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FIBRO AND CHILLS WITH NO FEVER

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Posted 8/10/2011 12:35 PM (GMT -6)
It seems that whenever I go into a flare one of the major symptoms that plagues me is chills.  Of course the body aches and fatigue are there along with it and when it is really bad all I can do is stay in bed, sleep and hope it passes soon. 

Does anyone get those chills with no fever and why do you think that happens.??? eyes

Posted 8/10/2011 1:06 PM (GMT -6)
Hi, Bonzofibro, and welcome!  I'm so glad you found us and joined in.  Yes, chills and fibro can go hand in hand.  I know I get cold easily so I carry a cotton sweater with me at all times...and I live in Florida!  Our symptoms are so weird and no two fibromites have exactly the same symptoms.  It's a crazy illness.  Below is a link to an article called Fibromyalgia Information for Neurologists.  This shows all we go through and at the bottom she mentions how we can be hot one minute and chilled the next.  Hope this helps you.

http://fibromyalgia.ncf.ca/dsneuro.htm

Be sure to check out Fibro 101...the second thread on the forum.  There are links to good information about fibro and you will learn a lot there.

Try to do gentle exercises every day.  You already know that sitting and laying make you very stiff and, actually, this does make your pain worse.  I've had fibro for 24 years.  Four years ago I started walking because it is a weight-bearing exercise and I had just been diagnosed with osteoporosis.  I had to start out slowly because my body wasn't used to it.  I only could walk four houses down the street before I had to turn around and head home.  But I didn't give up and now I start each day with at least a one mile walk.  I don't feel like going but I know my pain will be less and I will have less fatigue by the time I get home.  I sure wasn't expecting the walking to help fibro that much but it sure does!  Quite a few members are doing this now and getting some relief.  I don't stay still too long or I pay for it with more pain.

I'm looking forward to getting to know you better.  Don't hesitate to ask questions because we are here to help you.  I hope to hear more from you soon.

Sherrine 

Posted 8/10/2011 1:12 PM (GMT -6)
Hello and welcome to healing well.

I do not get the chills per say. I do however get hot flashes and then chills from that. All night long, covers on, covers off. Endocrinologist says its from the high dosage of synthroid. I also have fibro, RA and iron deficiancies so who knows if any one of them or the meds treating them could also be the reason for the hot flashes/chills.

Sorry couldn't help you but wanted to at least welcome you.
Posted 8/10/2011 1:19 PM (GMT -6)
Hi Sherrine,

 

Thanks for the warm welcome.  I too live in Florida.....

 

Yes, you are right, staying still makes it worse and it is sometimes hard not to when you really feel ill in a flare.

 

I have walked the last couple days and maybe I over did it.  It think I did.  I best start out slowly.....or I defeat myself.  I know it strengthens the muscles to exercise and there is a fine line between benefiting and going into a flare from it.

 

I am glad I have found this site for support and inspiration, and maybe I too can help others with what I have learned through the years regarding managing my Fibro.

 

Bon  yeah

Posted 8/10/2011 1:22 PM (GMT -6)
How do I set up my profile so my email address will be available to members. Thanks. Bopn
Posted 8/10/2011 1:41 PM (GMT -6)
Bon, I hope you get a chance to read that link I posted to you.  It's really very good and I learned more from it.  I'm always learning something about this illness and you know knowledge is power! 

 

To create your profile, there is a bar at the top of the page that says "My Profile".  Click on that and fill in the info.  You can also put an email address if you think you would want members to see it.  Only HW members will have access to the profiles.  We don't have people put their email addresses in their posts because anyone throughout the world could see that....non-members, too.....and that could spell trouble.  Hope this helps.

 

Sherrine

Posted 8/10/2011 1:47 PM (GMT -6)
click on "My profile" at the top of the page. Its right next to the log out button. You will also have the opportunity to list diagnosises and medications if you would like.
Posted 8/10/2011 4:07 PM (GMT -6)
Denita,

I have been having horrible hot flashes and the chills lately...New symptom for me..I use to have the night sweats but this is entirely different..I had my hormones checked because I'm in that age bracked but they say no, you aren't there yet...hmmm, I beg to differ..

so maybe it's just my ole pal, Fibro! ugh, one more thing..


Jerrie/FibroNana
Posted 8/10/2011 4:22 PM (GMT -6)
Hi Jerrie,

Yes, the chills have been something very annoying for me for many years now and I can not for the life of me figure out why I get them. Never a fever...but they seem to go hand in hand with the fatigue and aches....

Do you get really really sleepy and just want to be in bed sleeping in a flare?
Posted 8/10/2011 7:49 PM (GMT -6)
Yep - those were my first symptoms. Very much like the flu. Just stay rested if you can and it will pass; at least that's been my experience. Anytime I overdue anything, those are my first symptoms. Take Care and keep a blanket close by! tongue
Posted 8/11/2011 6:55 AM (GMT -6)
Do you think that a "flare" so to speak, is really when the muscles/body gets over taxed and it freaks out by exhibiting flare symptoms...and if you rest a day or two it calms down and you feel better again? Just wondering what you all think about this? Do any of you experience "depression" when you are in a flare.....?
Posted 8/11/2011 7:33 AM (GMT -6)
I guess my 'chills' are different.  I get them when I brush my hair...when the water from the shower hits my skin...when I pull a shirt over my head.  I always thought it was from super skin sensitivity.  At night when I put my head on the pillow I get goosebumps across the part of my face that touches the pillowcase...weird!

Donna

Posted 3/5/2016 5:31 PM (GMT -6)
Thank you so much for writing on this topic! As someone newly diagnosed I always wondered why I experience so many chills!
Posted 1/17/2017 6:28 AM (GMT -6)
Hi I am new, I have been suffering with the chills and severe sensitivity in spells more frequently. I am glad I joined I thought I was only one
Posted 1/17/2017 1:05 PM (GMT -6)
I can chill especially when its damp out..but i get many symptoms with weather changes.

Lj
Posted 1/19/2017 9:00 PM (GMT -6)
I get the chills just before a flare. Always. It feels like the flu is coming and then I get the muscle aches and feel like a Mack truck hit me. Flares vary in length from 2 days to a week.

I'm getting fewer flares. I take Cymbalta, D3, Baclofen (muscle relaxant), Curcumin, Magnesium malate.

I started the Curcumin only recently and it has helped the pain a lot.

Barb
Posted 1/25/2017 12:26 AM (GMT -6)
I'm getting chills and weakness to I'm not sure what this is I know what you mean though
Posted 1/27/2017 9:32 AM (GMT -6)
I'm not glad you have chills Bonzo, but it helps me a bit to know I'm not the only one! Also, like someone said, sometimes taking a shower water hitting my skin gives me chills. I've said it many times, I'll say it again - this stuff is The Mess®😝. I mean totally crazy! Of course, y'all here know that.
Posted 2/4/2017 1:39 AM (GMT -6)
Losing the ability to regulate body temperature is common in several autoimmune conditions before a flare. I also will get hot flashes as a reaction is coming on, followed by chills. It is most likely a result of the autoimmunity attacking cell mitochondria, and inhibiting ATP production.

I have CFIDS, and empathize with what you all are going through.

Bruce
Posted 2/4/2017 10:03 AM (GMT -6)
Just wanted to add another "yep, I get this, too." I had an especially nasty flare a few weeks ago. For several days, I was very chilled, but no fever. I couldn't believe I didn't have even a slightly elevated temperature. I thought sure I had a raging fever, as I've always been very cold throughout my body when I do have a flu or nasty cold.

A very odd feeling! It's always good to know you're not the only one dealing with strange symptoms. So thankful for this forum.
Posted 2/5/2017 7:33 AM (GMT -6)
Again this topic.. well its not fibro, i had it long time before i got fibro. my bet it has to do with weaken immune system and maybe much more. i already impressed my self way too much, than start trusting to a typical doctor.
Posted 2/5/2017 1:26 PM (GMT -6)
Fibro is an autoimmune condition, and it's possible to display secondary symptoms before the primary ones appear as the disorder progresses.

I've found that it is important not to allow yourself to continue to be chilled, especially now in the wintertime. The sense of being cold means that your endorphins are running low, and/or ATP production is not as it should be. If you allow this symptom to continue, it will snowball and other symptoms will appear and become worse.

If you can, get in the shower and warm up. Your body will actually store quite a bit of heat, and this warmth from the shower will last enough time to help your equilibrium get back on track. (Or, wrap up in a good blanket, although this is not as quick a remedy.) A good tip!
Posted 2/5/2017 4:00 PM (GMT -6)
bcfromfl: I agree with your suggestion---great idea to keep warm. I felt better when I added (even more!) layers of clothing during the day, and wrapped up in a blanket when I sat on the couch and read in the evening.

And yes, those warm showers not only help with the heat but also the stiffness.

I even wore a stocking cap inside the house for a few days, as I've heard heat can be lost quickly if your head isn't covered; well, at least they say that when you're outside in the cold, you can lose heat quickly through your head. But it definitely helped me inside the house, too. smile

Winter is definitely a time to stay warm and cozy, as much as possible. I make sure I have on extra clothing and I wear a winter hat, even if I'm just going outside for a short time, feeding the dog or filling the bird feeder. But I should also mention I'm in a very cold climate, so that's a factor for me, too.

I think staying warm is more important that we think, if we have an autoimmune condition. You made an important point, IMO!
Posted 2/5/2017 10:05 PM (GMT -6)
Bcfromfl, fibro has not been identified as an autoimmune disease. The jury is still out on its classification.

Fibro will sometimes tag along with an autoimmune disease, but it's a totally separate issue. For example, I was diagnosed first with lupus. Two years later I develop chronic pain. My doctor said I now have Fibro on top of the lupus. Another 2 years later I got PsA.
Posted 2/5/2017 11:16 PM (GMT -6)
The way I understand it myalgic encephalomyelitis is the broad medical term (which is an autoimmune disorder), and fibromyalgia and chronic fatigue immune deficiency disorder are the two subcategories...based upon symptom differentiation. But there is a movement to eliminate the subcategories, mostly because "chronic fatigue" has a poor connotation, and make the move back to calling them both ME.

Bruce
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