Welcome to the forum...sending you gentle hugs. I'm so sorry for your pain. My heart always goes out to the young people.
Is HSP a form of vasculitis? I understand steroids too... hate prednisone. Besides fibro have an autoimmune disease so I have experianced the horrors of steroids.
Living with chronic pain is an adjustment, especially if you have been an active person in the past. We slowly learn and accept that there are going to be things we can no longer do. Grieving is part of a process that we all go through...we are mourning the loss of good health. In time, you will find activities that you enjoy that don't put as much stress on your body. With fibro it is important to be active but you need to pace yourself. I am a walker and it does help with stress.
We need to do what we can do to help ourselves feel better. Finding ways to distract the pain is essential. I live a pretty active life in spite of my illnesses, it can be done...believing is always the first step.
Heat always makes me feel better and I do deep breathing and meditation to help relieve stress...it does help.
If you are having trouble with depression, please talk to your doc to see what alternatives there are...many have found help with counseling.
I'm wishing you the best...keep posting, we do care!!!
Fibromyalgia, Heart Disease, Pulmonary Hypertension,
MCTD (Lupus, Scleroderma and RA)
Raynaud's, Degenerative Disc Disease, Osteoarthritis,
Osteoporosis, Hypertension and Migraines
"Where there is a will, there is a way"