Thank you for welcoming me almost medfree
To answer your question, no my Doctor is not a specialist, he's an MD and I'm beginning to question his knowledge of fibro myself. Since I am a realtively new patient and have only had 3 visits with him so far, I understand that he is learning about me as much as I am learning about him. I also think looking back, that perhaps I downplayed my symptoms or wasn't specific enough or didn't make it clear enough to him how dehabilatating my symptoms really are. Again, there's this fine line with Doctor's and I've learned the hard way that sometimes saying "too much" can illicit a negative or a "it's all in your head" response. As sad as this is to admit, I think that sometimes when I go to a new Dr or specialist, I want to make a "good impression" so that they don't dismiss me so readily. Each time I think to myself "o.k, maybe if I just try to approach it this way they will take me seriously"
Something else that I wanted to put out there that perhaps you, or other's reading this might relate to is a conversation that he and I had on my last visit. He had first prescribed symbalta before we learned that my insurance wouldn't cover it. His thinking was that he wanted to prescribe something also used as an anti- depressant since he clearly isn't convinced yet that this isn't just depression. It was only at my insistance that he even prescribed something for fibro in the first place after I nearly begged him to just give it a try to see how I respond.
Anyway, I said to him "So if I respond well to this, that might be an indication that this is fibro right?" And he said "Well, either that or depression, either way as long as it's working it doesn't matter what it is"
And I told him that was just it, that it DOES matter. That for living for so long with something without having a name for it and to only know that I'm sick, but not what's causing it, I need a name and a proper diagnosis.
It's like without having someone say it and really confirm it, I feel like it's not valid, or that other's won't believe me or see it as valid. Just knowing what it is finally will lift some of this weight I've been carrying around for over ten years. I'm sure other's out there know what I mean, especially after reading how many other's were just like me, going from Dr to Dr until they finally had someone give them an actual diagnosis. It must in some strange and surreal way, be a bit of a relief.
Anyway, not to chat your ear off As I said, I'm going back next week to see him again to check how the medicine is working and I guess I'll see what happens then, and whether or not I need to begin looking for a new Doctor.
Again, thank you so much for welcoming me. I'm continually amazed by what a wonderful and caring group of people I've found and feel so very lucky to get to share a bit of my days with all of you.
All of my best to you. Hope it's a wonderful day!!