid. I also have fibro, RA and iron deficiancies so who knows if any one of them or the meds treating them could also be the reason for the hot flashes/chills.

Sorry couldn't help you but wanted to at least welcome you.
Denita
**************************************
Rheumatoid arthritis with secondary Sjogrens, Fibromyalgia, meniscus tears in left knee, Cancer survivor

Bonzofibro
New Member


Date Joined Aug 2011
Total Posts : 6
   Posted 8/10/2011 12:19 PM (GMT -7)   
Hi Sherrine,
 
Thanks for the warm welcome.  I too live in Florida.....
 
Yes, you are right, staying still makes it worse and it is sometimes hard not to when you really feel ill in a flare.
 
I have walked the last couple days and maybe I over did it.  It think I did.  I best start out slowly.....or I defeat myself.  I know it strengthens the muscles to exercise and there is a fine line between benefiting and going into a flare from it.
 
I am glad I have found this site for support and inspiration, and maybe I too can help others with what I have learned through the years regarding managing my Fibro.
 
Bon  yeah

Bonzofibro
New Member


Date Joined Aug 2011
Total Posts : 6
   Posted 8/10/2011 12:22 PM (GMT -7)   
How do I set up my profile so my email address will be available to members. Thanks. Bopn

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17528
   Posted 8/10/2011 12:41 PM (GMT -7)   
Bon, I hope you get a chance to read that link I posted to you.  It's really very good and I learned more from it.  I'm always learning something about this illness and you know knowledge is power! 
 
To create your profile, there is a bar at the top of the page that says "My Profile".  Click on that and fill in the info.  You can also put an email address if you think you would want members to see it.  Only HW members will have access to the profiles.  We don't have people put their email addresses in their posts because anyone throughout the world could see that....non-members, too.....and that could spell trouble.  Hope this helps.
 
Sherrine
Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

mscrowbar
Veteran Member


Date Joined Nov 2010
Total Posts : 877
   Posted 8/10/2011 12:47 PM (GMT -7)   
click on "My profile" at the top of the page. Its right next to the log out button. You will also have the opportunity to list diagnosises and medications if you would like.
Denita
**************************************
Rheumatoid arthritis with secondary Sjogrens, Fibromyalgia, meniscus tears in left knee, Cancer survivor

FibroNana
Regular Member


Date Joined Sep 2010
Total Posts : 194
   Posted 8/10/2011 3:07 PM (GMT -7)   
Denita,

I have been having horrible hot flashes and the chills lately...New symptom for me..I use to have the night sweats but this is entirely different..I had my hormones checked because I'm in that age bracked but they say no, you aren't there yet...hmmm, I beg to differ..

so maybe it's just my ole pal, Fibro! ugh, one more thing..


Jerrie/FibroNana
Fibromyalgia,meralgia paresthetica,degenerative disc disease,rheumatiod arthritis,depression,asthma
Cymbalta,neurotin,predisone,percocet
Juiceplus,coq10,malic-acid/magnesium,probiotics,fish oil

Bonzofibro
New Member


Date Joined Aug 2011
Total Posts : 6
   Posted 8/10/2011 3:22 PM (GMT -7)   
Hi Jerrie,

Yes, the chills have been something very annoying for me for many years now and I can not for the life of me figure out why I get them. Never a fever...but they seem to go hand in hand with the fatigue and aches....

Do you get really really sleepy and just want to be in bed sleeping in a flare?
Bon Y.

McFibro
Regular Member


Date Joined Aug 2011
Total Posts : 57
   Posted 8/10/2011 6:49 PM (GMT -7)   
Yep - those were my first symptoms. Very much like the flu. Just stay rested if you can and it will pass; at least that's been my experience. Anytime I overdue anything, those are my first symptoms. Take Care and keep a blanket close by! tongue

Bonzofibro
New Member


Date Joined Aug 2011
Total Posts : 6
   Posted 8/11/2011 5:55 AM (GMT -7)   
Do you think that a "flare" so to speak, is really when the muscles/body gets over taxed and it freaks out by exhibiting flare symptoms...and if you rest a day or two it calms down and you feel better again? Just wondering what you all think about this? Do any of you experience "depression" when you are in a flare.....?
Bon Y.

vestabula
Veteran Member


Date Joined Nov 2008
Total Posts : 2858
   Posted 8/11/2011 6:33 AM (GMT -7)   
I guess my 'chills' are different.  I get them when I brush my hair...when the water from the shower hits my skin...when I pull a shirt over my head.  I always thought it was from super skin sensitivity.  At night when I put my head on the pillow I get goosebumps across the part of my face that touches the pillowcase...weird!
 
Donna

TravelLaughLove
New Member


Date Joined Mar 2016
Total Posts : 1
   Posted 3/5/2016 4:31 PM (GMT -7)   
Thank you so much for writing on this topic! As someone newly diagnosed I always wondered why I experience so many chills!

Mz.Ronni
New Member


Date Joined Jan 2017
Total Posts : 1
   Posted 1/17/2017 5:28 AM (GMT -7)   
Hi I am new, I have been suffering with the chills and severe sensitivity in spells more frequently. I am glad I joined I thought I was only one

Ljm2014
Veteran Member


Date Joined May 2014
Total Posts : 2076
   Posted 1/17/2017 12:05 PM (GMT -7)   
I can chill especially when its damp out..but i get many symptoms with weather changes.

Lj

Hallahan
Regular Member


Date Joined Feb 2014
Total Posts : 217
   Posted 1/19/2017 8:00 PM (GMT -7)   
I get the chills just before a flare. Always. It feels like the flu is coming and then I get the muscle aches and feel like a Mack truck hit me. Flares vary in length from 2 days to a week.

I'm getting fewer flares. I take Cymbalta, D3, Baclofen (muscle relaxant), Curcumin, Magnesium malate.

I started the Curcumin only recently and it has helped the pain a lot.

Barb

SpontaneousFlowerChild
New Member


Date Joined Jan 2017
Total Posts : 2
   Posted 1/24/2017 11:26 PM (GMT -7)   
I'm getting chills and weakness to I'm not sure what this is I know what you mean though

GuyGene
Regular Member


Date Joined Dec 2014
Total Posts : 40
   Posted 1/27/2017 8:32 AM (GMT -7)   
I'm not glad you have chills Bonzo, but it helps me a bit to know I'm not the only one! Also, like someone said, sometimes taking a shower water hitting my skin gives me chills. I've said it many times, I'll say it again - this stuff is The Mess®😝. I mean totally crazy! Of course, y'all here know that.

bcfromfl
Regular Member


Date Joined Nov 2011
Total Posts : 417
   Posted 2/4/2017 12:39 AM (GMT -7)   
Losing the ability to regulate body temperature is common in several autoimmune conditions before a flare. I also will get hot flashes as a reaction is coming on, followed by chills. It is most likely a result of the autoimmunity attacking cell mitochondria, and inhibiting ATP production.

I have CFIDS, and empathize with what you all are going through.

Bruce

Luvzminis
Veteran Member


Date Joined Apr 2008
Total Posts : 2660
   Posted 2/4/2017 9:03 AM (GMT -7)   
Just wanted to add another "yep, I get this, too." I had an especially nasty flare a few weeks ago. For several days, I was very chilled, but no fever. I couldn't believe I didn't have even a slightly elevated temperature. I thought sure I had a raging fever, as I've always been very cold throughout my body when I do have a flu or nasty cold.

A very odd feeling! It's always good to know you're not the only one dealing with strange symptoms. So thankful for this forum.
"When you encounter difficulties and contradictions, do not try to break them, but bend them with gentleness and time."

St. Francis de Sales

Kriya
Regular Member


Date Joined Dec 2016
Total Posts : 70
   Posted 2/5/2017 6:33 AM (GMT -7)   
Again this topic.. well its not fibro, i had it long time before i got fibro. my bet it has to do with weaken immune system and maybe much more. i already impressed my self way too much, than start trusting to a typical doctor.

bcfromfl
Regular Member


Date Joined Nov 2011
Total Posts : 417
   Posted 2/5/2017 12:26 PM (GMT -7)   
Fibro is an autoimmune condition, and it's possible to display secondary symptoms before the primary ones appear as the disorder progresses.

I've found that it is important not to allow yourself to continue to be chilled, especially now in the wintertime. The sense of being cold means that your endorphins are running low, and/or ATP production is not as it should be. If you allow this symptom to continue, it will snowball and other symptoms will appear and become worse.

If you can, get in the shower and warm up. Your body will actually store quite a bit of heat, and this warmth from the shower will last enough time to help your equilibrium get back on track. (Or, wrap up in a good blanket, although this is not as quick a remedy.) A good tip!

Luvzminis
Veteran Member


Date Joined Apr 2008
Total Posts : 2660
   Posted 2/5/2017 3:00 PM (GMT -7)   
bcfromfl: I agree with your suggestion---great idea to keep warm. I felt better when I added (even more!) layers of clothing during the day, and wrapped up in a blanket when I sat on the couch and read in the evening.

And yes, those warm showers not only help with the heat but also the stiffness.

I even wore a stocking cap inside the house for a few days, as I've heard heat can be lost quickly if your head isn't covered; well, at least they say that when you're outside in the cold, you can lose heat quickly through your head. But it definitely helped me inside the house, too. smile

Winter is definitely a time to stay warm and cozy, as much as possible. I make sure I have on extra clothing and I wear a winter hat, even if I'm just going outside for a short time, feeding the dog or filling the bird feeder. But I should also mention I'm in a very cold climate, so that's a factor for me, too.

I think staying warm is more important that we think, if we have an autoimmune condition. You made an important point, IMO!
"When you encounter difficulties and contradictions, do not try to break them, but bend them with gentleness and time."

St. Francis de Sales

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 2/5/2017 9:05 PM (GMT -7)   
Bcfromfl, fibro has not been identified as an autoimmune disease. The jury is still out on its classification.

Fibro will sometimes tag along with an autoimmune disease, but it's a totally separate issue. For example, I was diagnosed first with lupus. Two years later I develop chronic pain. My doctor said I now have Fibro on top of the lupus. Another 2 years later I got PsA.
Joy
Lupus, RA, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Depression, Allergies, diabetes, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

bcfromfl
Regular Member


Date Joined Nov 2011
Total Posts : 417
   Posted 2/5/2017 10:16 PM (GMT -7)   
The way I understand it myalgic encephalomyelitis is the broad medical term (which is an autoimmune disorder), and fibromyalgia and chronic fatigue immune deficiency disorder are the two subcategories...based upon symptom differentiation. But there is a movement to eliminate the subcategories, mostly because "chronic fatigue" has a poor connotation, and make the move back to calling them both ME.

Bruce
New Topic Post Reply Printable Version
26 posts in this thread.
Viewing Page :
 1  2 
Forum Information
Currently it is Friday, December 15, 2017 6:53 PM (GMT -7)
There are a total of 2,905,972 posts in 318,906 threads.
View Active Threads


Who's Online
This forum has 158250 registered members. Please welcome our newest member, 4som1.
331 Guest(s), 10 Registered Member(s) are currently online.  Details
MD23, js100, 1000Daisies, The Dude Abides, Skypilot56, Mickey Childress, WalkingbyFaith, TroubledTurds, momem3, Goat0724