Hi ChitownsChinadoll (cute name, explain it if you feel up to it sometime)
I can tell you whey it seems like no one really understands. No one really understands. Trying to cheer you up, but really I think that is is. They are so clueless you just have to remember that, and you are NOT wrong or crazy. I try to sit and imagine how it used to be without any pain, then I get mad at myself for how I took it for granted.
I do know that listening to mediation and relaxation recordings help me a lot. I've always had a high level of anxiety, the relaxation never seemed to help that much, but funny how it IS helping my fibro symptoms! If you have a phone or a device that you can upload apps on, there are some that are free. One I've found is the Qi Gong (it's pronounced Chee Gong)
Anyway, when you feel like sh** it's understandable that we get isolated and nobody understands and our feelings get hurt, which leads to more tension in the muscles and stress/loneliness/depression and I know I often have guilt over not being able to be the mom I want to be for my kids.
Listing all that isn't helping so I'll hush! But just know you aren't alone. They have found that people who research and stay more involved with learning about fibro tend to feel better (I know it's helping me feel more in control and that it's not something happening TO me, it's something happening WITH me, and the more I learn the more I do feel validated that I am a normal person just going through some hard stuff)...and that helps.
I found this video validating and although it's long and highly technical in some parts, you might like to see it too http://www.healingwell.com/community/default.aspx?f=24&m=2197316
Be careful when you go to YouTube, there are some videos that have made me feel worse instead of better and you have to be careful of snake oil salesmen promising cures...lol
46F, Fibromyalgia, Vitamin D deficiency, allergies/chemical sensitivities, possible Chronic Fatigue & maybe some IBS (only God knows what else is going on!)