Thank you so much for your reply. I thought it might be arthritis, specifically Rheumatoid Arthritis, but my ANA, ENA and Rheumatoid Factor came back negative, and on examination and palpitation I've been told my joints are fine. Also got an MRI of my hands which I have been told should have shown something if it was arthritis or if I had bone loss. Very frustrating :(
My hands and feet feel... the only way I can explain it is 'soft'. They used to feel 'hard' and 'strong'. When all this started happening I had an inkling it would get worse so I started trying to lift things (as you do, when you want to test your strength). Don't worry - I don't do it every day and I only do it once or twice when I do just to see if I can lift whatever, not to exhaustion. The best example is this Ikea wooden shelf for my desk with a metal bar on it's underside I have laying up against my wall in my room - basically a piece of wood with a bar underneath. The darned screws broke for it (and of course Ikea has stopped making the ones in the size I need) so it's near useless. The shelf is not light but it's certainly not extremely heavy. Before this started happening I'd move it around if it got in my way or I was searching for something, grasping it between thumb and fingers by the shorter end to move it. Used to be easy. Cannot do this now as my grip strength has diminished. Same with writing with a pen - much harder now. Using chopsticks. Squeezing a tube of toothpaste - that was one of the first things I noticed. Can't do that with my left hand, when I try my hand shakes and if I try 100x harder I can sort of, maybe, do it slightly.
Unfortunately, these things are hard to quantify for the 3 neuros I've seen. They have their little neuro tests that a 3 year old child could pass (grip, push away, lift your arms up, blah) but my issue is not immediate weakness, but progressive weakness. The last one asked me what I was worried about
- I said anything to do with muscle problems. He asked me: 'Motor neuron disease?'
I said, which turned out to be a huge mistake, 'Well, yeah, I mean that sort of thing causes issues with muscles and it'd be a pretty devastating condition to have.' Well.. then he turned on the smarm. 'Oh, I meet people like you all the time, you worry about
nothing, probably all in your head, your twitches are most likely benign.' I showed him an old picture of my hands and one of me from the start of the year where I weigh more and have more muscle. 'This guy here in the photo - I'm so glad you showed me this - this guy looks sick to me. Right now you look well muscled and fit.' I've been unable to do exercise for the past 3 or 4 months, although I try, so I'm unsure how I could look 'well muscled'. That guy in the photo he said was sick was 98 kgs (a little on the hefty side, yet not abnormal). He was fit from swing dancing every week and running most days and some weights. But the neuro dismissed this. I asked him about
the hands photo - 'You probably lost a but of weight from your hands and feet as well.' When I explained to him that my hands and feet had started changing in the past 1 and a half months, during which time I HAD NOT LOST ANY MORE WEIGHT. He said: 'Well, maybe you've lost a little muscle and put on a little fat but I doubt it's causing you the trouble you're saying it is.'
Sorry for the rant but is anyone else having these issues? I'm trying to stop an issue from escalating to a point where I don't pass these little neuro tests (I'm not far off this) and it's frustrating when you're not believed, and all you're trying to do is not get any worse.
I've been saying to myself for the past 6 months: 'Oh no, Rob, you're being stupid. You're fine and this new thing is just stress.' That same phrase has been repeated over and over again, when I started getting lightheaded, had muscle cramps, lost weight, and now as I'm losing strength. At what point is one allowed to start worrying? Never, if my parents are to believed.
Post Edited (ged12345) : 11/7/2011 7:12:06 AM (GMT-7)