Epilepsy.com does now have a short article about PNES being linked to Fibro. I personally was not told the 2 were linked even though I had the 2 diagnoses. I discovered the link on my own. What has helped me was treatment with routine xanax. Also, I have definite "aura" sensations and can limit my activites or get home or call for help during this time prior to the PNES. I have also ER backup Ativan if the event is prolonged or becomes tachycardic or my BP is too high too long. They are pretty scary as you are relatively aware that something is going on during the event though you seem clouded. I was diagnosed with Photo Stim at UC Epilepsy Unit in Ohio....single most terrifying event in my life due to you have some awareness that your body is out of control and mind and you don't know what is going on ...I did not know if I was dying or losing my mind and you can't stop the seizure. I could feel extreme palpitations and racing heart and severe uncontrolled movements, but could not make them stop. I ended up with head jerking, seeing psychodelic colors only and then I heard this murderous screaming...which was ME...I did not know it was me! I was restarted on xanax and this helps to control the stress/anxiety that leads to the seizure. I had tried antidepressants, BP meds(made it much worse), lyrica and neurontin with no success...xanax has helped tremendously. People are afraid of benzos but if your body/brain needs them it can restore your quality of life...it has allowed me to leave the house again independently! There is a thought that Fibro has something to do with decreased GABA in the brain - benzos help bring that level up of GABA but they are NOT for everyone. You must really have a team of good MD's to help you with the use of them!